1. < Autoimmune Diseases

Autoimmune Fatigue and/or Chronic Fatigue

Posted by Langold @rarelybees2889, Jan 8, 2020

Hi Wondering if anyone has been diagnosed with autoimmune fatigue and/or chronic fatigue? I was diagnosed at Mayo Clinic. I wish there was more research into both of these...

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peach414144 | @peach414144 | Sep 12, 2021
In reply to @astaingegerdm "@peach414144 - Did anyone explain to you why the kidneys are causing your parathyroid glands to..." + (show)
@astaingegerdm

@peach414144 - Did anyone explain to you why the kidneys are causing your parathyroid glands to overreact? They regulate calcium in the body. It could mean that the kidneys are letting too much calcium leave the kidneys. There is treatment for this, as far as I know.
Like many things in our bodies, it’s not in balance.
Hope you get transportation soon.

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Yes you are correct. I do not know why the doctors do not even try to educate their patients. When I present the written report they do not copy it and do not address it to the patient. Perhaps they think that an 84 year old will not live much longer anyway. I do see that it appears to be they are worn out with extra work with the people moving here to Florida and there is a need for more doctors. The waiting rooms are filled to capacity and the health workers seem harried and tired. Perhaps I am wrong but there appears to be an attitude and who am I?. I am dismissed and must leave with no answers and no referrals. I am trying to do this by myself. I do not want to complain but here we are and I am very sorry for all of this.

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1 reply
bustrbrwn22 | @bustrbrwn22 | Sep 12, 2021
In reply to @peach414144 "I am in a pickle and need help. Hard to believe: Just found out from new..." + (show)
@peach414144

I am in a pickle and need help. Hard to believe: Just found out from new doctor in the other county: I have secondary hyperparathyroidism of renal origin. I have had hypothyroidism for 34 years and now this other one. Yes, I do have the symptoms and now I am very nervous, concerned and anxiety riddled. Trying hard to calm down. My local endochronologist did not and would not address this issue when I just saw him yesterday. It appears that somehow I must travel again to another county which I cannot afford to do on a regular basis as I have what is called "Low vision". (this means I cannot continue to drive). There is so much more that I cannot continue with this. I do not want to give up on living but what can I do now? I am embarased to post this. Please forgive me for upsetting anyone but some how I need this outlet. I have set up an appointment at Shand's for the bladder cancer doctor at the end of the month and now I know I should do the same for this new diagnosis which I will do tomorrow Monday. I know that Shand's has a service for accepted patients to be driven but because of the pandemic it has been cancelled. But what does one do with life threatening diseases like cancer and the thyroid diagnosis? It is not a good idea to wait. It is very easy to give up but so far I am a stubborn person and do not want to give up. Ideas, suggestions please?

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@peach414144. I cannot believe human beings can experience so much pain. I applaud you posting and fighting. My thoughts and prayers are with you. You are not alone.

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1 reply
peach414144 | @peach414144 | Sep 12, 2021
In reply to @bustrbrwn22 "@peach414144. I cannot believe human beings can experience so much pain. I applaud you posting and..." + (show)
@bustrbrwn22

@peach414144. I cannot believe human beings can experience so much pain. I applaud you posting and fighting. My thoughts and prayers are with you. You are not alone.

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See how the beautiful people respond? This is encouraging and I am continuing to work with this as much as I can. Thank you.Tomorrow (Monday) when the offices are open I will heat up the telephone wires.

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1 reply
bustrbrwn22 | @bustrbrwn22 | Sep 12, 2021
In reply to @peach414144 "See how the beautiful people respond? This is encouraging and I am continuing to work with..." + (show)
@peach414144

See how the beautiful people respond? This is encouraging and I am continuing to work with this as much as I can. Thank you.Tomorrow (Monday) when the offices are open I will heat up the telephone wires.

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@peach414144. Will you please let us know how it goes tomorrow? I have some dreaded calls tomorrow too but am spurred on by your energy!

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Sep 12, 2021
In reply to @peach414144 "Yes you are correct. I do not know why the doctors do not even try to..." + (show)
@peach414144

Yes you are correct. I do not know why the doctors do not even try to educate their patients. When I present the written report they do not copy it and do not address it to the patient. Perhaps they think that an 84 year old will not live much longer anyway. I do see that it appears to be they are worn out with extra work with the people moving here to Florida and there is a need for more doctors. The waiting rooms are filled to capacity and the health workers seem harried and tired. Perhaps I am wrong but there appears to be an attitude and who am I?. I am dismissed and must leave with no answers and no referrals. I am trying to do this by myself. I do not want to complain but here we are and I am very sorry for all of this.

Jump to this post

I’m sorry that you also get this reception at a doctor’s office.
I think you are correct in that the doctors are overwhelmed. It seems to be easy to dismiss an old person. I’m “elderly “ but my brain is 35.
I often go in with a list- so I don’t forget- and I want answers before I leave. If there is not enough time they can make another appointment for you.
You need to go to Shands. Could there be any volunteer organizations that could offer transport? Or churches or Senior Centers?
Regarding your regular doctors, they need us with Medicare. If necessary, I would talk to Medicare about any doctor who doesn’t have time to discuss serious issues.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Sep 13, 2021

Hello @peach414144,

I agree with what others have posted about contacting as many places as you can for help with transportation. For example, do you have a place of worship? At my church, there is a group of people who are available to provide transportation to folks going to medical appointments. I go to one hospital, which is about a 45-minute drive, and I have been able to get help when needed from a driver at my church. This might be an option for you. Also, if you have belonged to any organizations on the city or county level you might find someone who can help you with transportation.

I hope that you are able to find a driver. We all need support, especially as we age.

Will you post again and let me know how this is going for you?

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peach414144 | @peach414144 | Sep 13, 2021
In reply to @astaingegerdm "I’m sorry that you also get this reception at a doctor’s office. I think you are..." + (show)
@astaingegerdm

I’m sorry that you also get this reception at a doctor’s office.
I think you are correct in that the doctors are overwhelmed. It seems to be easy to dismiss an old person. I’m “elderly “ but my brain is 35.
I often go in with a list- so I don’t forget- and I want answers before I leave. If there is not enough time they can make another appointment for you.
You need to go to Shands. Could there be any volunteer organizations that could offer transport? Or churches or Senior Centers?
Regarding your regular doctors, they need us with Medicare. If necessary, I would talk to Medicare about any doctor who doesn’t have time to discuss serious issues.

Jump to this post

Yep you are right. But just even to get a person to answer or call you back takes much times (not hours but days). It has been all morning and I am still waiting to get in touch. Waiting for call backs. Could take days or more then I will call again. I will continue to perserver. Cant spell anymore. Thanks

REPLY
1 reply
peach414144 | @peach414144 | Sep 13, 2021

Yes John it certainly is appreciated. Thanks to all. Must continue to wait on hold (on the telephone) as I am writing this. Multitasking keeps the mind sharp.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 13, 2021
In reply to @peach414144 "I am in a pickle and need help. Hard to believe: Just found out from new..." + (show)
@peach414144

I am in a pickle and need help. Hard to believe: Just found out from new doctor in the other county: I have secondary hyperparathyroidism of renal origin. I have had hypothyroidism for 34 years and now this other one. Yes, I do have the symptoms and now I am very nervous, concerned and anxiety riddled. Trying hard to calm down. My local endochronologist did not and would not address this issue when I just saw him yesterday. It appears that somehow I must travel again to another county which I cannot afford to do on a regular basis as I have what is called "Low vision". (this means I cannot continue to drive). There is so much more that I cannot continue with this. I do not want to give up on living but what can I do now? I am embarased to post this. Please forgive me for upsetting anyone but some how I need this outlet. I have set up an appointment at Shand's for the bladder cancer doctor at the end of the month and now I know I should do the same for this new diagnosis which I will do tomorrow Monday. I know that Shand's has a service for accepted patients to be driven but because of the pandemic it has been cancelled. But what does one do with life threatening diseases like cancer and the thyroid diagnosis? It is not a good idea to wait. It is very easy to give up but so far I am a stubborn person and do not want to give up. Ideas, suggestions please?

Jump to this post

@peach414144 Please don’t feel embarrassed for needing help. Everyone needs help at one time or another. COVID-19 has really tied up our healthcare system. Have you thought of calling the Governor’s office to express your dismay and ask if they know of options? Or your state or national representative? Through no fault of your own, you have some needs that aren’t being met.
Remember, we're all here for you!

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1 reply
peach414144 | @peach414144 | Sep 13, 2021
In reply to @peach414144 "Yep you are right. But just even to get a person to answer or call you..." + (show)
@peach414144

Yep you are right. But just even to get a person to answer or call you back takes much times (not hours but days). It has been all morning and I am still waiting to get in touch. Waiting for call backs. Could take days or more then I will call again. I will continue to perserver. Cant spell anymore. Thanks

Jump to this post

It certainly is getting much worse. Six days ago I saw the endochronologist and they still have not requested for the new medicine to be filled. I called last friday and all day today and they do not answer the phone. The say to leave a message which I do and am continuing to wait. I feel quilty complaining as I am sure that all the patients are going through the same process. Patience is a virtue.

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