Bronchiectasis: Is nebulizing helpful?

Posted by gej53 @gej53, Aug 8, 2021

Hi guys, hope I am posting this right. I have had bronchiectasis and have been nebulizing for two years now. A friend recently visited and said she has a history of pneumonia seven times and saw bronchiectasis on her scan. However, she does not nebulize. I was pretty surprised. Makes me wonder, is mine worse that hers on an xray? Is her doc remiss in not ordering her to nebulize? Does not everyone nebulize who has bronchiectasis? Any thoughts? Thanks so much.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@tampamac

I am new to this forum as of June. At that time I was diagnosed with my 3rd flare of MAC. I felt like I was on the brink of death. After reading Don's post about 7% saline I started twice daily and have not looked back. My lungs feel clear, cough is gone, and my chest pain has resolved. I will also say I am a health care provider and realize just how little is know about management of this disease in the medical community. I find that I am educating my colleagues. Thank you for this forum, Sue's great moderation to keep it scientifically based, and all the encouragement from others!

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I just found out I have it.
I’m trying to Not take any antibiotics and work on my immune system. My infectious disease Dr seems ok with this right now.
I play tennis 4 times a week, golf and have a high energy level. So far, so good. Scary stuff.

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@ulavon2020

I just found out I have it.
I’m trying to Not take any antibiotics and work on my immune system. My infectious disease Dr seems ok with this right now.
I play tennis 4 times a week, golf and have a high energy level. So far, so good. Scary stuff.

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Good Morning and welcome to Mayo Connect, a community of people living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice. We can tell you what has worked for us (or not) and provide you with information and conversation about your questions.

As you may have learned by now, MAC and Bronchiectasis are considered rare diseases, and it can be hard to find a doctor familiar with treatment. It sounds like you were fortunate to find an ID doc to diagnose you.

Can you tell us a little about your diagnosis, and what led you to Connect? Did the doctor offer any suggestions to help you manage the infection, like inhalers, nebulizer or airway clearance?

The group here is knowledgeable and caring, with a great deal of experience in dealing with all the details, so ask away if you have any questions for us!
Sue

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@gej53

I prefer in the morning when I get up and later afternoon before dinner. Mainly though, I find something to do I enjoy while nebulizing 🙂 I check this forum for information, browse the internet or read a book. Makes it much more enjoyable to find something you like while nebulizing.....

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In reply to @spencersok … I am a nebulizer first thing in the morning and then late afternoon before dinner. I am an IPad fan, so I read the news in the morning, play games, read or go through some of my emails in the afternoon. I consider it “me” time to put a more positive spin on the whole thing!

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@migizii

In reply to @spencersok … I am a nebulizer first thing in the morning and then late afternoon before dinner. I am an IPad fan, so I read the news in the morning, play games, read or go through some of my emails in the afternoon. I consider it “me” time to put a more positive spin on the whole thing!

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Migzii, you said, “ consider it my time.”
Reminds me of the “genius” that shines through the timely aphorism “if the World deals you lemons, make lemonade.”
You’ve cultivated a positive attitude. Good goin.” Don

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@thumperguy

Migzii, you said, “ consider it my time.”
Reminds me of the “genius” that shines through the timely aphorism “if the World deals you lemons, make lemonade.”
You’ve cultivated a positive attitude. Good goin.” Don

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And Migzii, you said “me” not “my”(time). Sorry for the misquote. Don

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@gej53

Just curious, as a health care provider are you a physician? My general practitioner defers most of my questions/care/treatment to my pulmonologist. As an RN I knew nothing about MAC. Is that your case? None of my co-workers were familiar with it either. You are right, we are educating others!

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I am: a surgeon in fact so @thumperguy has a long way to go before the narcicism can ruffle my feathers. Lol.

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@poodledoc

I have my nebulizer set up at my computer desk which gives me something to do while nebbing the 7% saline. I also wear over the ear wireless headphones and listen to music at the same time. The headphones also helps to drown out the loud sound from that noisy little machine. I neb before breakfast and dinner so there is less chance of inhaling tiny bits of food that might be left over in my throat after a meal. Bill

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thank you for mentioning that you nebulize before eating. I do that in the morning but during the evening I nebulize after dinner-a half hr to one hr later, then go to sleep. But what you said makes sense I sometime think i have acid reflux and sometime burp so the thought of food going into the lungs is a consideration. Wonder if others could comment on nebulizing habits.

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@halford

thank you for mentioning that you nebulize before eating. I do that in the morning but during the evening I nebulize after dinner-a half hr to one hr later, then go to sleep. But what you said makes sense I sometime think i have acid reflux and sometime burp so the thought of food going into the lungs is a consideration. Wonder if others could comment on nebulizing habits.

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Yeah Hauoli, I’ve unwittingly been mimicking you. Indeed I’m suckin’ the salty vapor as my finger does a sluggish dance over the keyboard.

Soon this gnarly 82 year old Bod will repair to its bedroom and launch into near paroxysmal coughing for a spell, accompanied by the usual moist discharges from a couple of facial orifices. (Disgusting! Hope you’ve finished supper. Hope we’ll all be around to do it again tomorrow. Don

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@thumperguy

Yeah Hauoli, I’ve unwittingly been mimicking you. Indeed I’m suckin’ the salty vapor as my finger does a sluggish dance over the keyboard.

Soon this gnarly 82 year old Bod will repair to its bedroom and launch into near paroxysmal coughing for a spell, accompanied by the usual moist discharges from a couple of facial orifices. (Disgusting! Hope you’ve finished supper. Hope we’ll all be around to do it again tomorrow. Don

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Quick! Someone put up a post. I’m replying to myself. I’m liable to start spinning yarns again if this keeps up. Don

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I was diagnosed in 2017 with Bronchiectasis MAC. I do not nebulize. I have discussed this with my pulmonologist several times and he says the same thing every time....... it isn't necessary. He states as long as I use my inhaler prior to using my Smart Vest and doing my lung clearance, it results in the same as using a nebulizer. Clearing the lungs. I've questioned this theory myself, however. Most people I've read on this post uses nebulizing as part of their keeping MAC at bay and also keeping lungs clear. So...... I'm confused, too!

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