Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Hi @littlenoise You’re spot on that the all side effects from the vaccine and the actual Covid-19 virus are still unknown. Since this is still a new virus with multiple variants continuing to develop, it will be years before we can get clear data. The vaccine is proving to be an incredibly powerful tool in our fight to get this pandemic under control and the data that is available is showing no more side effects for this vaccine than our routine flu vaccinations. It’s just that it’s new and therefore controversial.
I also had some re-emerging neurological symptoms with my first vaccine. After extensive testing with my transplant team and neurologist at Mayo, I was cleared to get my second dose. The threat of actually getting the virus still completely outweighed possible compilations from the vaccine. The 2nd shot went off without a hitch and all my symptoms disappeared in a few weeks.
From reading other posts from @bustrbrwn22 I believe this particular post was an attempt at sarcasm which doesn’t always translate well in a written forum.
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1 ReactionHi! I feel like I’m in the same boat.
I got the Pfizer vaccine 4 days ago. Literally hours later, I started experiencing tingling and sensitivity right above my bum that radiates into the lower back. It is still there. The next day I started getting this weird prickling, tingling feeling in all different areas of my body from head to toe.
@janinem and @bmum30, welcome to Mayo Clinic Connect. As you can see, several people on this forum have reported neuropathy-like symptom following the COVID vaccine. This side effect may or may not have been induced by the vaccine. Anecdotal evidence is extremely important to track and I encourage you to report your side effects to the Vaccine Adverse Event Reporting System (VAERS) https://vaers.hhs.gov/ if you live in the US. For people outside the US, contact your national health authority.
With the delta variant, fully vaccinated is better protection that a single dose.
As you read the stories here, you'll see that some people's side effects actually resolved or improved with the second dose. Bottom line: no two people are exactly alike and you should consult your doctor or local health authority for recommendation on the second dose.
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3 Reactionseh, I believe that was sarcasm.
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1 ReactionAll the vaccine can create this symptom as we saw on Medscape... you are likely to have even more problems with the others on the market. My doctor and neurologist advised me to wait. A university hospital in Berlin established the reason why some of us have neurological issues and are working on a more passive vaccine where these responsible antigens attaching to our nerve cells would be removed from the vaccine.
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2 ReactionsNance, can you please provide links to the article from Medscape and the paper from the university hospital in Berlin that you reference in your latest post?
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1 Reactionhttps://www.charite.de/service/pressemitteilung/artikel/detail/covid_19_berliner_forschende_legen_grundstein_fuer_eine_passive_impfung/
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1 ReactionWow! That is fabulous information. Thank you. I’m a liver transplant recipient, but will not get a booster as my neuropathy definitely increased after receiving the initial Covid vaccinations. So, this research may offer some hope.
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1 ReactionHopefully. I am a previous GBS sufferer. My Doctor and neurologist told me not getting 2nd dose for now. So sad. I wanted to feel less scared of Covid and regain some freedom...
Good luck and stay safe!
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1 ReactionYou too. I’m fortunate to live in Vermont, but new cases are rising here. Plus, we have a lot of tourists. So, back to masking outdoors…
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