1. < MAC & Bronchiectasis

Bronchiectasis: Is nebulizing helpful?

Posted by gej53 @gej53, Aug 8, 2021

Hi guys, hope I am posting this right. I have had bronchiectasis and have been nebulizing for two years now. A friend recently visited and said she has a history of pneumonia seven times and saw bronchiectasis on her scan. However, she does not nebulize. I was pretty surprised. Makes me wonder, is mine worse that hers on an xray? Is her doc remiss in not ordering her to nebulize? Does not everyone nebulize who has bronchiectasis? Any thoughts? Thanks so much.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

gej53 | @gej53 | Aug 23, 2021
In reply to @ljfoo "I see a pulmonologist for my MAC. Should I be seeing an infectious disease doctor also?..." + (show)
@ljfoo

I see a pulmonologist for my MAC. Should I be seeing an infectious disease doctor also? What is the difference between the two?

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When I first began with my pulmonologist and he suspected MAC, he said he would do all the work up to determine if I indeed had it. He stated though that he would refer me to the infectious disease specialist to decide on the exact appropriate antibiotic I would need according to the results of my test.

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1 reply
thumperguy | @thumperguy | Aug 23, 2021
In reply to @gej53 "Thank you Don! Any compliment about articulation from you carries a lot of weight as you..." + (show)
@gej53

Thank you Don! Any compliment about articulation from you carries a lot of weight as you have such an impressive command of he English language 🙂 Your posts are always enjoyable!! Will try your suggestion. Want to bring the doc around to thinking the way of this forum without him thinking I am questioning his practice. I have a repeat CT scan for this year coming up this summer so will open up discussion with that and take it from there.

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When is your CT scan scheduled Gej?

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1 reply
lora jo | @ljfoo | Aug 23, 2021
In reply to @gej53 "When I first began with my pulmonologist and he suspected MAC, he said he would do..." + (show)
@gej53

When I first began with my pulmonologist and he suspected MAC, he said he would do all the work up to determine if I indeed had it. He stated though that he would refer me to the infectious disease specialist to decide on the exact appropriate antibiotic I would need according to the results of my test.

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Thanks for the reply. I'll ask my pulmonologist about referring me to an infectious disease doctor also.
lora jo

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gej53 | @gej53 | Aug 23, 2021
In reply to @thumperguy "When is your CT scan scheduled Gej?" + (show)
@thumperguy

When is your CT scan scheduled Gej?

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I have at CT and then see the doc to review the results on Sept. 20th. Here's hoping...

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1 reply
thumperguy | @thumperguy | Aug 25, 2021
In reply to @sueinmn "Toni - Every time I think "I don't need to neb" reality smacks me on the..." + (show)
@sueinmn

Toni - Every time I think "I don't need to neb" reality smacks me on the head with increased fatigue, coughing or other symptoms. I find that nebbing does a far better job of loosening secretions than the inhaler, and I bring up more "junk." This is obvious when I skip nebbing for a few days (still doing inhalers and airway clearance) and I cough up thick clots after each of the first few nebs, then the secretions thin again.
Sue

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Sue, here’s an “off-topic” question. I notice the terms “Mentor” and “Moderator” on the Forum. They’re not synonymous are they? Don

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2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 25, 2021
In reply to @thumperguy "Sue, here’s an “off-topic” question. I notice the terms “Mentor” and “Moderator” on the Forum. They’re..." + (show)
@thumperguy

Sue, here’s an “off-topic” question. I notice the terms “Mentor” and “Moderator” on the Forum. They’re not synonymous are they? Don

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Hi Toni, I can jump in to answer this question.
Moderators are Mayo Clinic staff who monitor all discussions in all the groups on Mayo Clinic Connect. We connect members with each other and help them find relevant discussions and information. We keep the community safe, supportive, inclusive, and respectful according to the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We also work on special projects to grow the community and more.

Mentors are fellow members of the Connect community who have been recognized as trusted, knowledgeable members committed to helping others. They volunteer their time selflessly to share their experiences and their health stories. They can authentically connect with fellow members and say "I've been there." You can read more about Volunteer Mentors here: https://connect.mayoclinic.org/blog/about-connect/tab/volunteer-mentors/

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2 replies
Mentor
Sue, Volunteer Mentor | @sueinmn | Aug 25, 2021
In reply to @thumperguy "Sue, here’s an “off-topic” question. I notice the terms “Mentor” and “Moderator” on the Forum. They’re..." + (show)
@thumperguy

Sue, here’s an “off-topic” question. I notice the terms “Mentor” and “Moderator” on the Forum. They’re not synonymous are they? Don

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Thanks Colleen, Does that answer your question, Don?

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gej53 | @gej53 | Aug 26, 2021
In reply to @colleenyoung "Hi Toni, I can jump in to answer this question. Moderators are Mayo Clinic staff who..." + (show)
@colleenyoung

Hi Toni, I can jump in to answer this question.
Moderators are Mayo Clinic staff who monitor all discussions in all the groups on Mayo Clinic Connect. We connect members with each other and help them find relevant discussions and information. We keep the community safe, supportive, inclusive, and respectful according to the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We also work on special projects to grow the community and more.

Mentors are fellow members of the Connect community who have been recognized as trusted, knowledgeable members committed to helping others. They volunteer their time selflessly to share their experiences and their health stories. They can authentically connect with fellow members and say "I've been there." You can read more about Volunteer Mentors here: https://connect.mayoclinic.org/blog/about-connect/tab/volunteer-mentors/

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And a big thank you to both who take their time to consistently monitor the conversations and provide answers/guidance. This forum has provided so much help and insight for me and countless others I'm sure, It has been reassuring and always informative. So appreciated.

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vfparker | @vfparker | Aug 26, 2021
In reply to @colleenyoung "Hi Toni, I can jump in to answer this question. Moderators are Mayo Clinic staff who..." + (show)
@colleenyoung

Hi Toni, I can jump in to answer this question.
Moderators are Mayo Clinic staff who monitor all discussions in all the groups on Mayo Clinic Connect. We connect members with each other and help them find relevant discussions and information. We keep the community safe, supportive, inclusive, and respectful according to the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We also work on special projects to grow the community and more.

Mentors are fellow members of the Connect community who have been recognized as trusted, knowledgeable members committed to helping others. They volunteer their time selflessly to share their experiences and their health stories. They can authentically connect with fellow members and say "I've been there." You can read more about Volunteer Mentors here: https://connect.mayoclinic.org/blog/about-connect/tab/volunteer-mentors/

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Thank you to Mayo for providing the resources necessary for this forum to exist. I have learned so much here to the extent I changed my neb solution as well as have asked my doc questions that changed the path of my treatment. It’s the first thing I read in the morning. Thank you to Sue for being responsive and being a mentor.

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