Hearing Loss: Come introduce yourself and connect with others
Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.
Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?
Interested in more discussions like this? Go to the Hearing Loss Support Group.
Now I'll have to see if my Oticon On app will work with the Phonaks. Never heard of this before. You might be on to something here. And, yes, the Phonak app stinks.
GPS voice prompts are a problem for me too. My hearing loss is profound in higher frequencies but not bad at low frequencies. That just means I can hear noise real well but not understand speech. I have connected my hearing aids to GPS in various ways but still have to rely on the visual prompt for navigation. They ought to have a "repeat" feature on GPS.
Thank you for this “hearing loss” site. I have now gone through the the 10 days of prednisone, MRI, and three shots into the inner ear as well as two hearing tests with the audiologist. My hearing came back a little to where I can hear people on the telephone with the speaker button on and I can participate in one on one conversations, but with masks and plastic shields at places like the bank, I am deaf. So my ENT says he can do no more and hopes I get my practically new hearing aids adjusted with custom ear molds. Now I hope to investigate better hearing aids if possible, but cost is so prohibitive, as my Miracle Ear ones are only a year old.
Well I tried pairing my Phonak to the Oticon On app. Does not pair up. Phonak uses Bluetooth LE (Low Energy) so it does not work and can't.
Your son's older Phonaks are probably not Bluetooth LE.
I feel your frustration. Two and a half years ago, I had sudden hearing loss in my right ear with severe vertigo. I also went through the hoops,, two rounds of Prednisone, MRI, and numerous hearing tests. I declined the inner ear shots after researching that option. None of my hearing returned. My other ear hearing is moderate, not great, but not gone yet. I got a hearing aid for my good ear, and tried the cros which sounded like a tin can, and would not stay in my ear. I even tried acupuncture after reading that someone had good results with that. Moving forward to now, I had reached the point where I had been completely avoiding social situations except for a very small group or one on one. Even with reading lips, I still lost a lot of conversation. Since I recently relocated to another city, I asked my PCP for a referral to a good ENT. I was so frustrated that nothing could be done. The audiologist suggested that I would be a good candidate for an Osia bone conduction implant. I was actually able to test the unit using a headband to hold it in place. Long story short, I just had the surgical implant 5 weeks ago, and after a month healing period, I received my processor 4 days ago. I cannot tell you what a life changing event this is. I can now hear on my right side. I.still use a hearing aid in my good ear.. I no longer have to look.around to see where sound is coming from. I can now tell where a siren is coming from when I am driving. My balance is better. Anyway, find another ENT specialist, and ask them about the Osia bone conduction implant. There ARE other solutions out there.
This is what I wondered also, Julie! Imagine traveling a long distance and having your HAs be dead by the time you arrived.
My ENT said he did not think a cochlear implant was the way to go. Is this Osia implant the same sort of thing?
Thank you so much for this! I have the Phonak Audeo P90-R devices. While they pair seamlessly with my iPhone, with my new iMac (M1 chip) it hasn't been seamless at all. I often have to power them off and back on to get the computer to connect. Plus the sound quality isn't great with Zoom calls, although in part that's because I hear my voice from the other person's computer if they aren't wearing earbuds. At first Zoom didn't work at all with the HAs but then I learned I had to change a setting from active to fixed bandwidth.
I'm happy to report the hands free phone calls have gone well. It is indeed a double tap, not a double thump, perhaps they fixed that issue. Incoming calls go straight to the HAs, too. I don't know about background noise, though, I've only tested it while inside our quiet house. Even before HAs, I generally avoided using my cellphone for calls because the coverage isn't great here. Luckily our phones and my headset work fine with the HAs acting as simple sound enhancers rather than Bluetooth receivers.
The app is definitely slow to connect to the HAs. Interesting about the mute feature.
Thanks again, you've given me a lot to consider.
I should have added that at first my phone audio was scratchy. I contacted Phonak and they said that was a known problem with iPhone 11,12, and SE which was fixed with new firmware which my hearing aids did not have. So back to the audiologist for new firmware (they can't do that remotely)
The new firmware fixed the problem with phone audio, but I had to go back are re-pair everything.
The Phonaks have a lot more automatic compensating going on. I can hear it kick in and out a lot. Maybe it is because the hearing aids are still "learning" my environment and trying to compensate for all the different conditions. I think that is expected.
I have Oticon More rechargeable hearing aids for my severe hearing loss. I was hesitant about rechargeables because my sister had an earlier version a few years ago and by 3:00 pm they were dead and she had to recharge. Needless to say, that wouldn't be acceptable. I put my hearing aids in as early as 5:30 am and wear them as long as to 11:00 pm and have never run out of charge. I take the charger with me when we travel, of course. I have become so used to them that I've forgotten what a hassle it is to have to change batteries before I go to a meeting or concert or event, so I'm not caught having to change them in the process. I've never been in a position where I went beyond that time span, but would have to think seriously about how to address that if I'm ever in that position.
Technology keeps getting better, but also more confusing for so many older people with hearing loss. Having batteries go dead has always been a major concern of mine. I've been using hearing aids for many decades, and have kind of grown along with much of the new technology. As a bimodal user of both a cochlear implant processor and a hearing aid, I've had to stay on top of things. However, I am not yet upgraded with the CI to some of the more recent innovations.
One thing that has interested (and confused) me, is when my husband who is now using hearing aids, starts talking. Typically, I look his way, but he doesn't look my way. It takes me a minute to realize he's answered a phone call via his hearing aids. Prior to this, I would usually hear his cell phone ring and know he had an incoming call. Just saying, it's kind of weird.
My cochlear processor has rechargeable batteries. I like that, but there are times I prefer using disposables. Over time, the rechargeables do lose power and although they charge, the charge time gets shorter. These batteries are removable units that charge when they are off the processor. I know that new rechargeable hearing aids do not separate from the battery compartment, and have to be fully placed in their chargers. I can order a new rechargeable battery for my CI processor, although quite costly. ($150+), so I can replace that old one. What does someone do when their hearing aid rechargeables die? Seems to me the entire aid would have to be sent in to be fixed. Being without my hearing devices for days would make me nuts. Can the audiologists fix them at their office?
My Cochlear processor has an option that has been a lifesaver. As a separate 'add on', I have what I've been told is called a 'battery cage'. It allows me to insert disposable batteries into a small sleeve/cage and use that rather than the rechargeable. Strangely, it is not considered a standard piece of tech that comes with the CI processor and must be purchased separately.
Like I said, tech is amazing, but it's very confusing for many who need to use it.
I hope others will share their personal experiences.