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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hello,
I have been reading through these posts for the past several weeks and have learned a TON. I so appreciate the willingness of people to share their experiences.
I am a 37 y/o who was recently diagnosed with MIA (from BAL) and bronchiectasis after having four episodes of pneumonia since August 2016. I have had asthma all of my life and severe GERD that was fixed after a Nissen Fundoplication in 1999. Other than that I am a healthy individual. I was also diagnosed with a hernia after a recent cat scan.
It isn't clear if the MAI is the cause if the pneumonia and related pulmonary issues or a consequence of already vulnerable lungs due to an unknowm cause. I didn't have the bronchiectasis in February, per the cat scan, but it has since developed, per scan earlier in May. I started azithromyacin (sp?) last week and am beginning the second antibiotic tonight (Ethabutol?) and am a little nervous, as I have two toddlers and a demanding job. Any advice about anything would be much appreciated!
Thank you.
Jen
Replies to "Hello, I have been reading through these posts for the past several weeks and have learned..."
Thank you.
Thank you for your insight! I don't know if this treatment would be worth it! hope you stay as healthy and strong as possible!
Welcome to the MAC group, @anr38
I agree with Irene and Boomer. Is your doctor aware the increase in seizures? There may be a better antibiotic option for you. Ask questions. Seek second opinions if necessary.
Did you know that we also have an Epilepsy & Seizures group on Connect here: http://mayocl.in/2gNsE8R
Hey @janovr and everyone, please add MAC doctor recommendations to this discussion thread:
Good MAC Doctor? https://connect.mayoclinic.org/discussion/good-mac-doctor/
I'm inspired by your attitude. May the Lord be with you!
OMG! I am in Bluffton! We should get together and have our own little
support group! I am surprised that someone so close to me has this same
disease!
@windwalker, Terri, I have a store in Beaufort on Bay Street. It's called Lulu Burgess. Come see me! Nan
Hi Nan, I will! I do believe I have been in your store before.
Nan, you didn't by any chance buy a pair of sterling lotus earrings off of
me by any chance? I was in a stores on Bay St. presenting my jewelry
wholesale.....
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Dr. Colin Swenson
Emory/ St. Joseph's