Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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@dgm123s

Hello
I was wondering if anyone knew which drug has more side effects prolia or reclast?

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Hello @dgm123s It sure seems as though all the drugs for osteoporosis come with side effects, doesn’t it? Side effects also seem to depend on a woman’s health and ability to tolerate the side effects. I think you’ll notice that everyone here has different side effects and tolerated them differently. I included a link i found from the national Institute of Health that may interest you.
https://pubmed.ncbi.nlm.nih.gov/25370317/
Have you had a chance to talk with your doctor about the different drugs?

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@dgm123s

Hello
I was wondering if anyone knew which drug has more side effects prolia or reclast?

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I started reclast 3 months ago. have had no side effects

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@kath2

Will this help build bones? Is that the once a yr shot or ?

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yes. It is once a year infusion.

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Thank you for your responses

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@becsbuddy

Hello @dgm123s It sure seems as though all the drugs for osteoporosis come with side effects, doesn’t it? Side effects also seem to depend on a woman’s health and ability to tolerate the side effects. I think you’ll notice that everyone here has different side effects and tolerated them differently. I included a link i found from the national Institute of Health that may interest you.
https://pubmed.ncbi.nlm.nih.gov/25370317/
Have you had a chance to talk with your doctor about the different drugs?

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Thank you. I just seem to be so sensitive to any injections. I was down for 5 days after my second shingle shot and three days after my second covid shot
So that's my fear with any of this

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@cindydee

I see my general practitioner tomorrow. The doctor that prescribed it said he had never heard of this kind of reaction and the ER doctor was totally in the dark. The prescribing doctor said it must be working since the inflammation was in each of the joints. This morning my right foot was so swollen that all of my toes were pointing straight up. The pain is almost to the point of being unbearable. And yes, thoughts of just ending it have gone through my head but the repercussions of that keep me from doing it. I don't want anyone to have to clean up the mess!

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As a retired nurse....I would suggest a second opinion. Preferably an MD with experience with Reclast. Hang on...see the 2nd opinion. I am sorry you're having this problem.

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@susanop

My endocrinologist did tell me that, when you stop Prolia to go on a drug holiday, there is a period of rapid bone loss and she suggested that I do the annual Reclast infusion instead. I had my first Reclast infusion in August.

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Thank you what were your side effects

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I was healthy and active when I got my Reclast infusion in mid August. I experienced profound bone pain and muscle weakness for two months and consulted a rheumatologist. I'm currently on prednisone and the doctor suspects PMR. I have no idea if it was brought on by the Reclast infusion, nor do I suspect I would have done anything differently with the information that was available regarding the incidence of complications. BUT for the past three months the effects have dominated my life. I'm 64 and move like someone at least 20 years older.

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@dgm123s

Thank you what were your side effects

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Hi. I was a bit tired and felt a little flu-ish for a couple of days after my Reclast infusion in August 2021 and then tired the following week but I had no other side effects. I did opt for a 45-minute infusion time rather than 20 minutes and I hydrated with lots of
Water before and especially after the procedure because I was told it is hard on the kidneys. I am a plant based eater, 64 years old, 122 pounds and 5’7” inches tall and pretty active (weight training and swimming and I ran before breaking my hip when I tripped over my dog while training for a half marathon). My endocrinologist considered this an osteoporosis fracture because the hip would not have broken from a fall from a standing position if my bones had not been osteoporotic. I was really afraid to do this infusion because of the bad reviews here but the nurse told me that 75% of their patients experience no adverse effects at all and others mostly minor side effects and she was speaking from a decade of experience. This was my 12th bone break and the effect on my life of all of these fractures has been worse than the side effects of the Reclast by far. If you have any other questions I’m happy to respond.

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Thanks so much for your response I really appreciate it! A month ago I faingy it in the shower and fell unfortunately did not break anything but I may have cracked my ribs a bit and hurt my muscles on my side and back
I was very fortunate because my t-square for my spine is a minus 3.7 and I believe my hip is minus 2.
6. I was a week away from going on a Evenity and the doctor said to cancel because they're doing tests on my brain and heart and found that I do have hardening of the arteries in the brain so I am afraid now to go on that because there is a black box warning of heart attack or stroke and now I feel that I may be at high risk for either. Can't deal with my bones right now until I get back all my tests results but I wanted to at least have somewhat of a plan. I am reluctant to go on forteo or tymlos because some people are having side effects of AFib however I did want to go on a bone builder prior to going on something to sustain the bones
What were you on prior to the reclast? I do like the fact that it's only given once a year but I am so fearful of side effects because I'm so sensitive to vaccines in general. The COVID vaccine and shingles vaccine put me down for 4 to 5 days. How do you usually tolerate vaccines? Thanks so much for your input truly appreciated!

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