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The Wages of a missed Neb session.
Here I am at 10:30 Thursday evening, aerosolized saline pestering my throat. Later getting to this chore tonight; tuckered, secondary to deciding earlier today that some soil in my yard would better suit me if was at a different spot in my yard. I’ve known for a long time that when one begins to rearrange the surface of the planet it almost immediately becomes very labor intensive. That in turn leads to my body feeling like Beef Jerky looks, all wizened and gnarly.
My question: how often, if ever, do you skip a treatment session?
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@shs I'm not the expert, but the way I do my own postural drainage is to lie flat on my back and do some huff coughs, like either one good one or three short ones (you just sort of flap your arms against the side of your chest and push the air out of your lungs and the sound is like a huff). You can also put your legs up, too. I bet you could just go on You Tube and type in "postural drainage methods" and there will be something. Nan
shs, I found a brand called Breathe Well at the neighborhood Supermarket. It’s made up of eucalyptus, thyme, mint, and linden flower.
My hunch is that these ingredients are common across brands. Don
Thank you so much! This helps s lot!
Thank you, Don!
Hi egayle…I've already found humor in the situation & lots more as well! I'm late 70s, been dealing with bronchiectasis 27 yrs, MAC about 10 - which I apparently got rid of at least for awhile according to sputum test about 2 yrs ago. Wouldn't DREAM of JUST doing what the MDs suggest (what they know about our conditions & can do for us is just too limited from what I've learned) - as long as my savings hold out & I can get some alternative input & nostrums as well. Looking back I realize if had to do over again I'd never spend as many years as I did - before I got REALLY bad - essentially accepting antibiotics & other chemicals as my ONLY & entire option. But it was the easy way out for me for many years, I didn't have to think much for myself, aside from a pretty good diet & basic supplementation. - You've come to terms with which you can live with your condition & good for you! But those terms didn't work for me. So I've found terms, trade-offs, that do. - I've come to take a harder look at my truths, to accept that all the diseases I've acquired 🙂 cancer, TB before that & this - were indeed a reflection, in my case at least, of a profound, if you'll pardon the expression "spiritual" "dis-ease" which I began to address more & more seriously - the which has led to enormous changes, both subtle & gross, & entirely unexpected satisfactions.- When I realized that nebulizing & postural drainage twice a day would destroy MY desire to live, I knew I couldn't do it. & haven't, & have found other ways; none of them perfect. & of course, am constantly negotiating terms, which is one of the things that life seems to be all about. Checking into the chat rooms occasionally is part of that process for me.
Wishing all of us a cornucopia of blessings!
I’m in the midst of acute “brain freeze.” Someone remind me what “CF” is. Don
Cystic fibrosis
Got it. Thanks!
Anyone on this site have M.Abscessis?
There are a number of people here who have M Abscessus. You can find one of the discussions here: https://connect.mayoclinic.org/discussion/just-found-out-i-have-mycobacteria-adscessus/