Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@imallears

@arrowshooter

I trialed Phonak Paradise with Bluetooth…didn’t even last 2 weeks.
My hearing is profound bilateral so the phone was of no use to me…still need captions. The Phonak app stinks and it does take a number of seconds for them to connect and then they disengage from the app. I only connected 2 devices but gave it a vigorous trial everywhere. I will say , once connected, I was able to pick up voices further away…but still couldn’t understand speech unless the speakers were facing me.

I found myself constantly using the phone. My son was given a pair of older Phonaks (battery) by a client. They are Bluetooth. His lose is moderate . He uses the Oticon On 2 .4.0 app on his iPhone with the Phonak aids and says it works flawlessly . That’s all he is interested in but says listening to audiobooks has improved. My Audi doesn’t understand how he can use that app with Phonaks.

If you look at the reviews in the play store you can see
all the complaints about the Phonak app.

I use Innocaption for phone calls and the audio is great but I can still use my ear link and plug it into the phone using Tcoil. I do this for my iPad and sometimes when I use GPS in unfamiliar areas. Hearing the voice is a prompt for me along with looking at directions. I have had the ear links for years and I think you can still get them. They are shaped like a candy canes and hook over your ears but you need Tcoil.

Went a little off subject here.

FL Mary

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Now I'll have to see if my Oticon On app will work with the Phonaks. Never heard of this before. You might be on to something here. And, yes, the Phonak app stinks.

GPS voice prompts are a problem for me too. My hearing loss is profound in higher frequencies but not bad at low frequencies. That just means I can hear noise real well but not understand speech. I have connected my hearing aids to GPS in various ways but still have to rely on the visual prompt for navigation. They ought to have a "repeat" feature on GPS.

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@amandajro

@coppermoon hello. If you would like to review your previous posts, you can log into the website, go to "Profile & Settings" by clicking on your username/handle (i.e. @coppermoon), then "Comments" to view your previously posted activity.

Does this help?

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Thank you for this “hearing loss” site. I have now gone through the the 10 days of prednisone, MRI, and three shots into the inner ear as well as two hearing tests with the audiologist. My hearing came back a little to where I can hear people on the telephone with the speaker button on and I can participate in one on one conversations, but with masks and plastic shields at places like the bank, I am deaf. So my ENT says he can do no more and hopes I get my practically new hearing aids adjusted with custom ear molds. Now I hope to investigate better hearing aids if possible, but cost is so prohibitive, as my Miracle Ear ones are only a year old.

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@imallears

@arrowshooter

I trialed Phonak Paradise with Bluetooth…didn’t even last 2 weeks.
My hearing is profound bilateral so the phone was of no use to me…still need captions. The Phonak app stinks and it does take a number of seconds for them to connect and then they disengage from the app. I only connected 2 devices but gave it a vigorous trial everywhere. I will say , once connected, I was able to pick up voices further away…but still couldn’t understand speech unless the speakers were facing me.

I found myself constantly using the phone. My son was given a pair of older Phonaks (battery) by a client. They are Bluetooth. His lose is moderate . He uses the Oticon On 2 .4.0 app on his iPhone with the Phonak aids and says it works flawlessly . That’s all he is interested in but says listening to audiobooks has improved. My Audi doesn’t understand how he can use that app with Phonaks.

If you look at the reviews in the play store you can see
all the complaints about the Phonak app.

I use Innocaption for phone calls and the audio is great but I can still use my ear link and plug it into the phone using Tcoil. I do this for my iPad and sometimes when I use GPS in unfamiliar areas. Hearing the voice is a prompt for me along with looking at directions. I have had the ear links for years and I think you can still get them. They are shaped like a candy canes and hook over your ears but you need Tcoil.

Went a little off subject here.

FL Mary

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Well I tried pairing my Phonak to the Oticon On app. Does not pair up. Phonak uses Bluetooth LE (Low Energy) so it does not work and can't.

Your son's older Phonaks are probably not Bluetooth LE.

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@coppermoon

Thank you for this “hearing loss” site. I have now gone through the the 10 days of prednisone, MRI, and three shots into the inner ear as well as two hearing tests with the audiologist. My hearing came back a little to where I can hear people on the telephone with the speaker button on and I can participate in one on one conversations, but with masks and plastic shields at places like the bank, I am deaf. So my ENT says he can do no more and hopes I get my practically new hearing aids adjusted with custom ear molds. Now I hope to investigate better hearing aids if possible, but cost is so prohibitive, as my Miracle Ear ones are only a year old.

Jump to this post

I feel your frustration. Two and a half years ago, I had sudden hearing loss in my right ear with severe vertigo. I also went through the hoops,, two rounds of Prednisone, MRI, and numerous hearing tests. I declined the inner ear shots after researching that option. None of my hearing returned. My other ear hearing is moderate, not great, but not gone yet. I got a hearing aid for my good ear, and tried the cros which sounded like a tin can, and would not stay in my ear. I even tried acupuncture after reading that someone had good results with that. Moving forward to now, I had reached the point where I had been completely avoiding social situations except for a very small group or one on one. Even with reading lips, I still lost a lot of conversation. Since I recently relocated to another city, I asked my PCP for a referral to a good ENT. I was so frustrated that nothing could be done. The audiologist suggested that I would be a good candidate for an Osia bone conduction implant. I was actually able to test the unit using a headband to hold it in place. Long story short, I just had the surgical implant 5 weeks ago, and after a month healing period, I received my processor 4 days ago. I cannot tell you what a life changing event this is. I can now hear on my right side. I.still use a hearing aid in my good ear.. I no longer have to look.around to see where sound is coming from. I can now tell where a siren is coming from when I am driving. My balance is better. Anyway, find another ENT specialist, and ask them about the Osia bone conduction implant. There ARE other solutions out there.

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@julieo4

I'd like to hear more about the differences in rechargeable hearing aids too. I am still using disposable batteries in my hearing aid. (My cochlear processor uses rechargeables though.) How does one cope with a hearing aid that gives less than 16 hours/day service? What happens if you are traveling, or camping or unable to charge them?

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This is what I wondered also, Julie! Imagine traveling a long distance and having your HAs be dead by the time you arrived.

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@lmayo

I feel your frustration. Two and a half years ago, I had sudden hearing loss in my right ear with severe vertigo. I also went through the hoops,, two rounds of Prednisone, MRI, and numerous hearing tests. I declined the inner ear shots after researching that option. None of my hearing returned. My other ear hearing is moderate, not great, but not gone yet. I got a hearing aid for my good ear, and tried the cros which sounded like a tin can, and would not stay in my ear. I even tried acupuncture after reading that someone had good results with that. Moving forward to now, I had reached the point where I had been completely avoiding social situations except for a very small group or one on one. Even with reading lips, I still lost a lot of conversation. Since I recently relocated to another city, I asked my PCP for a referral to a good ENT. I was so frustrated that nothing could be done. The audiologist suggested that I would be a good candidate for an Osia bone conduction implant. I was actually able to test the unit using a headband to hold it in place. Long story short, I just had the surgical implant 5 weeks ago, and after a month healing period, I received my processor 4 days ago. I cannot tell you what a life changing event this is. I can now hear on my right side. I.still use a hearing aid in my good ear.. I no longer have to look.around to see where sound is coming from. I can now tell where a siren is coming from when I am driving. My balance is better. Anyway, find another ENT specialist, and ask them about the Osia bone conduction implant. There ARE other solutions out there.

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My ENT said he did not think a cochlear implant was the way to go. Is this Osia implant the same sort of thing?

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@arrowshooter

OK, I'll list what I can remember right now and that certainly won't be everything. Besides the battery life being less on the Phonaks there are other important differences between Phonak and Oticon. Remember I'm comparing Phonak Paradise and Oticon More.

Phonak advertised that they can pair with up to 7 devices and run 2 at the same time. I have not found that to be true. For instance when the app is open or even running in the background the remote controller doesn't work. And the audio won't connected to my computer when connected to the phone. The Oticon connectivity (with iPhone) is seamless but more limited in terms of devices.

The Phonak uses the hearing aid microphones for hands free phone calls. You don't have to talk into the phone. But people on the other end of the call hear any background noise around you. Not able to shut this off. Oticon uses both hearing mics and phone mic.

The Phonak outgoing calls connect directly to the hearing aids. But incoming calls answered on the phone go to phone audio and you have to manually switch to hearing aids. Calls can be answered with audio going directly to hearing aids by the "double tap" feature (double tap a hearing aid to answer). But the double tap is more like a double THUMP. It is hard to hit that tiny hearing aid with enough force to activate the feature. Oticon connectivity is seamless.

The worst thing for me is that the app, even while running has to connect to the hearing aids each time you want to use it which takes 10 to 20 seconds. The app disengages each time the phone goes to Lock Screen. The Oticon app is more user friendly with ore usable features.

The Phonaks do not have a "mute" feature to mute the hearing aid mics. I use this feature a lot when driving alone. I mute the mics and listen to streaming music without the road noise. There are times when I enjoy more silence and less stress.

On the plus side for Phonak I can hear a little better with them. The Oticons pick up sound from all directions (hence the name More). But I'm not able to tell where the sound is coming from. The Phonaks are better at that. And the Phonak allows me to hear for the first time the oven time on our kitchen stove. No other hearing aid has done that.

I"m sure I"ll think of more differences right after I hit the "send" button

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Thank you so much for this! I have the Phonak Audeo P90-R devices. While they pair seamlessly with my iPhone, with my new iMac (M1 chip) it hasn't been seamless at all. I often have to power them off and back on to get the computer to connect. Plus the sound quality isn't great with Zoom calls, although in part that's because I hear my voice from the other person's computer if they aren't wearing earbuds. At first Zoom didn't work at all with the HAs but then I learned I had to change a setting from active to fixed bandwidth.

I'm happy to report the hands free phone calls have gone well. It is indeed a double tap, not a double thump, perhaps they fixed that issue. Incoming calls go straight to the HAs, too. I don't know about background noise, though, I've only tested it while inside our quiet house. Even before HAs, I generally avoided using my cellphone for calls because the coverage isn't great here. Luckily our phones and my headset work fine with the HAs acting as simple sound enhancers rather than Bluetooth receivers.

The app is definitely slow to connect to the HAs. Interesting about the mute feature.

Thanks again, you've given me a lot to consider.

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I should have added that at first my phone audio was scratchy. I contacted Phonak and they said that was a known problem with iPhone 11,12, and SE which was fixed with new firmware which my hearing aids did not have. So back to the audiologist for new firmware (they can't do that remotely)

The new firmware fixed the problem with phone audio, but I had to go back are re-pair everything.

The Phonaks have a lot more automatic compensating going on. I can hear it kick in and out a lot. Maybe it is because the hearing aids are still "learning" my environment and trying to compensate for all the different conditions. I think that is expected.

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@christyj

I would love to hear the pros and cons of both, thank you!

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I have Oticon More rechargeable hearing aids for my severe hearing loss. I was hesitant about rechargeables because my sister had an earlier version a few years ago and by 3:00 pm they were dead and she had to recharge. Needless to say, that wouldn't be acceptable. I put my hearing aids in as early as 5:30 am and wear them as long as to 11:00 pm and have never run out of charge. I take the charger with me when we travel, of course. I have become so used to them that I've forgotten what a hassle it is to have to change batteries before I go to a meeting or concert or event, so I'm not caught having to change them in the process. I've never been in a position where I went beyond that time span, but would have to think seriously about how to address that if I'm ever in that position.

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@christyj

This is what I wondered also, Julie! Imagine traveling a long distance and having your HAs be dead by the time you arrived.

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Technology keeps getting better, but also more confusing for so many older people with hearing loss. Having batteries go dead has always been a major concern of mine. I've been using hearing aids for many decades, and have kind of grown along with much of the new technology. As a bimodal user of both a cochlear implant processor and a hearing aid, I've had to stay on top of things. However, I am not yet upgraded with the CI to some of the more recent innovations.

One thing that has interested (and confused) me, is when my husband who is now using hearing aids, starts talking. Typically, I look his way, but he doesn't look my way. It takes me a minute to realize he's answered a phone call via his hearing aids. Prior to this, I would usually hear his cell phone ring and know he had an incoming call. Just saying, it's kind of weird.

My cochlear processor has rechargeable batteries. I like that, but there are times I prefer using disposables. Over time, the rechargeables do lose power and although they charge, the charge time gets shorter. These batteries are removable units that charge when they are off the processor. I know that new rechargeable hearing aids do not separate from the battery compartment, and have to be fully placed in their chargers. I can order a new rechargeable battery for my CI processor, although quite costly. ($150+), so I can replace that old one. What does someone do when their hearing aid rechargeables die? Seems to me the entire aid would have to be sent in to be fixed. Being without my hearing devices for days would make me nuts. Can the audiologists fix them at their office?

My Cochlear processor has an option that has been a lifesaver. As a separate 'add on', I have what I've been told is called a 'battery cage'. It allows me to insert disposable batteries into a small sleeve/cage and use that rather than the rechargeable. Strangely, it is not considered a standard piece of tech that comes with the CI processor and must be purchased separately.

Like I said, tech is amazing, but it's very confusing for many who need to use it.

I hope others will share their personal experiences.

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