Y-90 liver cancer treatment: What's your experience?

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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@tahoerox99

First of all congrats for all your good news. So where did you get this done (the Y90)? my lung cancer spread to my liver. I asked my oncologist about the Y90. He shook his head no. Do you know why he said I am probabdly now eligable? I see him again next week and will ask again.. I just feel like anything I do will help! I am near Sanford University and will inquie there again about this. And again congrats!!!

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Thanks for the well wishes. Have my next CT end of November. Praying the Carsonomas stay away!

I had carsonomas (like little tumors) in my liver that they shot full of the Y90 radiation beads. I wonder if the cancer you have is just spread throughout the liver so there’s nothing to shoot at? I don’t know what the treatment is in that case. I don’t like it that he just shook his head no and didn’t tell you why.

I go to UC Health which is a big medical facility associated with the University of Colorado. They have specials for any health problem. Also go to a cardiologist there who is great. If you can’t get to Mayo I would get second opinions from Stanford. They must have a great oncology unit there.

Good luck with this. Keep going until you get answers. I have an acquaintance that has “untreatable” lung cancer that was given 2 years that has celebrated 3 and going strong. She’s starting into a new research testing drug that has her very hopeful. I do r know more than that because I don’t know her very well. She’s a friend of a friend and on my prayer list.

KEEP AT IT! Blessings, Diane

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For those of you who have or know of someone with Liver Cancer, here is a link to some information and a video that might provide helpful information for you,
https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/treating-and-preventing-liver-cancer/

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My spouse was treated on left liver lobe with Y90 treatment and about a month later a celiac plexus block was done. Next week we are doing right liver lobe. Cea increased to 200 the highest it has been. First is this normal? Next we started Lonsurf five days on two days off five on and then a three week off period. Weight loss, not eating much, nausea, and Losse stools.
Oncologists will take minimum time to address these issues. Are we on the right path?

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Hoping someone with experience at Mayo clinic will be able to address some of the auestions

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@yannis

Hoping someone with experience at Mayo clinic will be able to address some of the auestions

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@yannis Welcome to Mayo Connect. All the members on Connect are volunteers and are very willing to answer your questions about their treatment and experiences. I’m going to ask. @mudshark ; @tomewilson ; @digibson if they would join this discussion.
Has Y-90 been ordered as a treatment for you?

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@becsbuddy

@yannis Welcome to Mayo Connect. All the members on Connect are volunteers and are very willing to answer your questions about their treatment and experiences. I’m going to ask. @mudshark ; @tomewilson ; @digibson if they would join this discussion.
Has Y-90 been ordered as a treatment for you?

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The answer to the question "Has Y-90 been ordered as a treatment for you?" is no. My wife is the patient - midgut with mets to the liver. She has successfully been on Afinitor for 3+ years and it has successfully halted further spread of liver tumors.

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@becsbuddy

@yannis Welcome to Mayo Connect. All the members on Connect are volunteers and are very willing to answer your questions about their treatment and experiences. I’m going to ask. @mudshark ; @tomewilson ; @digibson if they would join this discussion.
Has Y-90 been ordered as a treatment for you?

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Thanks for prompt reply yes Y90 has been ordered for Tuesday Oct 26 right lobe. We already had left lobe done sept 17 approximately. Also celiac plexus block done two weeks ago. Spouse has undergone weight loss, earring some what, nausea after some eating some foods, and currently on,Lonsurf this is the off time after five days on two off snd five on nad. Now off . Lonsurf is two 20 mg and one 15 mg am and then pm.
I pray this is the right regimen for his stage 4 liver metastasis colorectal cancer.
It is a long journey.

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Good to have someone as a sounding board about everything. Besides doing everything that is needed caregivers needs a lot of help in this journey. We can do it I know. And we can overcome much together prayer and good doctors make the difference

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@tomewilson

The answer to the question "Has Y-90 been ordered as a treatment for you?" is no. My wife is the patient - midgut with mets to the liver. She has successfully been on Afinitor for 3+ years and it has successfully halted further spread of liver tumors.

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What is afinitor are these chemo pills or is it an infusion. How successful have the treatment been in reducing cancer to liver ? We were on 5FU with bev and later several of oxipkatin but did nit like neuropathy and one yr later on xeloda followed by 5FU with bev later. Now Y90

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Afinitor (Everolimus) is a chemo pill or at least a pill you take daily to treat cancer of the kidney, pancreas, breast, and brain. It can also be used along with other medications to prevent rejection of a transplanted kidney or liver. For NETs, it is used to control the growth of liver mets.

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