Connect
One’s story and what it might say
Can someone tell me how each discussion group gets to be a discussion subject? As a nubie I’m still trying to understand the process and the best way to navigate the connect site. So far I can say THANK YOU 1 for the site 2 for all of the volunteers, mentors, and participants willing to help with hyper-linked answers to my questions. If there is a 3 and a 4 I’m more than willing to say them. But those first two are huge helps. That said I noticed that on an occasion or two I followed the link and discovered great info and answers but I wonder if it might not be better to just answer the question instead of leading me a much bigger lesson than is necessary to answer the question. I feel badly if this discourages others from answering with hyper-links.
But back to my question: who gets to say: this or these ARE THE MAIN HEADINGS?
This is posted in the CANCER discussion group because the story that I would like to share fits here best of all.
If you’ve read any of my posts you’ve noticed that I struggle writing short stories because it seems important to me to share details of the process. There’s no doubt that it’s easy to lose track of the so called process and “ digress “. It may be happening here and now. So I’m going to slow down and pay attention to my question and the words and questions that find their way into my post. A few days go I received a few replies admitting that my post excited them but that they needed time to consider what they wanted to say. I was excited and looking forward to hearing what they though and wanted to say. So far I’ve heard nothing and no I think that there will not be a reply.
I think and perhaps many of us think similarly that “ no answer “ is in fact it’s own answer that requires a broader understanding of what is being said and why.
I’ve circled back in a manner of speaking still wondering about my question: “ how are questions chosen to be on the major list? Looking at “ CANCER “ subjects I wonder which one might best fit my story?
I think this one might be best.
In short a friend of mine had their cancer disappear completely after something else happened to her
( she contracted another disease and I thought that some aspects of the second disease played a part of sending the cancer into remission and at some point she was cancer free )
If there is a connection that resulted in her cancer disappearing how might it ever be known? Who might wonder as I did if there enough reason to investigate further?
I have wondered for many years if one disease/illness/condition/malady can be used against another? This question itself is received strangely when I ask a variety of doctors. A few doctors just laugh at my question without even answering or perhaps asking me “ what do you have in mind?” Or:
“ that’s an interesting question, what makes you ask?”
It’s been on my mind so long that I’ve now started asking a new question to inquire about this interest. I now ask: “ do you ever think about discovering something new in your field of medicine or perhaps in a field that you are interested in but don’t practice or focus on?”
One doctor said” it’s interesting that you ask me that now because just this month I asked many questions of my school and of a few other schools. It’s discouraging hearing the answers to my questions
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1 ReactionYes, thank you.
@olg1 You are a member already and you’re posting messages. You’re writing to us so that means we can see your messages.
Down at the bottom of this page where it says, Comment, just write what you want us to know about you or any questions you have and click the blue button that says Post Comment. Easy Peasy! ☺️
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4 ReactionsOLG, I'm sorry to hear that you are getting that annoying pop-up that asks you to join even after you've signed in. I will get the tech team to look into that. Are you using an Apple device like an iPhone or iPad by any chance?
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2 ReactionsIhave a question about how much radiation I am getting. My cancer was a half inch triple negative grade 3 stage two invasive carcinoma. Only one lymph node was invaded within the breast,my margins were clear on the other lymph nodes and my pet scan was clear. Now they are giving me thirty days of radiation,25 to the whole breast 5 days targeted to where the cancer was taken out. 60000CGYs total. Is that over kill?
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3 ReactionsIt is a pretty common amount of radiation. I had the same and another member I have been talking to had the same and one of my friends had the same. Even with smaller tumors than yours. But you certainly could ask your doctor.
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2 ReactionsI just received my 10the radiation treatment today, for the first time I felt a lot of pain like a flaming arrow going through the side of my breast. I had a rash last week that was itchy and they prescribed a cortisone cream. They told me I would not feel the beam, but I felt the burning pain and herd it . The radiologist the zap is common . I know the difference between a zap from nerve pain and inflammation and a burning sensation. Has anyone else felt that burning sensation . It really unnerved me. It didn’t feel right.
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2 ReactionsHi @olg1 oh gosh, that sounds painful and frightening. I confess, my treatment didn’t involve radiation so I’m going to bring in my friend, @auntieoakley who might be able to help you understand what’s going on during your radiation treatments. I hope you don’t have that sensation again!
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5 ReactionsYou should mention it to your radiation tech and ask to speak to your doctor, but to get you through the night you can put your cream or even better if you have it, put some aloe Vera gel in the refrigerator. I will say the sounds are not something I encountered but the burning sensation did start about 8 to 10 treatments in and the burning was pretty severe. They gave me aquaphor but it didn’t really help just made me greasy. The aloe would take the sting out for a while. A nurse recommended it when the burn really got going. I don’t know if the aloe or the fact that it was refrigerated was the ticket, but I have kept aloe gel in the fridge every since for burns.
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