Autoimmune Fatigue and/or Chronic Fatigue

How are you doing, siosal?

Hi
I am not sure where we left off!
I was diagnosed with covid last Wednesday. Thursday I got a one hour infusion of RegenCov.
I was never very sick, but am feeling better.
I had 2 Moderna shots last spring. About 2 weeks before I got Covid I found out I had no antibodies from Moderna. This is common in those of us on immunosuppressants.

If I hadn’t had that test, I would have just assumed I had bronchitis/head cold and a little asthma. Something I get every year or two. But knowing I did not have antibodies I got tested just in case.

It’s Monday and I feel a little better but have developed loud tinnitus. Pretty awful. I had a mild case which I was only aware of in the quiet time before sleep . Now it is shouting in my head all day.

I have high hopes it will calm down as I feel better.

I am not sure if this is what you were looking for, but thank you for checking in on me!

Thanks for the update. I hope the tinnitus will subside back to its former self with time.

Thank you.

Hi All
There is a critera for diagnosis. I was diagnosed at Mayo. There are a couple of good websites. If anyone wants them I can share.
Stanford University is leading the way in this area as they have a Chronic Fatigue clinic
https://med.stanford.edu/news/all-news/2021/07/clinic-for-patients-with-long-covid.html
I am hoping to get in there...With Long Haul Covid patients getting this disease, research funding is amping up.

Yes, rest. Especially at age 84: it was just as important when we are younger.
But one must still work out in any which way possible no matter what the age.

I am in a pickle and need help. Hard to believe: Just found out from new doctor in the other county: I have secondary hyperparathyroidism of renal origin. I have had hypothyroidism for 34 years and now this other one. Yes, I do have the symptoms and now I am very nervous, concerned and anxiety riddled. Trying hard to calm down. My local endochronologist did not and would not address this issue when I just saw him yesterday. It appears that somehow I must travel again to another county which I cannot afford to do on a regular basis as I have what is called "Low vision". (this means I cannot continue to drive). There is so much more that I cannot continue with this. I do not want to give up on living but what can I do now? I am embarased to post this. Please forgive me for upsetting anyone but some how I need this outlet. I have set up an appointment at Shand's for the bladder cancer doctor at the end of the month and now I know I should do the same for this new diagnosis which I will do tomorrow Monday. I know that Shand's has a service for accepted patients to be driven but because of the pandemic it has been cancelled. But what does one do with life threatening diseases like cancer and the thyroid diagnosis? It is not a good idea to wait. It is very easy to give up but so far I am a stubborn person and do not want to give up. Ideas, suggestions please?

Hi Peach @peach414144, I'm glad you are stubborn and do not give up. Did Shand's tell you the service for accepted patients has been cancelled? I was wondering if they may have backup volunteers that provide transportation for patients. If not, I wonder if you could call local government social services to see if transportation might be available. I know there are volunteer organizations here in Minnesota that provide transportation for critical healthcare services for folks that are not able to drive or don't have family to help.

I started a response to you and somehow it got lost. Any way here we go again. you need to know that you have always been very helpful (As well as many others on this site.) I have been trying to get help for about three years since the "Low Vision". The Paratransit for Marion county can only transport within Marion county. My health insurance is excellent except for transportation. I found out about Shand's transport because of the many calls I made over and over again. I will still continue to do so. I found (With great luck) a woman who transports me but it is costly and to go to Shand's is to far for her as she is also a senior. The pandemic is harming people in many, many ways. I really do need this help and cannot think of any more ways or places to go to. This is a matter of life or death. I am embarrased to write this. I thank you John.

@peach414144 - Did anyone explain to you why the kidneys are causing your parathyroid glands to overreact? They regulate calcium in the body. It could mean that the kidneys are letting too much calcium leave the kidneys. There is treatment for this, as far as I know.
Like many things in our bodies, it’s not in balance.
Hope you get transportation soon.