Want to talk with others. Have you found relief from CRPS?

granny zoo here. I started with CRPS in January 2020. I've been using a Sprint Neuro stimulator in my leg for about 45 days. I've gotten relief from the pain but when the device is off the pain returns. Lately my ears are itchy. Anyone experiencing this issue? Also having problems finding a neurologist in Hickory, NC. Any suggestions?

Hello @grannyzoo, Welcome to Connect. It's good to hear you have found something that provides a little relief from the pain. I have no experience with CRPS but did find some information that may help you find a neurologist near your location. The Foundation for Peripheral Neuropathy has a state by state directory listing neurologists here -- https://www.foundationforpn.org/living-well/neurologist-directory/#north-carolina

Here's some information on itchy ears that may be helpful - Itchy ears: 8 causes and how to get relief - Medical News Today: https://www.medicalnewstoday.com/articles/324671

Have you seen a doctor or ENT specialist to have them check your ears?

I’ve been told this is what I have 20 months down the line. This was never discussed by my os. It’s ruined my life just wanted to ask as 21% of people get this which I wasn’t aware of if other people in this site were informed. He’s referred me for nerve block at a pain management clinic but I’ve heard there isn’t much success with this and couldn’t bare more pain than I have already. Any input would be appreciated

Hello @everly23. You will notice that I have moved your post into an existing discussion on CRPS so you may connect with members like @livelifes @sprinrosa64 @grannyzoo and @therocket who have all recently shared about their experience with CRPS.

While we wait for others to respond, can you share what you are 20-months "down the line" from and also what you are doing to address your pain at the moment?

I had the nerve block because of the insurance game. Have the Sprint stimulator in my leg at this very moment. Cut my pain down immensely. I’m reasonably sure I will need one in the spine. Makes me nervous but push is coming to shove.

Contact Sprint out of Beechwood, Ohio. Talk to them about your situation. I’m amazed at what I have been able to do for the past 45 days.

Ltkr I wear a knee support crps was never discussed at consultation no pain relief works tried gabapentine amytriptaline etc

Did you have a knee replacement? I’m in the uk and not heard of that. My os just mentioned nerve block with a view to having ablation. Glad it’s helped you. I’ve found I get awful lower back pain now as well plus on and off sciatica in my opposite buttock

I don’t know what has caused my CRPS. Knees are OK. Amazed at how much CRPS there is in the UK. Check into Sprint. I just might help you.

I have back problems from surgeries my body scared from them to the point that the doctor said that nerves and the scar could not be separated that is what happened to me but if you have Constant pain then the pump or the spinal cord stimulator might help I tried The stimulator but it didn’t work for me but it’s worth a try I know people who have them only one thing if you have a pacemaker you can’t have one but you could have the pump

I have been on this Journey for over twenty years now it’s been very long and Complicated one but there is hope I know what the pump can do for you so if you have tried everything else then talk to your doctors and get a test to see if it would help you most people don’t even know that about them they do injections first to see if it helps you with out other complications if all goes well then the pump I can’t tell you how much it did for me over the last 21 years so take to your doctors and see if it for you