Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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I too join the club. For about a year I had a few spots, then they erupted around my chest and up and down my back. You all know the rest. What I found was very helpful was cold. When I take a shower I start with just lightly warm water, wash outside the stream and rinse quickly, Then I reduce the water temperature in steps (each of which is tolerable) until I have cold water. The gradual process makes the cold shower kind of easy. I also bought a FlexiFreez ice vest. It's great. Look it up. I can go out side in hot weather to mow or whatever and don't break a sweat. Lasts 1-2 hrs before cooling stops and you go in or get your backup ice. I wear it once a day in the house with therapeutic intent. I have ordered a evaporative cooling mat for under my sheet (pumps cool water through a a thin pad). I think that should help with night sweats without having to sleep without a shirt on top of the sheets. I bought a cold pad for behind my back when I sit for a while. My rash and the itching are greatly reduced (fading?) with use of the vest especially. I look forward to choking down some celantro shakes though. Real glad I found this site.
b

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@bburg

I too join the club. For about a year I had a few spots, then they erupted around my chest and up and down my back. You all know the rest. What I found was very helpful was cold. When I take a shower I start with just lightly warm water, wash outside the stream and rinse quickly, Then I reduce the water temperature in steps (each of which is tolerable) until I have cold water. The gradual process makes the cold shower kind of easy. I also bought a FlexiFreez ice vest. It's great. Look it up. I can go out side in hot weather to mow or whatever and don't break a sweat. Lasts 1-2 hrs before cooling stops and you go in or get your backup ice. I wear it once a day in the house with therapeutic intent. I have ordered a evaporative cooling mat for under my sheet (pumps cool water through a a thin pad). I think that should help with night sweats without having to sleep without a shirt on top of the sheets. I bought a cold pad for behind my back when I sit for a while. My rash and the itching are greatly reduced (fading?) with use of the vest especially. I look forward to choking down some celantro shakes though. Real glad I found this site.
b

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@bburg
“Real glad I found this site.”
I hope you still feel that way after your shake.
Cilantro? Choke down is right. Hope it stays down.
I'm not familiar with this condition but the treatment sounds as bad as the illness.
All the best to you,
Jake

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@bburg

I too join the club. For about a year I had a few spots, then they erupted around my chest and up and down my back. You all know the rest. What I found was very helpful was cold. When I take a shower I start with just lightly warm water, wash outside the stream and rinse quickly, Then I reduce the water temperature in steps (each of which is tolerable) until I have cold water. The gradual process makes the cold shower kind of easy. I also bought a FlexiFreez ice vest. It's great. Look it up. I can go out side in hot weather to mow or whatever and don't break a sweat. Lasts 1-2 hrs before cooling stops and you go in or get your backup ice. I wear it once a day in the house with therapeutic intent. I have ordered a evaporative cooling mat for under my sheet (pumps cool water through a a thin pad). I think that should help with night sweats without having to sleep without a shirt on top of the sheets. I bought a cold pad for behind my back when I sit for a while. My rash and the itching are greatly reduced (fading?) with use of the vest especially. I look forward to choking down some celantro shakes though. Real glad I found this site.
b

Jump to this post

Good ideas. I noticed that hot showers trigger outbreaks as well as the early heat wave we’re experiencing in the east.
No sunbathing for me. Just swimming in bright sun causes red rash on neck and chest. I’ve found some relief showering with selsun blue medicated shampoo as a body wash.

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@bburg

I too join the club. For about a year I had a few spots, then they erupted around my chest and up and down my back. You all know the rest. What I found was very helpful was cold. When I take a shower I start with just lightly warm water, wash outside the stream and rinse quickly, Then I reduce the water temperature in steps (each of which is tolerable) until I have cold water. The gradual process makes the cold shower kind of easy. I also bought a FlexiFreez ice vest. It's great. Look it up. I can go out side in hot weather to mow or whatever and don't break a sweat. Lasts 1-2 hrs before cooling stops and you go in or get your backup ice. I wear it once a day in the house with therapeutic intent. I have ordered a evaporative cooling mat for under my sheet (pumps cool water through a a thin pad). I think that should help with night sweats without having to sleep without a shirt on top of the sheets. I bought a cold pad for behind my back when I sit for a while. My rash and the itching are greatly reduced (fading?) with use of the vest especially. I look forward to choking down some celantro shakes though. Real glad I found this site.
b

Jump to this post

Hello @bburg and welcome to Mayo Clinic Connect. Thank you for joining this discussion and sharing tips on what has been helpful for you with Grover's. I love the saying that goes something like "I can do anything for 1 minute" which I feel applies to consuming a variety of healthy greens that are good for our bodies! Will you please do let us know how you feel about the cilantro shakes?

Also, how did you hear about the vest option?

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@amandajro

Hello @bburg and welcome to Mayo Clinic Connect. Thank you for joining this discussion and sharing tips on what has been helpful for you with Grover's. I love the saying that goes something like "I can do anything for 1 minute" which I feel applies to consuming a variety of healthy greens that are good for our bodies! Will you please do let us know how you feel about the cilantro shakes?

Also, how did you hear about the vest option?

Jump to this post

I have a rule...if you want it, someone makes it. I was using ice cubes on individual spots, and wanting more. I thought an ice vest would be nice. Took me 5 minutes to find it. Other people may make them, but mine is a FlexiFreeze. For me, it was a mercy. But the reverse cold shower is great too. Good luck all.

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@amandajro

Hello @bburg and welcome to Mayo Clinic Connect. Thank you for joining this discussion and sharing tips on what has been helpful for you with Grover's. I love the saying that goes something like "I can do anything for 1 minute" which I feel applies to consuming a variety of healthy greens that are good for our bodies! Will you please do let us know how you feel about the cilantro shakes?

Also, how did you hear about the vest option?

Jump to this post

Any guidance as to how much cilantro is generally used in a shake?

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@bburg

I have a rule...if you want it, someone makes it. I was using ice cubes on individual spots, and wanting more. I thought an ice vest would be nice. Took me 5 minutes to find it. Other people may make them, but mine is a FlexiFreeze. For me, it was a mercy. But the reverse cold shower is great too. Good luck all.

Jump to this post

Hi, What is the receipt for cilantro shakes? Do you use the stalks or just the leaf? How much cilantro?

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@bburg

Any guidance as to how much cilantro is generally used in a shake?

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Most people will use about 1/2 of a bunch. Generally I will buy a couple of bunches, wash them thoroughly, split them in half, put them in plastic bags and freeze them. Add juice, fruit , honey, or what ever, blend them really well, and they won't taste too bad.

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@amandajro

Hello @bburg and welcome to Mayo Clinic Connect. Thank you for joining this discussion and sharing tips on what has been helpful for you with Grover's. I love the saying that goes something like "I can do anything for 1 minute" which I feel applies to consuming a variety of healthy greens that are good for our bodies! Will you please do let us know how you feel about the cilantro shakes?

Also, how did you hear about the vest option?

Jump to this post

Originally I got the idea because I used to use ice packs on my poison ivy infections. Reduced the fluid in the blisters and the itching decreased a lot. Ice is great on any booboo!

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I'm a brand new member here as of today. Thanks for all the great ideas, including cilantro. Has anyone tried Certified Organic Cilantro Extract for Cleansing and Detoxification Support. It comes in a little bottle with a dropper. I didn't include a brand name because it may not be permissible here, but I found it at a very well-known online retailer and ordered some to try as an alternative to the more complicated ways of using fresh cilantro in shakes, ice cubes, etc. Any thoughts or experiences? Thanks.

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