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@suttonmac2009

I started with 500 mg (each) of Clarithromycin twice a day and 400 mg(each) of Ethembutol twice a day. Then when I was tested negative for MAC after about 5 yrs, they reduced meds to 3 days a week for a year

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Replies to "I started with 500 mg (each) of Clarithromycin twice a day and 400 mg(each) of Ethembutol..."

Nick
I tnihk the decision to treat MAC is based on a 3 pronged approach.sputum, how you feel and CT scan. A cavity showed on my scan and I was positive, not many symptoms. But cavities are treated aggressively. So is widely spread nodules maybe. So, the CT is a piece of the decision. Maybe your was clear.
Kay

Hi Jo Ann, 

Clear lungs is an herbal med to clear lungs when it is congested. You can take one per day for prevention. It can be bought at a natural store or vitamine store. 

Ridge crest herbals(check on internet) it is efficient for me.

@nick52 Thanks for the information about Clear Lungs. Never heard of it before. Will definitely look into it. Just hope it helps expel the mucus and not just prevents it from coming up. The latter is actually bad for those of us with bronchiectasis because the excessive mucus accumulated in the bronchial tubes will trap bacteria and cause infections. The excess mucus needs to come out however you do to make that happen is helpful.

Dear Ling 

I have tree buds, and bronchiestasis and nodules. I did the same no antibiotics but has lots of mucus. I have done the food allergy treatment NAET (check on internet) that has cut my mucus 90% I had mucus a little in my throat after

certain meal.it doesn't last long.  I cook all my food. Sugar, oil bothers a little bit but I am doing good with my clear lungs and probiotic non diary Dr Ahhiro. Thanks for your response! Appreciated

Cavities are not always treated aggressively.  Depends on so many factors.  My cavity reduced in size, so they will closely monitor it.

 

 

I do not cough but seen to have allot of mucus in the back of my throat. Like sinus drainage without sinus congestion. Can you tell me how you started to get

rid of that, did you start eliminating certain foods first or the clear lungs and what Probiotic are you using?

 

Jo Ann K

 

 

 

There really needs to be more research into finding better antiotics and treatment for this.  I cannot understand why there is not a bigger effort in this direction.

According to the ID person I saw, there are many more people diagnosed with this than TB and there are probably allot not diagnosed. So how can we get together and get the CDC or even any of the drug companies to look at this. I suppose for the drug companies,

the research would have to result in the profit on the other end. Could the National Institute or Health or National Heart Lung and Blood Institute be involved.  Seems like we are all trying to find a cure for ourselves instead of of our Scientists, Epidemiologists,

MD’s looking at how to conquer this.  As it continues to grow in our city and home water supplies etc, why can’t more be done.   I just don’t get it. 

 

How do we get someone’s attention. Does a big Movie Star have to be diagnosed first?

Does anyone have an opinion or know more about where research is heading in this area. Perhaps someone that went to the conference in Washington DC last year.

 

JO Ann

 

Dear Jkiemen

My first  best treatment is call NAET (look for it on the internet) it is an food allergie elimination treatment.  This is an alternative nature medicine treatment. There is 10 basic treatment. You do not have to stop eating the

food you are treated for.  It is hard to explain but it works believe me and my friend had the same problem as you lots of mucus coming in her throat also. She was doing the nettie pottie twice a day. After that treatment she is 80% better as far as the mucus

in her back of throat coming from her sinus. We both travelled 4 h to get that treatment it was worth it.  I live in New Brunswick Canada. That treatment comes from the United State I think. 

Clear Lungs is from Ridgecrest Herbal and you can get info from Prescription for Nutritional Healing By Dr Balch at  any book store.  Look under Tuberculosis. You can buy it in a good Natural Store.

The professional probiotic is Dr Ohhira's fermented Probiotics. You can google it on the web.

Do you have a lot of dairy product in your diet?

The same as I Tree buds and nodule.  Today I saw my specialist and he said that in all the patients he sees with a MAC, he has never seen a case like mine. On all my CT scan there is no changes for few years now. I guess I must be doing something right!

 My breathing test was 94 which he says was good. I do not cough when I take my Clear lungs. Go to a library or a book store and read the book of Dr Balch on Nutritional healing, clear lungs and the sction on Tuberculosis.

Google also NAET.

I have tubular bronchiectasis also. It helps getting it out and my ctscan confirmed it!