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@suttonmac2009

I started with 500 mg (each) of Clarithromycin twice a day and 400 mg(each) of Ethembutol twice a day. Then when I was tested negative for MAC after about 5 yrs, they reduced meds to 3 days a week for a year

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Replies to "I started with 500 mg (each) of Clarithromycin twice a day and 400 mg(each) of Ethembutol..."

According to Dr Balch in his book Nutritional Healing the best water is the distilled water. It might be worth research it!

I also go to fried tertiary
My pulmonarch doc is dr. Presberg. My infectious disease doc is Jane wainani. She is also at froedtert. I absolutely love both of my docs....

@jkiemen , So true Jo Ann. Just about all of our posting members that live in Wisconsin are located in the southeastern part of the state. Wis is probably the worst one of the 'hot pocket' states. The other states are: New Hampshire, Hawaii, California, and Florida. I wonder what makes them the 'hot spots'? I am thinking it is the water sources, could it be that they have reservoir supplied water?

That is very interesting because we lived in Berlin, New Hampshire from 1971 to 1986. The water had giardia (which I got). We were told the filtration plant couldn’t filter that parasite. With that said I wonder if the filtration plants in certain states are better at “filtering” some species of bibbits 🙂 than others. Not everyone in my family got giardiasis even though we all drank the same water. That makes me think of the genetic susceptibility factor for certain diseases. We also lived at “chimney level” which was very bad for anyone living there.

I wonder if cities do any testing of the water. Makes me all the more likely to keep getting it if I get improvement with the big 3

Or there is more Health Care Specialist in SE Wisconsin and Madison. So I wonder is it because more people are being tested in those area's.

Dear Irene,

With bronchiectasis my doctor recommended “ distilled water” . That is too risky drinking tap water. 

I have been boiling my drinking water. I have well water. I thought I read in one place well water was less contaminated with MAC than city water. Had to do something with "pink film"

In NB we can have it tested at the hospital lab.

@jkiemen Interesting thought. My pulmonary doctor at UW hospital Pulmonary Clinic strikes me as having seen a fair number of MAC patients. When I coughed up a large amount of blood three years ago, everybody immediately thought of TB although I had none of the symptoms for TB. Dane County sent a ID nurse to my house to collect my sputum samples right after I got out of ER. Two days later, I had the first appointment with Dr. Ferguson, my pulmonary doctor. He said, "Without seeing the result of your sputum test, I'm already pretty certain you don't have TB. So I'll instruct the county ID lab to also test for MAC". The way he talked to me about it, I got the impression he had encountered many patients with MAC. But he never said anything about Wisconsin being the hotbed for it. Maybe next time when I see him I'll ask him.