Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@sueinmn

@julie04 I thought I would give you a "report from the trenches" on our audiology visits this week. In order to persuade Jerry to see a doctor of audiology, I made an appointment for both of us at the doc recommended by my primary.
It was a great visit - she was thorough, not only in her testing, but her interviewing and explanations. She looked him right in the eye and told him he was not the only one affected by his refusal to wear his aids.
The net result - even though my tinnitus is worse, and my hearing is only slightly decreased from 2 years ago, I am not yet quite at the point of benefiting clearly from an hearing aids. Instead I will be trying some apps to mask the tinnitus when it is bothersome, but I have lived with it for so long that I can normally ignore it.
Jerry's hearing is also slightly worse - and he definitely needs aids, but she looked at his and determined they are 4 & 7 years old and old technology, in addition to being uncomfortable. We will be looking at new aids for him, so now I will go to the hearing discussion group and see what people are saying. She is recommending a Phonak with Bluetooth, because service should be widely available with our two homes. The problem is, of course, the 45 day return policy - which won't work with our travel plans.
What do you think of trying Costco aids? They seem to be well-rated, can be serviced near both homes, and have the 6 month guarantee, attractive because he has had such a hard time adjusting in the past. I figure we can do that, and if they don't work out, still have the Phonak option when we come home in the Spring.

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Sue, I got Phonak with Bluetooth hearing aids in July. When I learned they didn't have telecoil (because I didn't know I needed to ask), my audiologist ordered me a second pair and then extended the return policy on the old pair another 45 days and started the 45 days on the new pair. So now I've got until sometime in November on my original pair which turns out to be the pair I kept (another story). My point is your audiologist probably has some leeway with Phonak re the return policy. It can't hurt to ask. Maybe you did already - I went back a number of posts and didn't find your prior ones.

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@sueinmn

@julie04 I thought I would give you a "report from the trenches" on our audiology visits this week. In order to persuade Jerry to see a doctor of audiology, I made an appointment for both of us at the doc recommended by my primary.
It was a great visit - she was thorough, not only in her testing, but her interviewing and explanations. She looked him right in the eye and told him he was not the only one affected by his refusal to wear his aids.
The net result - even though my tinnitus is worse, and my hearing is only slightly decreased from 2 years ago, I am not yet quite at the point of benefiting clearly from an hearing aids. Instead I will be trying some apps to mask the tinnitus when it is bothersome, but I have lived with it for so long that I can normally ignore it.
Jerry's hearing is also slightly worse - and he definitely needs aids, but she looked at his and determined they are 4 & 7 years old and old technology, in addition to being uncomfortable. We will be looking at new aids for him, so now I will go to the hearing discussion group and see what people are saying. She is recommending a Phonak with Bluetooth, because service should be widely available with our two homes. The problem is, of course, the 45 day return policy - which won't work with our travel plans.
What do you think of trying Costco aids? They seem to be well-rated, can be serviced near both homes, and have the 6 month guarantee, attractive because he has had such a hard time adjusting in the past. I figure we can do that, and if they don't work out, still have the Phonak option when we come home in the Spring.

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I have to had the Phonak behind the ear aids for over 6 years now and Costco has been there every time I needed service. The only problem I have encountered is not being able to get an appointment within a day or two when the hearing aids need repair. They have been very accommodating for small adjustments when in the store (such as clean outside, replacing wind pads, etc..). I will certainly use them for my next set when needed.

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@miker8888

I have to had the Phonak behind the ear aids for over 6 years now and Costco has been there every time I needed service. The only problem I have encountered is not being able to get an appointment within a day or two when the hearing aids need repair. They have been very accommodating for small adjustments when in the store (such as clean outside, replacing wind pads, etc..). I will certainly use them for my next set when needed.

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Thank you - pretty sure that is the approach we will take.
Sue

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@sueinmn

@julie04 I thought I would give you a "report from the trenches" on our audiology visits this week. In order to persuade Jerry to see a doctor of audiology, I made an appointment for both of us at the doc recommended by my primary.
It was a great visit - she was thorough, not only in her testing, but her interviewing and explanations. She looked him right in the eye and told him he was not the only one affected by his refusal to wear his aids.
The net result - even though my tinnitus is worse, and my hearing is only slightly decreased from 2 years ago, I am not yet quite at the point of benefiting clearly from an hearing aids. Instead I will be trying some apps to mask the tinnitus when it is bothersome, but I have lived with it for so long that I can normally ignore it.
Jerry's hearing is also slightly worse - and he definitely needs aids, but she looked at his and determined they are 4 & 7 years old and old technology, in addition to being uncomfortable. We will be looking at new aids for him, so now I will go to the hearing discussion group and see what people are saying. She is recommending a Phonak with Bluetooth, because service should be widely available with our two homes. The problem is, of course, the 45 day return policy - which won't work with our travel plans.
What do you think of trying Costco aids? They seem to be well-rated, can be serviced near both homes, and have the 6 month guarantee, attractive because he has had such a hard time adjusting in the past. I figure we can do that, and if they don't work out, still have the Phonak option when we come home in the Spring.

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Hi Sueinmn. Glad to know you're moving forward on this. For you, it's always good to have a baseline audiogram for future reference. Glad you got your guy to move on this too. While I believe that doctors of audiology, AuD level practitioners, are the gold standard for hearing care, I know that many people with hearing loss get good help and service elsewhere.

The AuD folks are always going to recommend the latest technology. It's like buying a computer or a car. The latest stuff is the best, etc. Even when it isn't. Some of the new BlueTooth technology is complicated to use just like computers are. Since HL is more common among the older population, a lot of the good stuff in those fancy devices goes unused. And, few of the providers take the time needed to teach the ropes on how to use it. The good old fashioned telecoil is so easy to understand and use, but many refer to it as 'old technology' and few explain how it works or even tell their patients that it's in their hearing instruments. They push the BT instead.

Back to your question about Costco. Know that Costco sells brand name hearing aids, including Phonak. They may be a step behind in models since those change constantly. The fitter at Costco is likely not an audiologist, BUT if you have a recent audiogram from a trusted source, you have a very good chance to get a good fit at Costco. They can plug in your audiogram results to get the information they need to provide a good fit.

I love that Costco allows such a lengthy trial period. I'm pretty sure other providers can extend it IF they are willing to. Few do though. It might be worth a try.

One concern I have relates to domes vs ear molds. Do the hearing aids your husband is using have ear molds? You mention them being uncomfortable. Molds have to be fit properly, and take a bit of skill from the provider to cast them and fit them. Domes are just stuck in the ear of the user. They come in different sizes, but I have seen many people wearing hearing aids with the domes NOT inserted well into the ear canal. Molds don't pop out, but they can hurt if they don't fit right. Again, this takes skill of the provider and patience of the patient.

My husband has found the Costco hearing aids to be good. He's fascinated by being able to stream on his cell phone, or hear the TV in a noisy place. He's willing to experiment with them. I'm not much help to him because my hearing aids and CI processor are so different since my HL is profound. He bought the top of the line Costco HAs for $1400/pair. No regrets. If his hearing loss gets worse over time, he may need something else.

Glad you're making progress. Safe travels to you too.

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@julieo4

Hi Sueinmn. Glad to know you're moving forward on this. For you, it's always good to have a baseline audiogram for future reference. Glad you got your guy to move on this too. While I believe that doctors of audiology, AuD level practitioners, are the gold standard for hearing care, I know that many people with hearing loss get good help and service elsewhere.

The AuD folks are always going to recommend the latest technology. It's like buying a computer or a car. The latest stuff is the best, etc. Even when it isn't. Some of the new BlueTooth technology is complicated to use just like computers are. Since HL is more common among the older population, a lot of the good stuff in those fancy devices goes unused. And, few of the providers take the time needed to teach the ropes on how to use it. The good old fashioned telecoil is so easy to understand and use, but many refer to it as 'old technology' and few explain how it works or even tell their patients that it's in their hearing instruments. They push the BT instead.

Back to your question about Costco. Know that Costco sells brand name hearing aids, including Phonak. They may be a step behind in models since those change constantly. The fitter at Costco is likely not an audiologist, BUT if you have a recent audiogram from a trusted source, you have a very good chance to get a good fit at Costco. They can plug in your audiogram results to get the information they need to provide a good fit.

I love that Costco allows such a lengthy trial period. I'm pretty sure other providers can extend it IF they are willing to. Few do though. It might be worth a try.

One concern I have relates to domes vs ear molds. Do the hearing aids your husband is using have ear molds? You mention them being uncomfortable. Molds have to be fit properly, and take a bit of skill from the provider to cast them and fit them. Domes are just stuck in the ear of the user. They come in different sizes, but I have seen many people wearing hearing aids with the domes NOT inserted well into the ear canal. Molds don't pop out, but they can hurt if they don't fit right. Again, this takes skill of the provider and patience of the patient.

My husband has found the Costco hearing aids to be good. He's fascinated by being able to stream on his cell phone, or hear the TV in a noisy place. He's willing to experiment with them. I'm not much help to him because my hearing aids and CI processor are so different since my HL is profound. He bought the top of the line Costco HAs for $1400/pair. No regrets. If his hearing loss gets worse over time, he may need something else.

Glad you're making progress. Safe travels to you too.

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Thank you for the input. Jerry loves his tech, so Blue Tooth will work for him. I look forward to a TV that doesn't blow me out of the house, and not having to repeat everything said on the phone for him. I'm definitely going to have him look at the Costco TOL if they are recommended for him, else we will look at Phonak - Costco is at least $1000 cheaper than our audiologist, and with the longer warranty.
Sue

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@sueinmn

Thank you for the input. Jerry loves his tech, so Blue Tooth will work for him. I look forward to a TV that doesn't blow me out of the house, and not having to repeat everything said on the phone for him. I'm definitely going to have him look at the Costco TOL if they are recommended for him, else we will look at Phonak - Costco is at least $1000 cheaper than our audiologist, and with the longer warranty.
Sue

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I hope it works! Keep us posted. 🙂

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Did anyone get a HA that is 90-95% effective that I would like to know. I don't want to waste $2000-$3000 out of pocket costs and back to square on!
My family has history of hearing loss when we all reached 60+. My 2nd older brother is kind of severe that we have to talk to him very loud. My hearing loss started 6 years ago at age 65. I bought 3 pairs of BTE HAs already, a Siemens, a signia, and now a Resound. They were 70-80% useful as I still could not understand what people said. My wife listen to TV with #8 volume where as I need #20 or more and I still missed some words. In my opinion, we really need a very good audiologist and a good HA. The audiologist needs to exactly find out what sound/pitch you cannot hear properly and the HA would just amply that sounds and nothing else. At first I thought an audiologist who also had a hearing loss would be the best person and had experience based on his need to assist me and I was wrong. The reason being since the HA is still 80% good, my audiologist would also miss (hear wrong) what I said when he asked me to repeat what he said during the hearing test.

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I have hearing loss that occurs with sounds above 2.5K frequency. and at low volumes. I am 75 years old. I probably ruined my hearing in my youth listening to loud music and attending music concerts. I manage most of the time without hearing-aid devices. Except with my spouse. She speaks at a low volume (20-30 dB) and at a frequency below my cut-off. See the attached chart of my hearing profile. A perfect storm.

I have joined this forum seeking some solutions to improve our communications without spending mega-$ for the recommended hearing-ads from my audiologist. Yes, at some point a "bridge" will no longer work but I am somewhat successful with AirPod technology but am seeking advice on improving that experience.

I will make a post in the forums and will share my approach. I will also make that first post here in the introduction forum as well.

--

- I have high frequency loss above 2.5K and with rapid decay below 40 dB.
- I am seeking to augment communication with my wife who speaks below the frequency cut-off and at low volume (a perfect storm.) Postponing the inevitable high $$$ hearing-aids recommended by my audiologist is the "bridge" tactic.
-I am successfully using bluetooth Apple AirPods with Live Listen augmented with an App that creates a profile for my hearing that improves all the noise generated by the iPhone internal speaker as well as my on voice.
- But ( there is always a but...) this approach requires the iPhone to be the listening device (internal microphone) as well as being tethered to my wife.
-The solution I wish to try and am seeking advice involves the use of a bluetooth lavalier type microphone or an independent lavalier microphone that she would clip on. This would be our set-up as we spend evenings in the same proximity (blue tooth range.) Or in the car. Or just about anywhere. Yes, the iPhone must be in the loop but it is always around anyway. She could talk to me from the kitchen when I am in the den with my back turned fiddling with my computer projects, etc. etc.
- I would like to correspond with folks who have successfully used this approach.
-I would like to correspond with folks who can make recommendations on bluetooth lavalier-type microphones or wireless-type lavalier microphones that would adapt to the iPhone approach I have described.

Thank you!

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@mckinney3

I have hearing loss that occurs with sounds above 2.5K frequency. and at low volumes. I am 75 years old. I probably ruined my hearing in my youth listening to loud music and attending music concerts. I manage most of the time without hearing-aid devices. Except with my spouse. She speaks at a low volume (20-30 dB) and at a frequency below my cut-off. See the attached chart of my hearing profile. A perfect storm.

I have joined this forum seeking some solutions to improve our communications without spending mega-$ for the recommended hearing-ads from my audiologist. Yes, at some point a "bridge" will no longer work but I am somewhat successful with AirPod technology but am seeking advice on improving that experience.

I will make a post in the forums and will share my approach. I will also make that first post here in the introduction forum as well.

--

- I have high frequency loss above 2.5K and with rapid decay below 40 dB.
- I am seeking to augment communication with my wife who speaks below the frequency cut-off and at low volume (a perfect storm.) Postponing the inevitable high $$$ hearing-aids recommended by my audiologist is the "bridge" tactic.
-I am successfully using bluetooth Apple AirPods with Live Listen augmented with an App that creates a profile for my hearing that improves all the noise generated by the iPhone internal speaker as well as my on voice.
- But ( there is always a but...) this approach requires the iPhone to be the listening device (internal microphone) as well as being tethered to my wife.
-The solution I wish to try and am seeking advice involves the use of a bluetooth lavalier type microphone or an independent lavalier microphone that she would clip on. This would be our set-up as we spend evenings in the same proximity (blue tooth range.) Or in the car. Or just about anywhere. Yes, the iPhone must be in the loop but it is always around anyway. She could talk to me from the kitchen when I am in the den with my back turned fiddling with my computer projects, etc. etc.
- I would like to correspond with folks who have successfully used this approach.
-I would like to correspond with folks who can make recommendations on bluetooth lavalier-type microphones or wireless-type lavalier microphones that would adapt to the iPhone approach I have described.

Thank you!

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@mckinney3 What you describe for using a BT mic should work. However, I cannot offer much help since I use technology available for my hearing aids. Regardless, it's always good to know the technology that others are using since we never know when our hearing aids will break. I use my old hearing aids when I need to return my aids.
Tony in Michigan

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I now find that no hearing-aid app is available to interface with AirPods and the new Live Listen iPhone interface Several apps do a terrific job but only work with iPhone hard wired ear buds. Thoughts/advice anyone?

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