Bronchiectasis: Is nebulizing helpful?
Hi guys, hope I am posting this right. I have had bronchiectasis and have been nebulizing for two years now. A friend recently visited and said she has a history of pneumonia seven times and saw bronchiectasis on her scan. However, she does not nebulize. I was pretty surprised. Makes me wonder, is mine worse that hers on an xray? Is her doc remiss in not ordering her to nebulize? Does not everyone nebulize who has bronchiectasis? Any thoughts? Thanks so much.
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
I just found out I have it.
I’m trying to Not take any antibiotics and work on my immune system. My infectious disease Dr seems ok with this right now.
I play tennis 4 times a week, golf and have a high energy level. So far, so good. Scary stuff.
Good Morning and welcome to Mayo Connect, a community of people living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice. We can tell you what has worked for us (or not) and provide you with information and conversation about your questions.
As you may have learned by now, MAC and Bronchiectasis are considered rare diseases, and it can be hard to find a doctor familiar with treatment. It sounds like you were fortunate to find an ID doc to diagnose you.
Can you tell us a little about your diagnosis, and what led you to Connect? Did the doctor offer any suggestions to help you manage the infection, like inhalers, nebulizer or airway clearance?
The group here is knowledgeable and caring, with a great deal of experience in dealing with all the details, so ask away if you have any questions for us!
Sue
In reply to @spencersok … I am a nebulizer first thing in the morning and then late afternoon before dinner. I am an IPad fan, so I read the news in the morning, play games, read or go through some of my emails in the afternoon. I consider it “me” time to put a more positive spin on the whole thing!
Migzii, you said, “ consider it my time.”
Reminds me of the “genius” that shines through the timely aphorism “if the World deals you lemons, make lemonade.”
You’ve cultivated a positive attitude. Good goin.” Don
And Migzii, you said “me” not “my”(time). Sorry for the misquote. Don
I am: a surgeon in fact so @thumperguy has a long way to go before the narcicism can ruffle my feathers. Lol.
thank you for mentioning that you nebulize before eating. I do that in the morning but during the evening I nebulize after dinner-a half hr to one hr later, then go to sleep. But what you said makes sense I sometime think i have acid reflux and sometime burp so the thought of food going into the lungs is a consideration. Wonder if others could comment on nebulizing habits.
Yeah Hauoli, I’ve unwittingly been mimicking you. Indeed I’m suckin’ the salty vapor as my finger does a sluggish dance over the keyboard.
Soon this gnarly 82 year old Bod will repair to its bedroom and launch into near paroxysmal coughing for a spell, accompanied by the usual moist discharges from a couple of facial orifices. (Disgusting! Hope you’ve finished supper. Hope we’ll all be around to do it again tomorrow. Don
Quick! Someone put up a post. I’m replying to myself. I’m liable to start spinning yarns again if this keeps up. Don
I was diagnosed in 2017 with Bronchiectasis MAC. I do not nebulize. I have discussed this with my pulmonologist several times and he says the same thing every time....... it isn't necessary. He states as long as I use my inhaler prior to using my Smart Vest and doing my lung clearance, it results in the same as using a nebulizer. Clearing the lungs. I've questioned this theory myself, however. Most people I've read on this post uses nebulizing as part of their keeping MAC at bay and also keeping lungs clear. So...... I'm confused, too!