Hi Rosemary Just got back from Mayo after 3 days. For me the messge was stay the course with SIBO treatment after twisted colon surgery (which removed by cecal valve). This might be a chronic situation for me. I also have Sjogrens but dont treat it with immunosuppresants as I dont like them ( personal choice). I will say a prayer for you to get answers after 7 years. I have only dealt with this for 2 years now. Sounds like you have done so much to try and figure this out. Hang in there. I dont think they do the Trio Breath Test at Mayo. I asked about it as well. That would probably be through a functional practictioner but Mayo should definitely be able to do an endoscope that goes into the intestines and takes a biopsy/culture. Have you had one of those done yet? I am wishing you all the best. Remember to be your own advocate. If you think there are other doctors you need to see there besides GI for various symptoms do not hesitate to ask. This is your shot to figure it all out so be brave, be strong and politely demanding. They are there to help you!!! Keep us posted.

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