@128128terry11t, I too am wondering if @suttonmac2009 has ever tested negative after on the meds 7 yrs also.

@nick52, These are not stupid questions. I think many of us have the 'tree-in-bud' thing going on. My pulmonologist at the Mayo was SHOCKED to hear how many people are put on the BIG 3 meds. He thinks the same as your doctor, to medicate at the first sign of MAC is over-kill. I was diagnosed in 2005 and have not taken the BIG 3, I have taken two antibiotics on alternating months, and that seems to keep the infection away.

@irene5, although my dr agrees with nick52's dr, I still wonder if I shouldn't have gone on the BIG 3 in 2005 when I was first diagnosed? That dr at the time wanted me to, but two other pulmonologists said they would not recommend it. I sometimes think of getting another opinion from a diff medical institution, but I think one could get differing opinions on treatment everywhere. That is the maddening thing about this.

Windwalker,

I saw My specialist yesterday and he says that I am doing very good. Of all his MAC patient he has never seen a case like mine. From what I understand most patient case degenerate with time. The nurse said that MAC can't be cure.

It can only keep you from stopping the bacteria to colonize. Did your specialist told you that? We he specialist says no antibiotique unless I have a cold in the chest. I think that the nodule etc was discovered in 2009 in Florida after a big pneumonia and

the MAC in 2014 or 2015 after a broncoscopy.  The Ctscan reveiled no progress in the lungs   My MAC specialist (he is an infectiologue) says he won't see me anymore since I was doing great. I was

a bit disappointed that he doesn't want to see me anymore  but at the same time it was a good news.  He said my lung dr will monitor my case.  Do you have Ctscan every year? Do you have broncoscopy often?

Glad to know!  Sugar is bad for me but after the NAET treatment I can tolerate it more without having lots of mucus. With that food, scent allergy treatment, it kind of désintoxication your body and you don't need to stop eating the food. Your body will

digest it much better. 

Does anyone drink tap water instead of distilled water?

What kind of antibiotic they gave you to treat pseudomonas

Ouf! That sound scary "Cavitary" I will read about it! Kay does anyone talk about back upper pain also. I also ask @windwalker about upper back pain. I wonder if that is due to lung issues. 

@nick52 I always drink tap water. I don't think I got MAC from drinking tap water. I suspect I got it from the soil when I dug in the garden.

OK So you started with Gluten.. That will be hard but I will give it a shot

Jo Ann