Treating Osteoporosis: What works for you?

Honestly @kilh I have to go really slowly too, so I don't end up in the ICU again! I did 6 clicks for the first time yesterday. Out of the last 10 days on 5 clicks, I felt sick, woozy, short of breath for only two. I could feel the 6 clicks so I did 5 today and might try alternating 5 and 6 for awhile. If 6 affects me badly tomorrow I will do 5 for another week or two. To tell the truth, I will be happy to get to 6 as an endpoint if that is what happens. Taking my bp and doing the shot in the morning is helping too! You are doing great!

Hi, @windyshores I finally got a reply from my endo doc. He said good for the there weeks at 2 clicks but should stay on 3 clicks for at least two weeks. I guess I will always be the tortoise. He did give me my scores. Here they and maybe you can explain what they mean. L1-4 -3.5, left femoral neck -2.8, and left hip -3.3 that is from November 2019. New results coming sometime in November 2021, So we will see if Tymlos has helped. Let me know about the next few days and your progress. I do wish upon a star that you can keep going and make 8 clicks and stay there the rest of your time. We both probably would be happy at 6 clicks and stay there. Keep writing so I am informed. Stay well. KLH

I like your doctor! I am going by side effects. For 3/4 of the days on 5 clicks, I did not have bad side effects. On 6 clicks, one day was bad and today was not too bad. I am going to alternate and 6 for a week then try to go to 6. Yes I would be happy to get to 6 for a year and then get a scan. Good luck to the tortoise!

Oops I meant I am going to alternate 5 and 6 clicks for a week or two then try 6. It might take longer. We'll see...

what are you all clicking? New to the site and am osteoporotic. Have history of jaw fracture so in eligible for shots.

@flmargie I’m sorry to hear that you have osteoporosis, so do I. And you broke your jaw? How did this happen?There are so many drugs to treat osteoporosis and @windyshores and @kilh are talking about Prolia which is given, by injection, by the patient at home. The clicks are a measure of increasing the dosage. I’m currently on Fosamax, a weekly pill, but will change to Reclast, an infusion by the end of the month.
Osteoporosis treatment: Medications can help - Mayo Clinic
Sound confusing? It is! There are about 14 medications, given by different routes, at different time intervals. What has your doctor put you on?

Hi, @windyshores the hare may have to slow a bit but not too slow or the tortoise might come too close. I will be curious how alternating will work and if it will let you move forward. We need to change history and have the hare win in the end.
Did you see my scores I finally got or do I have to post them again? Is there a chart somewhere online to show have bad one fails. Since I have been on Tymlos, I have broken off eight crowns leaving the roots still in my jaw. Today, I had two cut out on the top and then the one on the bottom I still have to have pulled out. We had rain most of the day and now all day tomorrow is forecasted. I hope your cold is going away and you feel better. Right now my two sockets are starting to hurt and I hate taking pain pills
Got my income taxes back from the CPA. Now I can call Radius and set up my free monthly refills for 18 months.
Better go put another ice pack on the jaw. Keep in touch about how your plan is working out. I will be looking up to the NE skies and my thoughts are with you on our journey. KLH

No we are discussing Tymlos, not Prolia. We give Tymlos injections to ourselves daily. The pens have 8 clicks for a full dose and some of us are starting with two and moving up.

@klh here are your scores again: L1-4 -3.5, left femoral neck -2.8, and left hip -3.3 . That was two years ago. Mine are worse but more recent! My femoral neck is the worst. Be careful of your spine with a score in the -3.5 and lower range. (I am afraid I just fractured another one making a stupid movement tonight- we'll see.) I did 6 clicks today so two days in a row and it went, well, tolerably. I guess I am the hare afterall.

I think I fractured a vertebra last night ducking under a barrier. This is serious business. If I did, I have a total of 6 spinal fractures. Going to try to stick with 6 clicks and continue moving up. Have to ask doc if that is enough or if I should switch to Evenity.