1. < Lung Cancer

After Keytruda, what's next?

Posted by liz8716 @liz8716, Aug 28, 2019

@merpreb ...Hi, my name is Elizabeth. 31 yrs old.I was diagnosed with stage IV nsclc in April. I saw your story on here and it has given me hope. I'm currently on keytruda. Unfortunately my oncologist at this time says there is no cure and that keytruda can only be administered for 2 years. That she is only helping me live longer at this point because there is no cure. I did have taxol and carboplatin (4 rounds). My tumors have shrunk. But when I ask the dr "what next after 2 years of keytruda she says we'll wait and see. It's sort frustrating. I have to ask. What was your treatment?? Because the 5 year mark almost sounds impossible from what my dr states. Or if anyone else here knows of any new treatments.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Merry, Alumni Mentor | @merpreb | Jul 24, 2020
In reply to @meka "Gosh, I hope you hear from them soon, no need for pain. With you in thoughts,..." + (show)
@meka

Gosh, I hope you hear from them soon, no need for pain. With you in thoughts, hugs, etc. Stay in touch as you are able, Jill, akaMeka

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ah, ha- A first name! xxoo

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shortshot80 | @shortshot80 | Jul 26, 2020
In reply to @richcolleen "No. Only two of the test were positive for RA. Another taught it was Soto gout...." + (show)
@richcolleen

No. Only two of the test were positive for RA. Another taught it was Soto gout. My primary Dr thinks it’s inflamed arthritis. Am agreeing with here. Yesterday met with oncologist and he decided it wasn’t soto gout. He put me on 10 mg prednisone daily.

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COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

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2 replies
richcolleen | @richcolleen | Jul 26, 2020

🙏🏻 Prayers coming your way!

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Merry, Alumni Mentor | @merpreb | Jul 27, 2020
In reply to @shortshot80 "COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR..." + (show)
@shortshot80

COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

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@shortshot80- Nancy, I wish that I could hold you and hug you. I wish you a wonderful and sensitive person to help make you comfortable and will help you ease you into your journey. You have been a wonderful friend, a writer friend, and a sympathetic ear to all of us who have become your Connect family. It has been an honor to know you and I will always remember you on your Dory going out to sea. My love to you Nancy!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 27, 2020
In reply to @shortshot80 "COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR..." + (show)
@shortshot80

COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

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Dear Nancy @shortshot80, thank you for finding the energy to write to your virtual friends at Mayo Clinic Connect. I'm also tagging Teresa @hopeful33250 so she sees your message.

I love @merpreb's image of you gently swaying on the waves in your Dory. I hope that you can capture that image and be comforted by it. May you be pain free and at peace my friend. Sending you a gentle embrace. Your cyber friend, Colleen

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 28, 2020

Dear Nancy @shortshot80
We will miss your lovely posts! I will pray that this journey you are taking will be comfortable and that you will be surrounded by your family and good friends. Please know that those of us on Connect have loved and appreciated your courage and statements of faith and hope! Thank you for being part of our circle of friends. Your cyber friend, Teresa

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meka | @meka | Jul 28, 2020

Thank you for sharing so much of your being and life. I to Invision you on your dory and hope a gentle, pain free trip to your next adventure, hugs!

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 13, 2020
In reply to @shortshot80 "SHORTSHOT NANCY.... NO I HAVE NOT TAKEN THAT. I AM NOT ON HOSPICE YET, HAVE TO..." + (show)
@shortshot80

SHORTSHOT NANCY.... NO I HAVE NOT TAKEN THAT. I AM NOT ON HOSPICE YET, HAVE TO WAIT A COUPLE WEEKS.NANCY

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@shortshot80 Hello Nancy,
I hope you have been able to get some pain relief from Hospice by now. Praying for you!

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1 reply
Merry, Alumni Mentor | @merpreb | Aug 14, 2020
In reply to @hopeful33250 "@shortshot80 Hello Nancy, I hope you have been able to get some pain relief from Hospice..." + (show)
@hopeful33250

@shortshot80 Hello Nancy,
I hope you have been able to get some pain relief from Hospice by now. Praying for you!

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I'm thinking of you too Nancy. I hope that you are resting peacefully and pain-free.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 24, 2020

Hi everyone,
I would like to share a message that I received from a family member of @shortshot80 (Nancy).
"She recently stopped radiation treatments. The five hour round trip is just too much for her to get to and from radiation. She is in hospice. This group has been so good for her and she appreciates so much all the support. Could you please let everyone know in her group what she has decided? Thank you!!" D.

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