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Trigeminal numbness
About 3 months ago I awoke with my tongue numb on the right side. The next day the numbness was all over the right side of my face. I've had a CT scan, MRI scan, blood work and I've met with a neurologist. No signs of palsy, MS...nothing. All my blood work is clean. The only symptom is that it feels like the trigeminal nerve on the right side of my face is numb. No pain, just numb.
I had some fatigue and dizzyiess for a bit. Then my PCP, with a consult from a neurologist, prescribe gabapentin. I feel that exacerbated my dizziness, fatigue and now double vision. After my visit with a neurologist he said that there's no reason to be on that so I weened myself off. I've been fine ever since. No fatigue, dizziness, or double vision anymore. But I still have the nerve numbness.
Anybody out there with the same? Any recommendations? Any doctors have a cure?
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Thank you I have tn2 I am thinking of getting it I also have autoimmune
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1 ReactionYes, you need to get vaccinated. My autoimmune disease is called UCTD. It is kind of like pre-lupus. I also have FOSMN, they think. That is a very rare disease.
Thank you very much because I did not know what to do
Thank you so much
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1 ReactionCan you get the covid vaccine if you have atypical trigeminal neuralgia type 2
Hi Denny,
I moved your question to the discussion where you received a response from @patyrod. I wanted to make sure you saw it here: https://connect.mayoclinic.org/comment/611127/
Mayo Clinic recommends getting the vaccine.
"Can I get a COVID-19 vaccine if I have an existing health condition?
Yes, if you have an existing health condition you can get a COVID-19 vaccine — as long as you haven't had an allergic reaction to a first dose of a COVID-19 vaccine or any of its ingredients. But there is limited information about the safety of the COVID-19 vaccines in people who have weakened immune systems or autoimmune conditions.
COVID-19 vaccines also might not fully protect people from COVID-19 who have a weakened immune system that is caused by HIV, certain conditions or medications. It might be necessary to continue taking precautions."
Read more in Mayo's Vaccine Guide https://www.mayoclinic.org/coronavirus-covid-19/vaccine
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1 ReactionDoes anyone have bilateral trigeminal neuralgia type 2? Do you ever get any relief or are you always in pain? How fast does it progress?
Any out there suffering from trigeminal neuralgia type 2
Hi @denny2788
I am so sorry you are suffering from bilateral trigeminal neuralgia. I know that can cause severe pain that can feel like electrical shocks, which is terrible!
Just as Colleen did, I have moved your posts to the discussion that is already talking about trigeminal neuralgia. It's important in the connect community to keep like conversations together so that members can easily search and connect with you about your diagnosis without having to scroll through multiple posts. We always encourage new conversation, but it is necessary to link the groups together by what ails them.
That being said, can you give us a little more information about your diagnosis? How long have you had it? What kind of treatment ha been prescribed?
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1 ReactionI've had the same problem since 1988. No meds help. Have you found any relief?