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Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Aug 1 2:55pm | Replies (92)

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@clora

I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few years and my original Derm did not feel I needed it as he would refer to my scalp burning as being “angry” due to many chemical allergies. Obviously this was wrong. I am not a candidate for Placquenil. My new Derm had me start with Doxycycline mono 100mg, twice daily for 3 months. Just recently it was reduced to 1-capsule daily. I was also given Clobetosol foam PRN. which temporarily calms the area. Since reducing the Doxy I have had more hair loss. Waiting to hear from my doc. Unfortunately from what I have read and been told there aren’t too many options for me.

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Replies to "I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few..."

Hello @clora and welcome to Mayo Clinic Connect. I am sorry to hear that you are struggling and not seeing improvement.

I found this article on lichen planus that may be of interest to you as you explore where to go from here:

- Turmeric - A new treatment option for lichen planus: A pilot study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961895/
Like everything, it would be recommended to discuss with your doctor first. Have you heard of Turmeric before?

Dear friend, I am sorry about your hair problems. I believe you are a woman like myself, and our hair is our treasure. You have my sympathy. I also have chemical allergies, and they have taken over ever area of my life, including hair, clothing, drugs, medical equipment, etc. Do you have similar problems? My doctors tell me there are no treatments or ways to reverse them. Is this the same for you? I don't know how I will get through life this way. Every day is such a struggle. Best of luck with your hair and your health. Sincerely, Julie