Treating Osteoporosis: What works for you?

Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax - so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.

Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax - so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.

You can take Evenity after Tymlos. That is my plan if I can do it. After Evenity, I was advised one Reclast infusion and then I will try some natural methods, be monitored and hope to minimize or stay off drugs. My doc does not want Prolia for me.

Hi @windyshores Did your doc share why he didn't like Prolia for you? (I am getting ready to go on Prolia next month and I am unsure if that's the best solution for me). I am -3.4 currently. Many thanks for any info you may have!

My immune system is a little awry (lupus). I assume that is why. With a score of -3.4 can you go on Tymlos, Forteo or Evenity to grow bone before Prolia or Reclast? I have read that using Prolia first can interfere with the effectiveness of the bone-growing drugs and that the docs (and insurance0 have the sequence backwards. Check to see what your insurance will allow. Do you have any fractures? Have you tried Fosamax? The latter two things can help get insurance coverage for the anabolics.

Hi @windyshores , I haven't had a fracture so my endocrinologist said I can start with Fosamax or Prolia. He said he would use Forteo if I broke something. He is suggesting Prolia over Fosamax because the number is bad and he wants more power up front and then if things go well, his plan is to move me to Fosamax. But I agree with you that something like Forteo makes more sense. Is it possible to switch to Forteo after taking Prolia? Is that an option if the Prolia doesn't work? Thanks so much for letting me know your experience!

Hi @windyshores Did your doc share why he didn't like Prolia for you? (I am getting ready to go on Prolia next month and I am unsure if that's the best solution for me). I am -3.4 currently. Many thanks for any info you may have!

I don’t know that there is that big of a difference between Prolia and Evenity. They are both products of Amgen and they both scare me. Got off Prolia after one shot …. But once you take these you’re in the Prolia trap.

Good afternoon @hello1234, @windyshores, I am very interested in this issue of which comes first. My endocrinologist told me that only Tymlos, Forteo, and Evenity have the ability to grow new bone. Prolia was the medication recommended to me to maintain the progress made with Tymlos over a two-year span of injections.
Prolia infusions are twice a year........and are possibly a lifetime medication in order to prevent fractures that are known to occur when Prolia is discontinued or interrupted. What have you learned and please share how the information was given to you?

May you have peace and ease today.
Chris

Good afternoon @hello1234, @windyshores, I am very interested in this issue of which comes first. My endocrinologist told me that only Tymlos, Forteo, and Evenity have the ability to grow new bone. Prolia was the medication recommended to me to maintain the progress made with Tymlos over a two-year span of injections.
Prolia infusions are twice a year........and are possibly a lifetime medication in order to prevent fractures that are known to occur when Prolia is discontinued or interrupted. What have you learned and please share how the information was given to you?

May you have peace and ease today.
Chris