1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

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olivesn | @olivesn | Jul 22, 2021
In reply to @joyg "Hi amtxo, I have experienced the internal tremors as well. It is in the back of..." + (show)
@joyg

Hi amtxo, I have experienced the internal tremors as well. It is in the back of my head, spine and hips. I have hashimotoe's (autoimmune thyroid disease) but not hypothyroid as of yet that I know of. I also experience neuropathy and weird imbalance issues like I am walking on sand or bouncing up and down really fast even though I am walking on normal ground and not bouncing! It's worse after using elevators and wearing heeled shoes. I have no diagnosis yet but I wanted to let you know that internal tremors I looked up may be harmless. I to do not know what causes it but I will keep you updated as I am undergoing test and treatments.

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Did they ever find out what it was/is? I am very curious as I have had this sort of thing now for a year. I have Hashimotos as well.

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jewles63 | @jewles63 | Jul 22, 2021
In reply to @olivesn "Are you on thyroid medication? I have Hashimotos as well, and have wondered if my 1/4..." + (show)
@olivesn

Are you on thyroid medication? I have Hashimotos as well, and have wondered if my 1/4 of my thyroid gland that is left was somehow triggered to make too much hormone, and this is being caused by too much thyroid hormone (but not Grave's disease. I am currently trying to see if taking enough hormone to suppress my own thyroid so that TSH is super-low will work, fingers crossed. But I have received literally 0 feedback or help from doctors.

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Yes I’m on 100 mg of leverthyroxine and I really don’t see any difference overall but in my numbers. My Dr wants my tsh to be as close to 0 as possible to slow the growth of the nodules in my thyroid gland… it makes her happy , lol.

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1 reply
olivesn | @olivesn | Jul 22, 2021
In reply to @jewles63 "Yes I’m on 100 mg of leverthyroxine and I really don’t see any difference overall but..." + (show)
@jewles63

Yes I’m on 100 mg of leverthyroxine and I really don’t see any difference overall but in my numbers. My Dr wants my tsh to be as close to 0 as possible to slow the growth of the nodules in my thyroid gland… it makes her happy , lol.

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interesting- yeah that's a thing- suppressing it. You still have shaking? Is it like internal tremors?

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1 reply
jewles63 | @jewles63 | Jul 23, 2021
In reply to @olivesn "interesting- yeah that's a thing- suppressing it. You still have shaking? Is it like internal tremors?" + (show)
@olivesn

interesting- yeah that's a thing- suppressing it. You still have shaking? Is it like internal tremors?

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I call it a vibration that’s throughout my whole body now . My neurologist is testing me with a skin punch biopsy to confirm small fiber neuropathy on 8/2/21. We will see !!!

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riflemanz64 | @riflemanz64 | Jul 23, 2021

Here is some more great info!
https://www.thyroidcancer.com/
Florida has some of the best Dr.s in the world.

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olivesn | @olivesn | Jul 23, 2021
In reply to @joyg "Hi amtxo, I have experienced the internal tremors as well. It is in the back of..." + (show)
@joyg

Hi amtxo, I have experienced the internal tremors as well. It is in the back of my head, spine and hips. I have hashimotoe's (autoimmune thyroid disease) but not hypothyroid as of yet that I know of. I also experience neuropathy and weird imbalance issues like I am walking on sand or bouncing up and down really fast even though I am walking on normal ground and not bouncing! It's worse after using elevators and wearing heeled shoes. I have no diagnosis yet but I wanted to let you know that internal tremors I looked up may be harmless. I to do not know what causes it but I will keep you updated as I am undergoing test and treatments.

Jump to this post

Did you ever find out what this was? I am dealing with what sounds very similar.

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olivesn | @olivesn | Jul 25, 2021

Did you ever figure out what this was?

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Valerie | @lacy2 | Jul 27, 2021

I have milder case of P.N. Last year started getting shaking inside and dr said called Internal Tremors.. could this be what it is?Cant see from outside but sure can feel them inside (along with a list of other illnesses I have), I wondered if its a medication i am on or one that i stopped taking? Eg withdrawal symptoms, even from such things as eye drops

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1 reply
olivesn | @olivesn | Jul 28, 2021
In reply to @lacy2 "I have milder case of P.N. Last year started getting shaking inside and dr said called..." + (show)
@lacy2

I have milder case of P.N. Last year started getting shaking inside and dr said called Internal Tremors.. could this be what it is?Cant see from outside but sure can feel them inside (along with a list of other illnesses I have), I wondered if its a medication i am on or one that i stopped taking? Eg withdrawal symptoms, even from such things as eye drops

Jump to this post

What is PN?

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