Living with Neuropathy - Welcome to the group

Oh, and I hardly claim sanity lol, but the honest truth of the matter is that the Lord above is my only source of living hope. Otherwise, I wouldn’t have made it past the age of 8 … truly.

Hi Karen, The splint is called "Elbow Support" It's made by IMAK - RSI. brownmed.com. It's about 12" long and about 4" in diameter. The diameter is adjustable. The doctor had it in his office, so it must be popular for him to keep them in his office. I believe it cost around $20.00.
BillU

Hi Karen. I just entered brownmed.com and discovered they are carried by Walmart
If we opened the same Walmart page, It's blue, and the 4th item on the right.
BillU

I found the item, thanks so much for sending that info over. Will see what I can do!

Hi Karen, I'm glad you found the splint at Walmart. If Walmart has it that means it I must be used by lots of people. I do hope that helps you.
BillU

I’ve been dealing with polyneuropathy for last few years, I’m interested to find out if anyone has used Ketamine infusion therapy for treating chronic leg & feet pain related to polyneurophy.?

Hi @monk1015, While we wait for others who have experience with Ketamine infusions for chronic leg and feet pain, here are a few related discussions you might find helpful:

-- ketamine infusion and topamax??: https://connect.mayoclinic.org/discussion/ketamine-infusion-and-topamax/
-- Ketamine Infusion: https://connect.mayoclinic.org/discussion/ketamine-infusion/
-- Ketamine for chronic pain: https://connect.mayoclinic.org/discussion/ketamine-for-chronic-pain/

Have you discussed Ketamine infusion with your doctor?

Where should I begin? I'm 56 years old and currently living with (not dying from) Metastatic Breast Cancer (MBC). It is in remission currently for almost four years now. I had an earlier stage initially since late 2013. Now, after years of treatment I am being diagnosed with sensory neuropathy which so far oncologist does not feel is caused (solely at least) by the chemo drugs I've had through these years. She believes this because after stopping what we thought was the culprit, my symptoms only got worse despite many months of gabapentin.Now a neurologist is testing me further. I have an EMG scheduled for all four limbs as deep tendon reflexes are absent in all limbs. My pain, numbness, etc is terrible and the weakness especially in my lower legs (knee down) is affecting my entire life. I have learned to cope with a terminal cancer dx, but the limitations I have now has made facing each day a challenge. Even through cancer treatment, I hiked and stayed active. Now I am battling depression, anxiety, and fighting the urge to just sleep. Even typing this out is exhausting and difficult. I will know more next month about my dx. Just feel I may need a bit of guidance from people who are going through similar. Thank you

Hello @neverforsaken, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. No matter what type of neuropathy you have can give you those downer days. I have small fiber peripheral neuropathy but only have numbness as a symptom in addition to a few other autoimmune conditions. What has helped me is to learn as much as I can about the condition and possible treatments and therapies. You are definitely not alone as I'm sure there are other members here on Connect that can relate with what you are feeling.

You may want to read through some of the posts in the following discussions to learn what others have shared.
-- Sensory Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/sensenory-peripheral-neuropathy/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Here are two really good neuropathy sites for learning more about the condition and alternative treatments.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

You mentioned you have an EMG scheduled soon. If you have some questions you have been thinking about, you might consider making a list to take to your appointment with you so that you can discuss them with your doctor or neurologist. If you can prioritize your symptoms, which bothers you the most?

Turning Point - help??

So, I started having minor numbness in my feet 9 years ago, but never really bothered me except when it’s cold. Yesterday, my legs started feeling “off”, and now tonight my feet are burning and feels like 10,000 needles stuck inside them. Also, my legs are now on fire and numb up to my knees. I knew this could happen someday, but didn’t realize it’d be so sudden and ramped up! Is this normal for it to be acute versus gradual? Will it stay feeling like this or simmer down? How does anyone ever sleep or function like this without losing their sanity?? 🙁 ... any suggestions or thoughts?