Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for littlenoise @littlenoise

What does this mean? Since it's relatively new, how can it "never" be? Seems to me that the side effects, as evidenced in this thread, are still somewhat unknown.

I'm not here to say that the vaccine IS the culprit, but the coincidence deserves some investigation.

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Hi @littlenoise You’re spot on that the all side effects from the vaccine and the actual Covid-19 virus are still unknown. Since this is still a new virus with multiple variants continuing to develop, it will be years before we can get clear data. The vaccine is proving to be an incredibly powerful tool in our fight to get this pandemic under control and the data that is available is showing no more side effects for this vaccine than our routine flu vaccinations. It’s just that it’s new and therefore controversial.

I also had some re-emerging neurological symptoms with my first vaccine. After extensive testing with my transplant team and neurologist at Mayo, I was cleared to get my second dose. The threat of actually getting the virus still completely outweighed possible compilations from the vaccine. The 2nd shot went off without a hitch and all my symptoms disappeared in a few weeks.

From reading other posts from @bustrbrwn22 I believe this particular post was an attempt at sarcasm which doesn’t always translate well in a written forum.

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Profile picture for nance78 @nance78

Hi everyone.
I got Moderna 1st shot on 27th of May. Experienced tingling in fingerscand face on same day than tingling in feet, legs and torso the following days. I got a rash on day 8, on the vaccinated arm.. then swollen lymphs nodes. I had 2 days without any tingling this w-e but tingling came back in the face today. I worry about taking 2nd dose. Very scary side effects and annoying no one is listing them

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Hi! I feel like I’m in the same boat.
I got the Pfizer vaccine 4 days ago. Literally hours later, I started experiencing tingling and sensitivity right above my bum that radiates into the lower back. It is still there. The next day I started getting this weird prickling, tingling feeling in all different areas of my body from head to toe.

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Profile picture for bmum30 @bmum30

Hi! I feel like I’m in the same boat.
I got the Pfizer vaccine 4 days ago. Literally hours later, I started experiencing tingling and sensitivity right above my bum that radiates into the lower back. It is still there. The next day I started getting this weird prickling, tingling feeling in all different areas of my body from head to toe.

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@janinem and @bmum30, welcome to Mayo Clinic Connect. As you can see, several people on this forum have reported neuropathy-like symptom following the COVID vaccine. This side effect may or may not have been induced by the vaccine. Anecdotal evidence is extremely important to track and I encourage you to report your side effects to the Vaccine Adverse Event Reporting System (VAERS) https://vaers.hhs.gov/ if you live in the US. For people outside the US, contact your national health authority.

With the delta variant, fully vaccinated is better protection that a single dose.

As you read the stories here, you'll see that some people's side effects actually resolved or improved with the second dose. Bottom line: no two people are exactly alike and you should consult your doctor or local health authority for recommendation on the second dose.

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Profile picture for littlenoise @littlenoise

What does this mean? Since it's relatively new, how can it "never" be? Seems to me that the side effects, as evidenced in this thread, are still somewhat unknown.

I'm not here to say that the vaccine IS the culprit, but the coincidence deserves some investigation.

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eh, I believe that was sarcasm.

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Profile picture for janinem @janinem

Hi, I know I'm late to the party here but I'm trawling through the internet trying to get answers after my first dose of Pfizer. As far as I'm aware I have no underlying health conditions and no neuropathic events in the past. Within 36 hours of receiving the vaccine I started with a range of strange neuropathic symptoms. 3 weeks on the pins and needles, numbness and pain have gone but I'm left with a mild tremor, a very sensitive mouth, slightly blurred vision and red palms. My doctor has advised me not to get the second dose of Pfizer but mentioned maybe getting another vaccine. I'm quite reluctant without actually knowing what happened with that first dose and whether the effects are lasting

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All the vaccine can create this symptom as we saw on Medscape... you are likely to have even more problems with the others on the market. My doctor and neurologist advised me to wait. A university hospital in Berlin established the reason why some of us have neurological issues and are working on a more passive vaccine where these responsible antigens attaching to our nerve cells would be removed from the vaccine.

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Profile picture for nance78 @nance78

All the vaccine can create this symptom as we saw on Medscape... you are likely to have even more problems with the others on the market. My doctor and neurologist advised me to wait. A university hospital in Berlin established the reason why some of us have neurological issues and are working on a more passive vaccine where these responsible antigens attaching to our nerve cells would be removed from the vaccine.

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Nance, can you please provide links to the article from Medscape and the paper from the university hospital in Berlin that you reference in your latest post?

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Wow! That is fabulous information. Thank you. I’m a liver transplant recipient, but will not get a booster as my neuropathy definitely increased after receiving the initial Covid vaccinations. So, this research may offer some hope.

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Profile picture for athenalee @athenalee

Wow! That is fabulous information. Thank you. I’m a liver transplant recipient, but will not get a booster as my neuropathy definitely increased after receiving the initial Covid vaccinations. So, this research may offer some hope.

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Hopefully. I am a previous GBS sufferer. My Doctor and neurologist told me not getting 2nd dose for now. So sad. I wanted to feel less scared of Covid and regain some freedom...
Good luck and stay safe!

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Profile picture for nance78 @nance78

Hopefully. I am a previous GBS sufferer. My Doctor and neurologist told me not getting 2nd dose for now. So sad. I wanted to feel less scared of Covid and regain some freedom...
Good luck and stay safe!

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You too. I’m fortunate to live in Vermont, but new cases are rising here. Plus, we have a lot of tourists. So, back to masking outdoors…

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