Anyone have burning feet and legs, and back here in Albany NY been to 8-10 specialists! And no one can give me a answer what is causing it! Thanks jim
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I had my first stim implanted in 2012 and my second in 2018. I had to have the psych review before the trial. I am looking at a third trial but my lawyer is going to fight Workers' Comp denial so I will be on hold for a while.
I do very much appreciate the stim! My last implant was not done as well as the first and I have learned to work with it. When I am in one position and set my remote, when I get out of that position things don't act the same, so I need to make another adjustment. I didn't have that problem with the first one. Because what I have doesn't cover my lower legs and feet well enough for me to be able to garden comfortably and only for a very short time as I use a garden bench, my pain management doc is going to do the trial lower in my back. If successful, he will also do the implant. The psych review wasn't any bother. Just be honest and positive about your need for relief to function on a better level.
Any luck? I have the same problem. I was born and raised in Albany, NY but now in GA. Can't get no answers. Went to a neurologist in 2020 and had therapy on my legs. Couldn't walk much after I had a Shingrix shot. Sick for 4 months. Disappeared as fast as it started, and now the legs and feet thing started AGAIN. Back to the neurologist and am going to have another nerve study and a MRI for my back but haven't had it yet.
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sounds like the stim doesn't really work that great. Shouldn't it have covered your lower legs?
I think the surgeon did a bad job, it's not the stimulator. When he implanted the first one it took him a hour longer because of the condition of my spine. Who knows what he cared not to do the second time. Obviously I will not have that surgeon for the third one. I understand my pain management doc is going to do it.
I have just done some research on two of my conditions, small fiber neuropathy and complex regional pain syndrome. They are both on the move. It seems my left butt is the latest conquest. That makes the whole left leg and foot united in SFN and much also in CRPS. I was told today that my left vagus nerve is non-functioning. Rather unique way that was discovered. My PT took a course this past weekend on the vagus nerve. She asked me to open my mouth and say ah three times. The left side of my uvula did not move. Thus my non-functional vagus nerve. She put a patch of kinesio
tape in my left ear. Fascinating stuff. Also was given homework. I need to sing to help get my diaphragm moving! Sure beats meds.
I still believe the stimulator is effective simply from my first. While disappointed with my current one, I do get relief in several areas. A trial should cement your decision. It's not that terrible a process.
Thanks for getting back to me. Would like to stay in touch.
Just got this from my Pain management doctor regarding the nerve stimulator: "Last week Nevro’s spinal cord stimulator device was just approved for diabetic neuropathy." He told me to look it up. I will eventually. Just had an MRI of my for my sciatica going from my upper right thigh to my foot. Guess what? The surgeon called me and told me that it wasn't coming from the back. Would like to stay in touch too. Tell me how? Be well Jules
I have peripheral neuropathy from being allergic to chemotherapy. Unending pain
Hello @cosbydianayahoocom, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others.
You might find the following discussion helpful — Need hope: Neuropathy from chemo: https://connect.mayoclinic.org/discussion/needshope/
The Foundation for Peripheral Neuropathy has some helpful information that you might want to read here: https://www.foundationforpn.org/living-well/
Have you been diagnosed by a neurologist and started any treatments?
@julkun. Where is the pain coming from then?
pain is coming from my piriformis muscle touching the nerve.
I have burning feet and legs alternating with ice cold feet and legs. Diagnosed with Small Fiber Neuropathy and take 900 mg of gabapentin daily which has substantially reduced the symptoms which I feel mostly when lying down. No known cause after multiple tests.
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