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Grover's Disease: What works to help find relief?
Skin Health | Last Active: 2 days ago | Replies (1947)Comment receiving replies
Biopsy's aren't accurate if you are in remission or if your symptom's are going dormant, My biopsy was negative and my symptom's were classic GD.
I believe much of the information about GD is outdated. I know of 2 other women with GD personally and no men that have it. Women from my area are outdoors and in the sun from an early age and I do believe sun exposure can be a cause. I also find it hard to believe that GD is rare. There are certainly lots of folks blogging about it on this site and others.
I think many are undiagnosed and live with it for years like I did. For 4 years I was told I had heat rash or it was a different form of eczema. I went to 3 different derms before one took one look and identified it immediately.
Glad your are at this site. If your symptom's worsen or return (most of us go through cycles) read this blog from mid Feb 2019 and pay attention to the Kimass1 posting. Because of her research many, like myself, are free of GD today. So little is know about GD no doctor was able to prescribe any treatment to help. I've been clear for almost 2 years now.
Replies to "Biopsy's aren't accurate if you are in remission or if your symptom's are going dormant, My..."
Spot on. (No pun intended, Lol).
Fortunately my GP who recognised the symptoms early and followed up with a biopsy to confirm, also believes that GD is not as rare as is generally mentioned in some quarters.
The Dermatologist I was referred to had, in my opinion, very little understanding of GD and I left with the usual prescription for Corticosteroid cream and a bunch of antihistamines which my Pharmacist could have prescribed.
So far as I can tell after a brief search, and assuming everyone is seeing the pages on this forum the same way I do, @kimass1 first appears on page 10 on February 27th of 2019 if people like me who just joined the conversation recently wish to go back and read her posts. I certainly will when I have a bit more time. Thanks again, @gardeningjunkie !
I finally took the time today to go back and read all the forum posts from Feb. of 2019 to the present. It took HOURS, but there was indeed a wealth of information. As far as cilantro is concerned, I agree that the capsules may not be a viable option. Fresh cilantro in smoothies obviously works well for some people (about 50%?) and I will try that route eventually if my experiment with the drops doesn't work, but the intensity of my Grover's has definitely diminished since I started them on 6/9. I doubt if all cilantro drops are created equal. These are made by HerbPharm in Williams, OR and the cilantro used is USDA Organic and Certified Organic by Organic Certifiers which may be an advantage over cilantro found in grocery stores in that at least I can be sure that I am not ingesting any pesticides. They are highly effective according to the Amazon reviews, but effective against GD? Who knows? I also will soon start taking the Now Foods Chlorella and am considering ordering the FLANAX and maybe Lysine since I've had herpes way back when, but supposedly the virus hides in your body forever. I also found your very liberal usage of witch hazel after showering to be intriguing and will give that a shot too. I have used it in a spray bottle in the past, but perhaps not liberally enough. Also, I will definitely NOT be getting the Shingles vaccine! YIKES! Thanks so much for sticking around on the forum even after your GD has gone into remission, which I hope is permanent for you!
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You continue to amaze me. You have my utmost respect. You are a gift to all those who suffer.