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Incisional hernia after transplant: Anyone else?

Transplants | Last Active: Oct 28, 2023 | Replies (173)

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@rosemarya

@kathycaudle, I see that you will be celebrating your 2nd liver transplant anniversary in November. That is a big event and I hope that you will do something special - even a little something - to celebrate the day.

My transplant team (Mayo) schedules an annual evaluation that includes labs, scans, and physical exams to monitor my ongoing health and the health of my transplanted liver and kidney. If your transplant department requires that, it would be a perfect time for you to get answers about your swelling abdomen.

What has your transplant doctor said about your abdominal swelling? What kind of tests or scans have you had to monitor your current liver health while living with this thing?

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Replies to "@kathycaudle, I see that you will be celebrating your 2nd liver transplant anniversary in November. That..."

Hi Rosemary....its amazing how quickly time passes...my journey started in 2014, and here it is two year anniversary for my gift of life...my new liver😊🥰.
I'm a Kaiser patient, but my transplant was done at Mayo Jacksonville. I've never had an "anniversary " checkup. No one on my transplant team has seen my 'incisional hernia ' my melon. I had a video appt with my liver Dr last year. I've been told that the surgery to get rid of the melon would be more difficult than the transplant surgery and that if it's not hurting me, leave it alone. I did have an appt with my primary Dr and he saw it and said the same thing.
I have concerns because it is growing, there are small twangs of pain sometimes, but my medical advise is to leave it alone.
I do get labs done every 2 to three months, I'm always stable. I get an MRI every 6 months...no cancer or significant change with my melon.
I belong to the liver/kidney support group at Mayo Jacksonville and get alot of help and information from them.
To be honest, I hate this thing protruding from my body but not sure what to do😒.