Want to talk with others. Have you found relief from CRPS?

Posted by mam14 @mam14, Feb 4, 2019

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

I have back problems from surgeries my body scared from them to the point that the doctor said that nerves and the scar could not be separated that is what happened to me but if you have Constant pain then the pump or the spinal cord stimulator might help I tried The stimulator but it didn’t work for me but it’s worth a try I know people who have them only one thing if you have a pacemaker you can’t have one but you could have the pump

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I have been on this Journey for over twenty years now it’s been very long and Complicated one but there is hope I know what the pump can do for you so if you have tried everything else then talk to your doctors and get a test to see if it would help you most people don’t even know that about them they do injections first to see if it helps you with out other complications if all goes well then the pump I can’t tell you how much it did for me over the last 21 years so take to your doctors and see if it for you

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@grannyzoo

I had the nerve block because of the insurance game. Have the Sprint stimulator in my leg at this very moment. Cut my pain down immensely. I’m reasonably sure I will need one in the spine. Makes me nervous but push is coming to shove.

Contact Sprint out of Beechwood, Ohio. Talk to them about your situation. I’m amazed at what I have been able to do for the past 45 days.

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I tried one if you can get the relief you need then push them to do the Study they do it temporarily to see if it helps you if it does then they put the rest of it in it’s just a neither surgery but you should have your answers good luck and take care

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@grannyzoo

I don’t know what has caused my CRPS. Knees are OK. Amazed at how much CRPS there is in the UK. Check into Sprint. I just might help you.

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Hi. Could you tell me what you mean check into sprint? Thank you

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@everly23

Hi. Could you tell me what you mean check into sprint? Thank you

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Call them and inquire about the device.

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The more I read what you have said the more it sounds like they don’t have an idea what you are dealing with we are the only ones that know you need to make them understand what works for you no matter what. They aren’t the one living with what ever you dealing with so don’t take their crap find a doctor who will keep looking for a answers for you

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I am having the same experience. I want to hear from others who are experiencing it. It is scary and sometimes I feel like I am losing it.

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@maniceti

I am having the same experience. I want to hear from others who are experiencing it. It is scary and sometimes I feel like I am losing it.

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Can people please tell me if your symptoms shift somedays certain symptoms are there other days some symptoms are not some days worse than others. Then I have days where new symptoms emerge. Can someone please let me know if this is their experience?

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@maniceti

Can people please tell me if your symptoms shift somedays certain symptoms are there other days some symptoms are not some days worse than others. Then I have days where new symptoms emerge. Can someone please let me know if this is their experience?

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So far mine is all in my right hand up to my shoulder, sometimes it aggravates my neck, luckily no where else

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@bear338

I have back problems from surgeries my body scared from them to the point that the doctor said that nerves and the scar could not be separated that is what happened to me but if you have Constant pain then the pump or the spinal cord stimulator might help I tried The stimulator but it didn’t work for me but it’s worth a try I know people who have them only one thing if you have a pacemaker you can’t have one but you could have the pump

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Hi I am a crps warrior for 5 years now. I have a Stimulator implanted in my back. I have crps in my left leg. It is taking over my life. I saw where you said a pump. what type of pump? Where is it located, back? what does it do?

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@jennmc

Hi I am a crps warrior for 5 years now. I have a Stimulator implanted in my back. I have crps in my left leg. It is taking over my life. I saw where you said a pump. what type of pump? Where is it located, back? what does it do?

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Hello @jennmc, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There is a discussion on pain pumps that you might be interested in — Pain pump, I have one, how about one for you?: https://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/

I'm sorry to hear your stimulator is no longer helping with your CRPS. Have you talked to your doctor about your stimulator implant no longer helping?

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Hi! I go to PM Dr on Monday for injection in my leg. He knows it isnt doing what it needs to. I am going to Mayo in Jacksonville on 27th I want to talk to them about a better plan than what i am on now. I stay in pain. I know nothing about a pump. but i will ask about it with the drs.

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