Low Ferritin INFeD (iron dextran) injections

Posted by myusername2021 @myusername2021, Jan 24, 2021

Hello,
My hematologist recently started me on Infed iron infusions for low ferritin levels. I have had 3 treatments and my levels only went up from 12 to 13. Has anyone had any success with the Infed brand or tried multiple brands such as ferrlecit or Injectafer? I recently had surgery for endometriosis as well, and my dr implanted an IUD. I had heavy bleeding for over 15 years along with fatigue, pain, heart palpitations, amongst other symptoms. We are hoping with the endo under control there will be less bleeding, however it will take a few months to notice a difference if any.
I also have low vitamin D levels and asthma. I suffer from severe ADHD and subsequent depression and anxiety. My ADHD symptoms, along with my asthma and urticaria symptoms are exacerbated during ovulation and 10 days before my period. Anyone have any suggestions? Thank you!

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Erika | @erikas | Jan 24, 2021

@myusername2021 Welcome to Mayo Clinic Connect, a place to give and get support.

You had infed iron infusions for low ferritin levels and you wanting to connect with members that may have had success with the Infed brand or tried multiple brands such as ferrlecit or Injectafer.

You also have endometriosis, asthma, ADHD, depression, and anxiety and looking for suggestions.

I will speak to the later first. Below I have linked groups related to these topics. You may wish to scroll the groups, discussions, and posts to find suggestions, information, and support.

Regarding endometriosis, below I have linked the Women's Health group.
- Women's Health https://connect.mayoclinic.org/group/womens-health/
Discussion
- What do you want to know about endometriosis? https://connect.mayoclinic.org/discussion/what-do-you-want-to-know-about-endometriosis/

Regarding asthma, the Lung Health group is linked below.
- https://connect.mayoclinic.org/group/lung-conditions/

For support with the topics of ADHD, depression, and anxiety. Below I have linked two groups, Mental health and Depression & Anxiety.
- Mental Health https://connect.mayoclinic.org/group/mental-health/
- Depression & Anxiety https://connect.mayoclinic.org/group/depression-anxiety/

As for the Low Ferritin Infed infusions questions, @colleenyoung @1nan @astaingegerdm @artscaping are mentors and moderators that may know members that can help answer your questions and offer support.

It sounds like you are receiving treatment for your physical aliments. May I ask if you are currently receiving any mental health treatment?

Nancy, Alumna Mentor | @1nan | Jan 26, 2021

@myusername2021 Welcome to Connect. It was suggested that I may have helpful information for you re: ferritin infusions. The only piece I can offer is my own experience and I don’t even know the brand. But this I do know- twice I was given a series of six infusions, two weeks apart over three months. Numbers didn’t go up rapidly, nor were the increases dramatic. But they did the job at the time.
You are probably realizing that most if not all of your treatments have a response slower than you would like. We all get impatient waiting on results. But I hope that you do see gradual improvement as you move forward.
I hope this is helpful. Nancy

jessviscariello | @jessviscariello | Sep 1, 2021

Hello, your post is several months old but I came across it while searching for Injectafer threads. Have you had your infusions yet? I'd like to caution you about Injectafer as it is known to cause super low phosphorus. Also, phosphorus needs Vitamin D to be absorbed so if you're low on D, this could be a greater side effect. Iron infusions are game changers, provided it's the right kind. I also have endometriosis, had a hysterectomy in part to correct my anemia (it didn't but that's another thread) and have had probably 20 iron infusions in my life. These last two knocked my phosphorus down and I've been sick for a month.

Colleen Young, Connect Director | @colleenyoung | Sep 4, 2021

In reply to @jessviscariello "Hello, your post is several months old but I came across it while searching for Injectafer..." + (show)

Hi Jess, welcome. May I ask what condition you have that requires you to have regular iron infusions?

jessviscariello | @jessviscariello | Sep 5, 2021

In reply to @colleenyoung "Hi Jess, welcome. May I ask what condition you have that requires you to have regular..." + (show)

Iron deficiency anemia caused by endometriosis and bleeding hemorrhoids.

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