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After Keytruda, what's next?
@merpreb ...Hi, my name is Elizabeth. 31 yrs old.I was diagnosed with stage IV nsclc in April. I saw your story on here and it has given me hope. I'm currently on keytruda. Unfortunately my oncologist at this time says there is no cure and that keytruda can only be administered for 2 years. That she is only helping me live longer at this point because there is no cure. I did have taxol and carboplatin (4 rounds). My tumors have shrunk. But when I ask the dr "what next after 2 years of keytruda she says we'll wait and see. It's sort frustrating. I have to ask. What was your treatment?? Because the 5 year mark almost sounds impossible from what my dr states. Or if anyone else here knows of any new treatments.
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I have not had skin rash but do know that is a side affect. I do have rash (Dr. calling a fungus) on hair. Taking three kinds of shampoo and one liquid leaving on scalp overnight and the itching and scraps are going away. My Dr always asked if I had rash. Good luck.
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3 Reactions@lindacarol - Welcome to Mayo Clinic Connect Linda. I am glad that you found us. May I ask how long you have been on Keytruda? Itching seems to be a common side effect of Keytruda. Have you been given anything for relief?
Here is some information about Keytruda and possible side effects
https://www.mayoclinic.org/drugs-supplements/pembrolizumab-intravenous-route/side-effects/drg-20122552
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1 Reaction@lindacarol- Hello. I am wondering if you ever found a solution to your itching from Keytruda?
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1 ReactionYes! Went to dermatologist. She Had me put Fluocinonide on scalp every night for a week. Each morning had to shampoo with ketoconazole, second day t/sal and third day selson blue. Second week only twice a week. It worked.
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1 Reaction@lindacaro- Have you tried the shampoos that @richcolleen mentioned?
My bf has hpv16 head and neck cancer squamous cell carcinoma. The source was back of throat, to left side of neck. Had surgery to remove source and lymph’s on both sides of neck. Followed by 6 weeks of proton radiation(5 days a week) with 6 weeks of cisplatin (once a week). 98% cure. 3 months later pet scan and cancer traveled to windpipe. He was placed on Keytruda, which will he 1 yr in Sept. He also was told her can only be on Keytruda for 2 yrs.
He has terrible side effects. Bad balance, diarrhea for 4 months, headaches, drops things, etc. Does anyone have bad side effects, and do these side effect go away after you off Keytruda.
He has been told they will not take him of Keytruda unless the Keytruda stops working of it attacks his organs. Doesn’t sound promising. He goes not know anyone that has this cancer do he doesn’t know what to expect.
To stop itching from Keytruda. Use Dermae Tree Tea and vitamin E relief cream, get it at sprouts. It totally works
Derma e works. Get at sprouts. It’s tree tea & vitamin e relief creme
My husband has had lots of chemo and along with it worsening chemo brain. Currently he’s off chemo. Any recommendations to help with the chemo brain? Thank you.
I Started KEYTUDA yesterday, Dr said nothing like Chemo! HA! Well the laundry list of side affects can scare the hell out of you! I just finished 10 shots of radiation!
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