At a loss, multiple consultations still no answer...any idea?

That's the MRI done, wasn't too bad had an issue with my throat where one of the scans needed to be repeated due to too much head movement. Expected it to be more comfortable than what it was, but all in all it was an okay experience.

I've finally had my first official diagnosis of crohn's disease. I've got pretty significant inflammation in my lower and upper intestine and it's also worked up my entire GI tract and has impacted my eyes, nose and throat. I'm just waiting to see a gastroenterologist to see he what needs to be done to control it. The disease itself has been active for 14 years so not good.

@change25 Well, I’m glad you finally got a diagnosis, even if it has taken months! Now you need to come up with a lot of questions for the gastroenterologist. Here is a link to information about Crohn’s disease
Crohn's disease - Symptoms and causes - Mayo Clinic
When are you scheduled to see the gastroenterologist?

I should receive a letter within the next few weeks and it'll go from there. This has been ongoing for sometime as I was diagnosed with IBS in 2014 which now turns out to be IBD. At least I've finally got a diagnosis but I'm sure there's more to come as there's multiple ongoing symptoms that aren't related to IBD.

Have you seen a lymes specialist?

Hello @marm7756 and welcome to Mayo Clinic Connect. It looks like you may interested in responding to a particular member to ask them if they've seen a lymes specialist. In order for a member to be notified, you may either use the "REPLY" button below their post and/or @mention them by using their handle (i.e. yours is @marm7756).

Do you have experience with lymes?

@change25 here is the correct link for info on Crohn’s disease. You know, you’ve come such a long way since you first posted in April! You’ve gone from being sick to a young man who’s in charge of his health!

I https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
Do you think you’ll be able to return to school or work or have you been going all this time?

Thank you Becky, you're so helpful.

No. I suspended my studies at the time as I was unable to meet the demands of the course. The University has been extremely accommodating and have said that I can return in either the January or September cycle. I'm aiming for January I just need to wait for my MRI results and I'll go from there.

@chance25 I’m wandering how you were diagnosed with Chrines disease? What tests/scans? I think I have those symptoms.

Hello @jwillits8, initially I had a stool test to rule out IBS as that doesn't cause inflammation whereas IBD does, I think this was called a faecal calprotectin test. This showed that I did indeed have IBD. However, this test won't indicate which form of the disease you have so I then had a colonoscopy and not too long after I had a phone call from my Dr. Hope this helps, if you do have it it's important to get it sorted asap as while it can't be cured it can definitely be controlled.

Change25@change25 am sorry you are going through so much but did your doctor check for lupus because that rash you have on your face and the dryness, all your symptoms are signs of lupus. You can do a research on lupus symptoms and you will get an idea of the signs and symptoms of lupus. I hope you get some help soon.