Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for John, Volunteer Mentor @johnbishop

Hi @sam90, Welcome to Connect. Thanks for sharing your reactions to the Moderna vaccine. Did you also report it on the VAERs site? https://vaers.hhs.gov/reportevent.html

Jump to this post

I did and they have been in contact with my doctors

REPLY

I had similar symptoms . My doctor suggested I stay away from foods that cause inflammation and gluten . It helped !!! Now I only get the tingles and burning sporadically . Hope this helped

REPLY
Profile picture for chloeb2 @chloeb2

I had similar symptoms . My doctor suggested I stay away from foods that cause inflammation and gluten . It helped !!! Now I only get the tingles and burning sporadically . Hope this helped

Jump to this post

Hi @chloeb2, thanks for sharing and certainly hope that the burning subsides.

REPLY
Profile picture for chloeb2 @chloeb2

I had similar symptoms . My doctor suggested I stay away from foods that cause inflammation and gluten . It helped !!! Now I only get the tingles and burning sporadically . Hope this helped

Jump to this post

Could you please name some of the foods you're avoiding? Thanks.

REPLY
Profile picture for deanna2 @deanna2

Could you please name some of the foods you're avoiding? Thanks.

Jump to this post

@deanna2, It might be easier to focus on the foods that fight inflammation 🙂

Foods that fight inflammation - Harvard Health: https://www.health.harvard.edu/staying-healthy/foods-that-fight-inflammation

REPLY

Update: podiatrist had no referral for me yet. She's still searching. Because I had my dorsal sympathectomy almost 35 years ago, it was definitely cutting edge and the procedure has changed significantly over the years. The fact that my feet sweating has abated with the onset of the peripheral neuropathy has her stumped. Because the gabapentin has actually reduced some of the burning and numbness, she increased my dosage to 2 100 mg capsules 3 times daily.

On another front, I went back to my GP to discuss. Because my feet are also increasing in pain from sitting on the toilet (who knew there was a thing called toilet sciatica?), he wants to try prednisone as a chance to rule out a pinched nerve issue. I started a course of 60 mg for 3 days. 40 mg, 2 days, tapering for 1 week. His thought is that of I get some relief from that, we'll at least be able to confirm or rule out something.

In the meantime, I'm have a pretty full on headache... joy of joys. Now pain tip to tip!

We'll see and I'll keep you posted.

Good luck to everyone going through this. My problem is more annoying than anything. I've got it so much better than most. I'm just worried that, over time, it's gonna get worse.

Thanks for listening.

REPLY
Profile picture for deanna2 @deanna2

Could you please name some of the foods you're avoiding? Thanks.

Jump to this post

I stayed away from EVERYTHING that causes inflammation :
Sugar
Carbs
Alcohol
**gluten , I have a sensitivity towards it

After the change in diet , things got better

REPLY

Update:

I almost feel bad reporting this good news since so many of you are continuously suffering.

Prednisone seems to be helping. After only 2 days of taking 60 mg daily (still have 5 days to go), I can feet my feet! I weirdly have tightness in my upper calf (that's new), but very little lingering tingling or numbness in my feet.

Still don't know the root cause. Could be pinched nerve, inflammation from vaccine, etc. Either way, knowing it can reverse is amazing. I was fearful that whatever was happening was permanent and would only continue to crawl up my legs and worsen.

Thank you for the support. I'll continue to update as I finish my week of prednisone.

REPLY
Profile picture for littlenoise @littlenoise

Update:

I almost feel bad reporting this good news since so many of you are continuously suffering.

Prednisone seems to be helping. After only 2 days of taking 60 mg daily (still have 5 days to go), I can feet my feet! I weirdly have tightness in my upper calf (that's new), but very little lingering tingling or numbness in my feet.

Still don't know the root cause. Could be pinched nerve, inflammation from vaccine, etc. Either way, knowing it can reverse is amazing. I was fearful that whatever was happening was permanent and would only continue to crawl up my legs and worsen.

Thank you for the support. I'll continue to update as I finish my week of prednisone.

Jump to this post

Thank you for the update. I have chronic inflammation, experienced a huge flare with the Pfizer vaccine, and had the same experience - prednisone calmed it down.
Sue

REPLY

Can anyone tell me if any data now exists as to which brand of Covid vaccine is most likely to cause neuropathy symptoms or make existing ones worse?

REPLY
Please sign in or register to post a reply.