Any tips to help recovery for a COVID Long-Hauler?

Posted by Cilla21 @cilla21, May 13, 2021

I was diagnosed with COVID-19 at the end of Feb 2021. Nearly three months later, neither my taste nor smell has been fully restored. My husband also tested positive and was completely out of it for one full week. He could not even get out of bed. My case seemed to be mild. Though I felt ill, I was not bed-ridden nor did I feel debilitated. Most of my activities (household and work) were not halted. My husband has zero lingering effects from his infection, meanwhile I am still experiencing chills, headaches, fatigue, and body aches on and off weekly. Additionally, I'm undergoing testing for heart valve issues. It's becoming increasingly difficult to tolerate these lasting symptoms with no end in sight. Any suggestions/tips to aid in a faster recovery would be welcomed and very much appreciated.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Before taking supplements or off-label medications, always seek guidance of a qualified medical professional.
Here is the latest from the National Institutes of Health (NIH) on the use of Vitamin C (ascorbic acid) in patients with COVID-19 https://www.covid19treatmentguidelines.nih.gov/therapies/supplements/vitamin-c/

"Currently, there are insufficient data for the COVID-19 Treatment Guidelines Panel (the Panel) to recommend either for or against the use of vitamin C for the treatment of COVID-19 in critically ill and non-critically ill patients."

I find this website from the NIH highly useful for cross-referencing information that we see in traditional media, the internet and on social media. Here you'll find the current data on therapies being studied for the treatment of COVID-19, including supplements.
- COVID-19 Treatment Guidelines https://www.covid19treatmentguidelines.nih.gov/therapies/
- COVID-19 Supplement Therapies https://www.covid19treatmentguidelines.nih.gov/therapies/supplements/

As we all know, researchers and medical professionals are working hard to study and treat COVID and to help prevent infection. It is a constantly evolving situation. When you read something on the internet, do you due diligence and check multiple references from reputable sources.

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I cannot take Vit. C in large doses due to my CGM warns against large doses of Vitamin C. These Vitamins interfere with proper readings! CGM stands for Continuous Glucose Monitor! .

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@roselee403

I recommend seeing a naturopath, and not someone fresh out of school. Mine has helped tremendously. There are other viruses that are known to produce "post viral syndrome." It is not a brand new concept and coronaviruses have been around since the beginning of time. There are things that can help.

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I’m sorry to disagree with you, this Virus is brand new and man made from what I understand! I had the Covid Virus, Pneumonia and blood clots in both lungs and both legs! 74 years old, in the hospital and have Type 1 Diabetes! I have long haulers covid for 5 months now! Not your normal coronavirus!

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@theboss

I’m sorry to disagree with you, this Virus is brand new and man made from what I understand! I had the Covid Virus, Pneumonia and blood clots in both lungs and both legs! 74 years old, in the hospital and have Type 1 Diabetes! I have long haulers covid for 5 months now! Not your normal coronavirus!

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Hello @theboss. There is certainly a lot of information newly produced since COVID-19 entered the picture, however, I found an article that you may find interesting with regard to the history of coronavirus. Scientists actually identified the first human coronavirus in 1985, interestingly. At any rate, I thought this may be helpful as many people hear all about COVID-19 without realizing the connection and history it has.

-Coronavirus History:
https://www.webmd.com/lung/coronavirus-history

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Hello,

My mother (62 years old) had Covid twice- September and February. She was on the way to recovery. However, the last scan showed an area with .45 sm of fibrosis. Her doctor told her to come back in 6 months. However, she is concerned about it. She is sweating, has a brain fog. She does walk every day, swims and she does breathing exercises.
Is there is anything else she can do to improve her state?
Thank you.

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I am a physical therapist and have just had my first patient referred for COVID longhaulers symptoms. Are there any programs with established guidelines for cardiopulmonary progression that is different than a normal cardiac rehab program? Has anyone taken a class or seminar that they could recommend?

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@abennett

I am a physical therapist and have just had my first patient referred for COVID longhaulers symptoms. Are there any programs with established guidelines for cardiopulmonary progression that is different than a normal cardiac rehab program? Has anyone taken a class or seminar that they could recommend?

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Hi @abennett you had to receive the order from a physician in order to see the covid patient. Perhaps ask the doctor for what he or she is expecting. Since the physician has to approve your orders and agree with your treatment, the physician should provide some guidance. Wish you and your patient well.

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@abennett

I am a physical therapist and have just had my first patient referred for COVID longhaulers symptoms. Are there any programs with established guidelines for cardiopulmonary progression that is different than a normal cardiac rehab program? Has anyone taken a class or seminar that they could recommend?

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Hi @abennett, welcome. Mayo Clinic Connect is an online community where patients can connect with one another. You will find additional post COVID recovery information here:
- Post COVID Recovery blog https://connect.mayoclinic.org/blog/post-covid-recovery/
- COVID for providers https://www.mayoclinic.org/medical-professionals/provider-relations/covid-19-resources-for-providers

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@olenka71

Hello,

My mother (62 years old) had Covid twice- September and February. She was on the way to recovery. However, the last scan showed an area with .45 sm of fibrosis. Her doctor told her to come back in 6 months. However, she is concerned about it. She is sweating, has a brain fog. She does walk every day, swims and she does breathing exercises.
Is there is anything else she can do to improve her state?
Thank you.

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Hello @olenka71 and welcome to Mayo Clinic Connect. Thank you for joining and posting your question about your mother's post-COVID symptoms and additional diagnosis of fibrosis.

I wanted to share a helpful resource, in addition to inviting you to scroll through this discussion to learn from others who have been dealing with long-haul symptoms.

– Post COVID Recovery blog
https://connect.mayoclinic.org/blog/post-covid-recovery/
Is she more concerned about her fibrosis diagnosis or her long-haul symptoms of sweating and brain fog?

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@abennett

I am a physical therapist and have just had my first patient referred for COVID longhaulers symptoms. Are there any programs with established guidelines for cardiopulmonary progression that is different than a normal cardiac rehab program? Has anyone taken a class or seminar that they could recommend?

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I'm an Active Release Techniques (ART) provider and have treated many long haulers with lingering symptoms of shortness of breath or not being able to fully expand their chest. Many had entrapped intercostal nerves and entrapments in the sternocostal joints. I'd also work on the arcuate ligament, right side. Also bilateral diaphragm stretching (non-manual). Check serratus posterior inferior and superior, and scalenes. That's a start?

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