Pituitary tumor symptoms: joint, muscle and body aches
Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Hello @ananda33 and welcome to Mayo Clinic Connect. Thank you for joining the conversation and sharing your journey to find what is working for you. How did you come across this as a form of therapy?
Hi Amanda, I came across this form of therapy while working with professional surfer and athlete Laird Hamilton. His athletic training program is called the XPT Performance training. Coldwater therapy and infrared saunas are a big part of the program.
My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!
Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.
Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?
I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.
Thank You Colleen!
What is the stealth MRI? Are you referring to Tesla 3?
The Stealth MRI creates a 3d image of your skull and tumor so they can avoid Carotid arteries and optic nerves, the
Surgeon used 3d googles to assist.
@captain1950 - it sounds like your recovery is going well- very difficult surgery. My daughter had a cortisol producing pituitary adenoma removed 11 years ago. May I ask what type of pituitary tumor you had?
they said it was nonproducing, but since its removal my body feels much better and my energy is slowly returning, after a prolonged absence. The surgeon said it was crushing my pituitary upward!