COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@merpreb

@placitan- Welcome to Mayo Clinic Connect. This must have been a dismal surprise. Did you have any history of autoimmunities? Had you had any gastrointestinal or respiratory infections prior to the GBS?

There is no known cause for GBS at this time.
https://consumer.healthday.com/b-4-7-no-proof-covid-vaccines-can-trigger-guillain-barre-syndrome-2651377473.html

https://www.cdc.gov/vaccinesafety/concerns/guillain-barre-syndrome.html

How are you being treated for your symptoms now?

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I have a new diagnosis based on reaction to initial IVIG treatment and current symptoms - CIDP. Not definitive as my symptoms are not exact match. Current treatment is under review but looks like another shorter IVIG treatment done on a recurring basis....

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@lk61

@placitan, I had (still have after 6 months) symptoms which resembled GBS after my Pfizer vaccine. But like you, the symptoms aren’t an exact match. I had tingling and burning in both feet & at times my hands & other some areas, right leg weakness, and slight weakness in my arms. Most of my symptoms are better, but as I said, still present. I am interested in what you experienced that led them to treat you for GBS even though they apparently didn’t feel that was exactly what you had. My neuro offered steroids which I declined at the time since I don’t believe in medicating without understanding what’s actually happening. Like you I have also searched for similar reactions and haven’t found much. This forum was the first place I really started seeing connections between the vaccine and neuropathy. Most of what I’ve found here is existing neuropathy becoming worse, or flaring up, but have also found a few others with new onset similar to mine.

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I have a friend who now has neuropathy from having Covid

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@tigreyes2004

I am scared to have my shot but I am going on Sunday to get the one time J&J shot.
My dr. recommends I get it sooner than later.
I have the neuropathy in the feet & legs so I am worried but I am going to do it & so is my husband.
I will let you know what happens.
Glad we're back on line.
God bless.

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How did you do after getting the J&J?

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I had Moderna, and while the second vaccine was brutal for 4 days afterward,- dizzy, nausea, severe fatigue & fever, I had no issues with my neuropathy.

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@janstar61

I had Moderna, and while the second vaccine was brutal for 4 days afterward,- dizzy, nausea, severe fatigue & fever, I had no issues with my neuropathy.

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I was wondering if you have any issues with neuropathy with your first shot?

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@jonathanc

Because my immune system response to pfizer has reactivated by PN and led to further nerve damage in my feet and legs which has still not stabilized 5 weeks later I am certainly hesitant about a second shot and wondering whether it might be better to try and get the one shot adenovirus j and j vaccine for the second shot. Any advice welcome.

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Curious what you ended up doing about your second shot and your outcome if you did get it.

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@dhamil

I was wondering if you have any issues with neuropathy with your first shot?

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No I had no issues. My idiopathic neuropathy is really miserable. Unlike some people that get the feeling of shocks going down their legs, my legs feel ache-y all the time, and almost feel like I have 3rd degree burns all over the skin on my legs. It's as if you put a pair of nylon stockings over burnt legs and feet, very strange and uncomfortable feeling. But to answer your question, I noticed nothing but a sore arm after the first shot.

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Sue, you can't google it anymore. It's removed from search engines. I first found out on a floxing site then a few news articles and one with virologists talking. The info dissapeared in the search engines the same way as part of the aids virus, being in the genome for the Covid Virus information was disappeared. It was reported from the first genome map and countries used AIDS drugs for months on people with the virus with significant succes.The only article google will come up for that now is the french doctor who discovered HIV gets insulted for suggesting it's lab made becuase it has part of the aids virus in it. Same about the flouoroquinolones. Now all I can find and it's difficult to find its that the Pfizer vaccine is a hydroxychloroquine. However, many sites list the vaccine ingredients and don't list that. Only a few do. So I don't know what all pfizer is or if hydroxychloroquine is going to cause problems with floxed people. On one hand floxed people like me are not supposed to take quinolones and hydroxychloroquine is one. On the other I want to be vaccinated and maybe hydroxychloroquine will be different. I should also mention that I stumbled on a site of virologists discussing this very issue months ago and all were saying they're wait until next year when the vaccines were actually based on dead viruses and not flouroquinolones which they were saying Moderna and another was. Now, it's impossible to google it. Some sites say hydroxychloroquine doesn't act the same as flouroquinoles and is safer, however the neuropathy people are getting, on this comment chain sure sounds like flouroquinoles.

Anyone having issue with their ankels? Suddenly have a hard time walking as they become too weak and you feel like you're going to sprain one. Tendon issues are big with flouroquinolone as well as tendor ruptures, including when you're doing absolutely nothing - like watching TV. Neuropathy is another symptom. Hydroxychloroquine may be acting like, it's quinolone family part flouroquinolones. Although I found a site that said it's different and much safer. Who knows. Drug companies aren't the most honest and all toute their drugs like philip morris declaring smoking doesn't cause cancer for years. It would sure help if they didn't disapppear the info.

Now, I have no idea what th vaccines are, and as I said, the ingredients are not consistent, if you can find them. They say they have dead virus in them, which is what we wan't, not the extra quinolone.

Editor's Note:
Note: Fluoroquinolones are a class of antibiotics approved to treat or prevent certain bacterial infections. COVID-19 is a virus, not a bacteria. The Pfizer mRNA vaccine does not contain hydroxychloroquine or any fluoroquinolone. Quinolones or fluoroquinolones are not an ingredient in any COVID vaccine approved for use in the US.

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Fluoroquinolones are a class of antibiotics approved to treat or prevent certain bacterial infections. COVID-19 is a virus, not a bacteria. The Pfizer mRNA vaccine does not contain hydroxychloroquine or any fluoroquinolone. The mRNA vaccine is not an antibiotic.

Here is a list of the ingredients for the Pfizer-BioNTech COVID-19 Vaccine:
Medicinal ingredient
– mRNA
Non-medicinal ingredients
– ALC-0315 = ((4-hydroxybutyl)azanediyl)bis(hexane-6,1-diyl)bis(2-hexyldecanoate)
– ALC-0159 = 2-[(polyethylene glycol)-2000]-N,N-ditetradecylacetamide
– 1,2-Distearoyl-sn-glycero-3-phosphocholine
– cholesterol
– dibasic sodium phosphate dihydrate
– monobasic potassium phosphate
– potassium chloride
– sodium chloride
– sucrose
– water for injection

For references to the ingredients, see these resources
- See page 2 of this document https://www.fda.gov/media/144414/download
- https://www.pfizer.com/news/hot-topics/the_facts_about_pfizer_and_biontech_s_covid_19_vaccine
- https://www.canada.ca/en/health-canada/services/drugs-health-products/covid19-industry/drugs-vaccines-treatments/vaccines/pfizer-biontech.html#a1.1

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Please read this article, from a respected medical publication. https://www.hackensackmeridianhealth.org/HealthU/2021/01/11/a-simple-breakdown-of-the-ingredients-in-the-covid-vaccines/

The article lists the ingredients in the 3 vaccines, and their roles in making it effective. It is written by an immunologist.

There are NO quinolones, including hydroxychloroquine, in any Covidvaccine in the US. Unless you can direct us to a publication by a reputable, qualified virological or epidemiological expert, it is not appropriate to assert this on the Connect discussion site.

Many times the reason information disappears from search engines is that, upon review, it is determined to be inaccurate - not just questionable, but demonstrably not true.

I will repeat, quinolones are a type of antibiotic. Antibiotics are not used in vaccines.

Our goal is to provide helpful, accurate, scientifically sound information to those seeking help on Mayo Connect.

Respectfully,
Sue

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