Does Stem Cell Therapy work for Neuropathy?

Posted by jlsoerens @jlsoerens, Jun 13, 2018

Does Mayo Clinic use stem cell therapy for neuropathic issues? Have any of you tried stem cell therapy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

julkun | @julkun | Jun 17, 2021

In reply to @johnbishop "Hello @julkun, Welcome to Connect. It looks like you were replying to the post by @ludite..." + (show)

Every lifestyle activity is dependent on the level of pain I feel at the time. My feet are always painful to some degree, when the pain is a 10 my activities are limited. I just can't or don't want to do anything.

julkun | @julkun | Jun 18, 2021

In reply to @johnbishop "Hello @julkun, Welcome to Connect. It looks like you were replying to the post by @ludite..." + (show)

Thanks, I will check the links

don261 | @don261 | Jun 30, 2021

I went to the Giostar clinic in Chicago about 8 weeks ago spent quite a bit of money with limited to no results

don261 | @don261 | Jun 30, 2021

In reply to @don261 "I went to the Giostar clinic in Chicago about 8 weeks ago spent quite a bit..." + (show)

I should have stated that Giostar does bone marrow stem cell therapy

janstar61 | @janstar61 | Jul 1, 2021

In reply to @don261 "I went to the Giostar clinic in Chicago about 8 weeks ago spent quite a bit..." + (show)

agree, my neurologist said for me not to waste my money

John, Volunteer Mentor | @johnbishop | Jul 1, 2021

In reply to @don261 "I went to the Giostar clinic in Chicago about 8 weeks ago spent quite a bit..." + (show)

Hello @don261, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Many of us have wasted a lot of money on suspect treatments. It falls back on each of us to do our own research before signing up for expensive treatments with no real science or clinical trials behind them. Here are a couple of references you might find helpful for evaluating treatments.

The International Society for Stem Cell Research has created a take-along PDF handbook with information to help you and your family make informed decisions about stem cell treatments.
-- https://www.closerlookatstemcells.org/patient-resources/

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions

Are you able to share a little more about your diagnosis and any other treatments you have tried?

janstar61 | @janstar61 | Jul 15, 2021

In reply to @navid80 "I guess there is a hope WinSantor is working hard on phase 2 that might be..." + (show)

They are currently looking for volunteers for their trial. https://mailchi.mp/winsantor.com/lets-end-peripheral-neuropathy-together-941278

pfbacon | @pfbacon | Jul 16, 2021

I wonder if any of the drug companies will bother looking for remedies for Axonal Sensory Neuropathy. Perhaps the same remedy for peripheral neuropathy patients will help ASN patients too ... ? Peggy

efgh1020 | @efgh1020 | Jul 16, 2021

In reply to @pfbacon "I wonder if any of the drug companies will bother looking for remedies for Axonal Sensory..." + (show)

That’s an interesting question. I have been tentatively diagnosed with Axonal Neuropathy. There are tens of millions of us with some form of neuropathy, so that should be an incentive for drug company research into the issue.

billyutley | @billyutley | Jul 16, 2021

In reply to @jordanabrams30 "I have read some positive information on stem cells that have come from cells from a..." + (show)

Hi Jordan,
I can understand why stem cells might from a newborn might be more curative than frozen ones. Please send a link if you find anything promising.
BillU