1. < Neuropathy

Burning feet and legs

Posted by jimmy 370 @jimmy370, Dec 9, 2020

Anyone have burning feet and legs, and back here in Albany NY been to 8-10 specialists! And no one can give me a answer what is causing it! Thanks jim

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raebaby | @raebaby | Aug 26, 2021
In reply to @mfj "Yes, have had this so long. Have tried just about everything. My Onc. keeps referring me..." + (show)
@mfj

Yes, have had this so long. Have tried just about everything. My Onc. keeps referring me to Neurologist. My Neurologist has nothing to offer at this time and has said so. Really at a point where I think it would just be better to not exist anymore. I know that sounds morbid but, thats not really how I mean it. Just so tired of the pain.

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I was told by my chemo nurse that i have a very low level of Vit D3 and recommended I take it. It is could for using to fight cancer and neuropathy. I am starting mine tonight. 5000mg is the dosage that supposedly works best. I was given an injection of calcium to work with it.

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Aug 26, 2021
In reply to @raebaby "I was told by my chemo nurse that i have a very low level of Vit..." + (show)
@raebaby

I was told by my chemo nurse that i have a very low level of Vit D3 and recommended I take it. It is could for using to fight cancer and neuropathy. I am starting mine tonight. 5000mg is the dosage that supposedly works best. I was given an injection of calcium to work with it.

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@raebaby You might want to read up on taking Vit D3 along with K2 as they work together.

-- Vitamin D & K – Do you need to take them together?: https://education.seekinghealth.com/d3-needs-k2-to-function/
-- The Synergistic Interplay between Vitamins D and K for Bone and Cardiovascular Health: A Narrative Review: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5613455/

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mfj | @mfj | Aug 26, 2021
In reply to @raebaby "I was told by my chemo nurse that i have a very low level of Vit..." + (show)
@raebaby

I was told by my chemo nurse that i have a very low level of Vit D3 and recommended I take it. It is could for using to fight cancer and neuropathy. I am starting mine tonight. 5000mg is the dosage that supposedly works best. I was given an injection of calcium to work with it.

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thanks, I already take calcium and D3 and get infusions of zometa for my bones at my onc. Thanks for your response.

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1luckyguy | @1luckyguy | Aug 27, 2021
In reply to @mfj "Have had neuropathy for 12 yrs. Docs think it may be due to chemo. cancer is..." + (show)
@mfj

Have had neuropathy for 12 yrs. Docs think it may be due to chemo. cancer is now back (stage 4). Curious about the ablation treatment for neropathy or any others ideas on relieving pain. I have tried just about everything over the last 12 yrs. Could really use some real help if there is any. Thanks.

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Try electric stim...I bought a stim pen and use it on my legs..It gives me relief..I carry it with me everywhere. When I feel like it, I ZAP my legs..Awesome to feel the tingle in the nerves..

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1luckyguy | @1luckyguy | Aug 27, 2021
In reply to @rivermaya34 "Hi @jimmy370, I am so sorry to hear that you are suffering so much. I also..." + (show)
@rivermaya34

Hi @jimmy370, I am so sorry to hear that you are suffering so much. I also have burning feet and legs. Started about a month ago. Was wondering if you or anyone else here has any advice for managing this during the day and especially at night when laying down trying to sleep? I wish you all the best in healing and otherwise. Glad you’re here. -Karen

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try the stim pen..My neuropathy was almost completely gone from my chemo treatments..I got my Shingrix shot and am back to where I was with the neuropathy..I have reflexology treatments and also use the stim pen. Has anyone one tried acupuncture for neuropathy or tinnitus?

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4 replies
mfj | @mfj | Aug 27, 2021
In reply to @1luckyguy "try the stim pen..My neuropathy was almost completely gone from my chemo treatments..I got my Shingrix..." + (show)
@1luckyguy

try the stim pen..My neuropathy was almost completely gone from my chemo treatments..I got my Shingrix shot and am back to where I was with the neuropathy..I have reflexology treatments and also use the stim pen. Has anyone one tried acupuncture for neuropathy or tinnitus?

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thanks for the advice and quick response.

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raebaby | @raebaby | Aug 27, 2021
In reply to @1luckyguy "try the stim pen..My neuropathy was almost completely gone from my chemo treatments..I got my Shingrix..." + (show)
@1luckyguy

try the stim pen..My neuropathy was almost completely gone from my chemo treatments..I got my Shingrix shot and am back to where I was with the neuropathy..I have reflexology treatments and also use the stim pen. Has anyone one tried acupuncture for neuropathy or tinnitus?

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What is a stims pen? I use a TENS on my feet that seems to help.

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1 reply
1luckyguy | @1luckyguy | Aug 28, 2021
In reply to @raebaby "What is a stims pen? I use a TENS on my feet that seems to help." + (show)
@raebaby

What is a stims pen? I use a TENS on my feet that seems to help.

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It is an electric stimulator that is battery powered..The shape is like a pen with a control button for strength of stimulation..I carry it with me and use it all day long..

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2 replies
1luckyguy | @1luckyguy | Aug 28, 2021
In reply to @1luckyguy "It is an electric stimulator that is battery powered..The shape is like a pen with a..." + (show)
@1luckyguy

It is an electric stimulator that is battery powered..The shape is like a pen with a control button for strength of stimulation..I carry it with me and use it all day long..

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I will get the manufacturer later and post it...

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hotfooted | @hotfooted | Aug 28, 2021

Hi Jim.. Please check out Erythromelalgia........ to see if your symptoms sound like this. I have suffered with this malady for years, but it seemed like most doctors had never seen or knew about it.. There is an Erythromelalgia Association now.. Also, if you google it you will see many pictures and examples of how it affects different folks.. I wish you all the best as you search for relief from this. One thing that helps me is NEUROPATHY rubbing oil that I buy from Amazon. It has Frankincense and Myrrh, which seems to be the ingredients that make all the difference for me.. I posted on MayoConnect a few years back about my initial experience with it.. Hope you find relief..

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