Antibody tests and vaccinations in transplants

Posted by joko @joko, Jul 15, 2021

Following Johns Hopkins study on transplants vaccinations discussions on here. I got Moderna shots in Jan/Feb. 2021. After all the studies and discussions, got the antibody test on 7/11/21. It came back "Reactive" with H in the H/L or High/Low patient website results. My doctor said I had either had some contact with coronavirus* or the vaccinations were working. All of this is very confusing. There is no telling what level of protection it affords. Best advice comes from MD Andersen for cancer patients and antibody tests which follows: https://www.mdanderson.org/cancerwise/what-do-negative-positive-antibody-test-results-mean-after-a-covid-19-vaccine.h00-159459267.html#.YO3UTFkdgjQ.mailto

*My wife and I cruised Pacific islands Aus/NZ in Nov. 2019. Caught what they thought was adenovirus on ship. Or so they called it. We both were deathly ill. Hers went to her lungs and lasted for months. No one in the States knew anything about Covid in early 2020 so I wonder if we didn't have Covid.

Interested in more discussions like this? Go to the Transplants Support Group.

Lori, Volunteer Mentor | @loribmt | Aug 14, 2021

In reply to @azdan99 "How do we identify ourselves as transplants? I don't have an ID. Bring our bottle of..." + (show)

That’s a really great question!! How do we prove we’re immune compromised??!!!

Taking the prescription bottle of Tacro (or any other immunosuppressive) with your name on it would be a really good option. It’s what’s compromising your immune system.

I have a ‘birth certificate’ from my bone marrow transplant! LOL

I’m eager to hear some other options for proof. Do we even need it?

Rosemary, Volunteer Mentor | @rosemarya | Aug 14, 2021

In reply to @azdan99 "How do we identify ourselves as transplants? I don't have an ID. Bring our bottle of..." + (show)

I need to get the Pfizer vaccine because my 1st and 2nd shots were Pfizer. My local CVS pharmacy did not have information yesterday. But today I called again and the vaccination recording said that immunocompromised patients could walk in or schedule a 3rd dose. I could not get connected to a real person with my own question about proof of immunosuppression. So I tried the web site to schedule. I filled our the online application and the first page asked if I was in the immunocompromised category that was approved by CDC. A click on YES was all I needed. A series of questions followed about my last dose, my allergies, etc.
I am scheduled for 11:00 AM Monday.

Dana, Volunteer Mentor | @danab | Aug 14, 2021

In reply to @azdan99 "How do we identify ourselves as transplants? I don't have an ID. Bring our bottle of..." + (show)

If you have a Mayo portal access it's listed in your conditions may work also

athenalee | @athenalee | Aug 14, 2021

In reply to @loribmt "That’s a really great question!! How do we prove we’re immune compromised??!!! Taking the prescription bottle..." + (show)

Well. I have to say Lori that having a birth certificate for your new bone marrow is really cool. But don’t you wear a medical bracelet? It’s recommended for solid organ transplant recipients. So, I wear mine whenever I go out.

Lori, Volunteer Mentor | @loribmt | Aug 14, 2021

In reply to @athenalee "Well. I have to say Lori that having a birth certificate for your new bone marrow..." + (show)

Lol. Yes, indeedy, I have my transplant jewelry. 😅 Used to be that Diamonds are a girl’s best friend.

azdan99 | @azdan99 | Aug 14, 2021

In reply to @danab "If you have a Mayo portal access it's listed in your conditions may work also" + (show)

I do not use Mayo, but i do have records at the VA. No problem if i go to the VA, but that is a 1.5 hour trip each way from where i live. Safeway is 10 minutes away.