Living with Neuropathy - Welcome to the group

Margie,
I’m sorry about you not feeling part of your sole. I hope you get some help for that very soon. What did your doctor say? Did you have a diagnosis? Sorry if my questions are too personal.
Frankie7

Hello @hihollyg, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. @jesfactsmon and @margaret10 discussed NAD+ in another discussion here - https://connect.mayoclinic.org/comment/326895/. You can find other mentions of the TRU Niagen product and NAD+ by searching Connect at the top of page. Here is a search link showing the results for NAD+:
https://connect.mayoclinic.org/search/
The companies website here has some science reference but I would take it with a grain of salt. To me it doesn't mention too much about helping symptoms of neuropathy but seems like an overall nutrition supplement. Here's their "our science" page for what it's worth - https://www.truniagen.com/science/.

The Foundation for Peripheral Neuropathy has some information on nutrition and supplements that help neuropathy here: https://www.foundationforpn.org/living-well/lifestyle/nutrition/

Are you able to share a little more about your type of neuropathy, symptoms and treatments you have tried?

I have nuerothpy. Thank you for answering

@johnbishop after reading some of the material you suggested I am concluding on my own that my neuropathy is from Fibromyalgia. I was diagnosed with it, along with Chronic Fatigue syndrome, 30 years ago and confirmed again last July at Mayo. I have a video appointment scheduled with the Fibromyalgia department at Mayo in 2 weeks and am going to bring it up. No neurologist has told me the cause of my problems. I am prescribed 1900 mg of gabapentin which I despise due to side effects. I have tried to cut back but the need ends up being greater than the issues of side effects. Sometimes I feel like it is a vicious circle of having severe shooting pain off the gabapentin, or terribly dizzy on it.

@suzanne2 - Here are some additional resources for Fibromyalgia that you may want to bookmark. You may want to check them out for alternatives to using gabapentin.

-- National Institute of Arthritis and Musculoskeletal and Skin Diseases: http://www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm
-- National Fibromyalgia Association: http://www.fmaware.org/
-- National Fibromyalgia and Chronic Pain Association: http://www.fmcpaware.org/
-- National Fibromyalgia Partnership, Inc.: http://www.fmpartnership.org/
-- The American Fibromyalgia Syndrome Association, Inc.: http://www.afsafund.org/

The Patient Revolution website has some note cards you can print out that helps you prepare for questions to ask at your upcoming video appointment - https://patientrevolution.org/visit-tools

Can you provide an update after your video appointment to let us know how it went?

@johnbishop how do you do this? Keeping all of these links on hand, you must be very organized. I did a search for electromyography, and this link appeared. I'm having an EMG done in July.

@Erinmfs I do bookmark links that I use a lot but I mostly use Google or Google Scholar for research stuff along with a qualifier like a + sign, for example I found the Mayo Clinic video on Google with the following search phrase:
"EMG (Electromyography) test +mayo clinic +youtube" without the quotes.

New to neuropathy in my feet. What are the best shoes and socks to wear

Hello @bcool123, Welcome to Connect. You are not alone! A lot of us with neuropathy have asked that same question and I'm sure there is a lot of variety to choose from. My neurologist recommended I wear a shoe that provides good side to side support. My preference for shoes are slip-ons that have memory foam insoles for comfort. I also love bamboo fiber socks that are stretchy but really soft but that was before I started wearing compression socks for my lymphedema in my legs.

There is another discussion on shoes for neuropathy that you may want to view here: Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/

There is also another discussion where members have shared their experiences with their neuropathy journey that you might want to read here: Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share a little more about how long you have had neuropathy and what type of neuropathy was diagnosed?

My neuropathy started in about March and I was diagnosed by my GP. Have not had any testing done yeah but it’s getting worse so I am going to make an appointment with my doc For EMG