← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "Tdrell, Thanks for that info! Is it too much trouble to locate the guidelines given for..."
Lindam272.... As promised I found Chest Cat scan summaries....
Will it be of value for me to type out the.summary of NJH 's....thebone I found so thorough compaired to the local ones?
Tdrell
Tdrell, Thanks for remembering about that! I sure don't want to put you to a lot of trouble. Whatever information you think is helpful that I can pass on when I have my next scan done - or for anyone when they have their next scans done - would be great! Linda M
@windwalker, Terri, asked my Mayo doctor about the Adderall .. was told to request from my local Internist. Saw my local internist today .. told a resounding NO! Why? I really trust her .. she said because of my age .. possible future heart issues .. and because of all the meds I have/am on. I really trust her .. AND the "Jet Alert" seems to be helping a bit so will just keep "truckin". Hugs to all! Katherine
Lindam272...here goes the summary I had on the chest CAT scan from NJH this January 2017: they listed and put info under INDICATION, COMPARISON/DATES of 2 prior Chest CAT Scans,TECHNIQUE,
FINDINGS......lower neck, Mediastnum/heart/Esophagus....Upper Abdomen.......Chest Wall.....Lungs/Pleura ....Bones
IMPRESSION
Very mild abnormality,with mild patchy groundglass in the anterior right upper lobe is mild dependent groundglass in right lower lobe.This is likely from aspiration,though non specific and could also be infectious. Typical features of nontuberculous mycobacterium are not seen in this case.
8 mm solid nodule in the left lateral sulcus is stable from February 2016 but increased compared to 2010 when it measured 3mm The location is suggestive of a parenchymal lymph node but given the increase in size could preform follow-up in 12 months.
A 7mm right apical groundglass nodule(s) (stable since2010) also be followed at that time.
Coronary calcification
Small Hiatal hernia
LUNG NODULE RECOMMENDATION
The recommendation for follow -up is based on Fleischner Society guidelines for surveillance of solid and subsolid nodules..........
The report was signed by MD "subspeciality trained in Cardiothoracic Radiology"
(Their CAT scans are reduced dose)
-------------------------------------------------------------------------------------------------------
This report , the preliminary results of 3 sputum samples...previous esophagram which showed decreased emptying...long history of GERD....led no doubt Dr Huitt to say My lungs were getting the NTM we have in our water pipes from aspiration from my GERD....hence I need to work on GERD precautions but did not need to take antibiotics since there is no bronchiectasis or signs of being infected by NTM.
---------------------------------------------------------------------------------------------------------------
After 30 years of treatment for Asthma....the methocholine test determined I don't have it.
Sleep study ( Found on local brochoscopy....not typical symptoms) showed I needed CPAP machine.
No NTM grew in 8 weeks in the 3 cultures done there in 3rd. Stage of culturing.
I will return there in 2018 for Low dose CAT scan and their interpretation.....and do 3 cultures.
Tdrell
Did you mention to her that it was a low dose .05%? I can see why in your
case, your doc wouldn't want you on it. Most drs do not like this drug because
it is easy to abuse and do some damage. I am glad you have something that works
for you.
Terri, that sounds like great news! You got some stuff going on, but it
sounds like it is all managable. So happy for you! -Terri M.
I have tried everything...clicking unsubscribe doesn't work, going to Katherine's site came back "not available", I have blocked it through Google directions ...begged, pleaded...nothing will stop the 25 to 50 posts per day. I have MAC but I am not ready for all the chat.
@ruhdesb Have you tried this: Log in to the website. Select Account Settings from Profile and Settings menu (a litter person image in a circle with a down arrow next to it); scroll down to find Email Notifications. Click on +Edit next to Groups. If no group is showing in this section, type MAC & Bronchiectasis in the Add Groups field. Once it is added, the group name should have a bullet point to the left of it and a down arrow to the right. Click the down arrow to select "Unfollow. Do not notify me about this anymore". If there is already a group name showing in this section, just do the very last step. Hope this helps.
@ruhdesb, I sent your post to Colleen .. I'm sure she will take care of it .. AND perhaps let us know why you could not take care of it? Hope all will go well for you! Katherine
Linda, you are inspiring me to change my habits! Thank you! Terri