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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@jennifernicole

Hello,
I have been reading through these posts for the past several weeks and have learned a TON. I so appreciate the willingness of people to share their experiences.
I am a 37 y/o who was recently diagnosed with MIA (from BAL) and bronchiectasis after having four episodes of pneumonia since August 2016. I have had asthma all of my life and severe GERD that was fixed after a Nissen Fundoplication in 1999. Other than that I am a healthy individual. I was also diagnosed with a hernia after a recent cat scan.
It isn't clear if the MAI is the cause if the pneumonia and related pulmonary issues or a consequence of already vulnerable lungs due to an unknowm cause. I didn't have the bronchiectasis in February, per the cat scan, but it has since developed, per scan earlier in May. I started azithromyacin (sp?) last week and am beginning the second antibiotic tonight (Ethabutol?) and am a little nervous, as I have two toddlers and a demanding job. Any advice about anything would be much appreciated!
Thank you.
Jen

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Replies to "Hello, I have been reading through these posts for the past several weeks and have learned..."
Katherine, Alumni Mentor | @katemn | Jun 1, 2017

Colleen, SEE that PROVES I am not reading every single post! Indeed I am so very proud of our Connect Community! Hugs to all! Katherine

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Colleen Young, Connect Director | @colleenyoung | Jun 1, 2017

Touché, Katherine! And that's how it should be. We're glad you're taking care of yourself.

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chinasmom | @chinasmom | Jun 1, 2017

Im sorry i haven't been able to help with others. Im just having a hard time keeping and catching up. I hate it that someone may feel that no one is here for them. Thanks to everyone for being here for each other. Your stories are all worth telling and you deserve answers. We all do. Stay strong everyone. The answers will come.
You are all loved!
Becky

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Terri Martin, Volunteer Mentor | @windwalker | Jun 3, 2017

Thanks Becky! Wishing you the best also, - Terri M.
 

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Terri Martin, Volunteer Mentor | @windwalker | Jun 5, 2017

Hi Angie,
 
     How are you doing today? Have you discussed this
with your dr? Do you have a GOOD dr? Try asking your doctor about inhaled
antibiotics. Where are you going for treatment? 
                                                                                                            
- Terri M.
 

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Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2017

@janovr, Hi Jan! We haven't heard from you in awhile. Are you doing ok? Last I remember is that you could not tolerate your meds. What did you end up doing?

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