Knee Replacement Failure - Need total reconstruction

I am having right knee replacement surgery August 23rd. I have previously broken my right leg trying to jump a ditch. I was 65. Lots of hospital time. Therapy over and over. At 68 I am high risk for COVID 19. My Orthopedic Surgeon I know, Trust, and am always well advised. I have watched YouTube videos and educated myself. I am getting all my ducks in a row. I picked up a bad case of Sepsis and was hospitalized again. Dr. Quigley had to remove a chunk of prime beef out of my leg. I am single male and live alone, except for a young roommate 18 years old who I screened quite well. Even had him take the Free Myers Briggs personality test. We are complete opposites. I am an ISTP. Neat and tidy, Sensitive. In addition I have PTSD, MST, anxiety, depression, ED. High Blood pressure controlled by 40 my lisinopril and 25 my HGTZ. I take Tramadol up to 100 my a day. I use Voltarin 4 times a day and the burning sensation is relieved by constantly applying salon pas, icy hot, I take Ducolax 2 times a day. I have vitamins, Chrondoflex, I am 222 lbs. My goal is 185.
I take iron supplements because I am anemic as well. 10 times I have tried to donate blood. I have tried more greens, more red meat. I take Ginseng liquid. Vitamin D3, Fish oil 3 times a day for my Dementia. Aricept 10 my at bedtime and Extra Strength Prevagen. Oxbutyrin for incontinence and a capful of Mirilax with my coffee.

Sounds like you are doing well. You remember listening and signing all those forms of consent, risks. Please don't sue your Dr. It's a waste of time. Take responsibility.
Read the BIBLE. Good luck
Will in Saint Charles, Mo

@wildebjef Hi, Will. I see you have been on Connect since May but I don't believe I have welcomed you before, so please let me do so now.

I have had two TKRs, is this your first? Mine were both good, no problems thankfully. I think the most important thing is to make sure you have the best possible surgeon that you can find. Do you know what kind of knee you are getting? I have no idea what my first knee is, I didn't really know there was a difference back then, but as I learned more after that I chose a doctor specifically based on what knee I wanted. That knee is a Conformis, and the doctor I had was the developer of it so I felt in good hands.

I hope your surgery will go as well as mine did, and make sure you do the PT advised. I don't think I did quite enough and as a result, I don't have quite the flex I would have liked. I have around 120 but 125 would work better I think.
JK

Failed total knee revision

Hello, I am new to Mayo Connect and would love some input from people that may have a similar issue. My knee has had several decisions and my ligaments loosen over months leaving my knee unstable with no explanation from many docs.
I have had LTT metal testing and allergic to several metas in my implant as well as causing autoimmune problems.
I can’t find a orthopedist that truly believes in this disabling problem.
Anyone have suggestions or help?

Oops, I meant revisions not decisions.

@mg402 Welcome to Mayo Clinic Connect, a place to give and get support.

It sounds like you have serious unexplained issues regarding your TKR and you are looking for support.

You'll notice that I moved your question to a previous discussion related to this topic where members @wildebjef @contentandwell @eeppeerr88 @carlin @babette @ardis3 @carlin have discussed this topic in the past.

May I ask how large the hospital system is you are receiving care at?

Hi Erika, I have been to several large systems. Duke, Rush, Ortho Carolina and Denver Ortho.
The problem seems to be that most of the docs agree that this is most likely a metal/concrete allergy but my posts both lower and upper are complicated to remove. Honestly, I think no one wants to be responsible for taking my implant out.
I’m open to ANY suggestions.
Thank you

There is a Facebook group called arthrofibrosis support. You will find a lot of people who have similar experiences there, and may be some answers for you.

Good to know all this information for my future preparation of hip surgery. Hopefully I pray I won’t ever need it but checked out a few Ortothos here in the for ever great UPMC doctors who are selective of there patients. I’m in Pittsburgh, Pa. There are a couple hospitals affiliated with Cleveland Clinic here. Thanks for all your posts and wish all well.

I completely understand your feelings of disappointment, frustration, and anger over a failed TKR and the docs who won’t admit their failure. After all your suffering, facing another surgery and recovery can seem overwhelming. I am in the same situation. At 8 months post surgery, the pain keeps increasing and limiting my life. Xrays show nothing and the surgeon has nothing to offer. Wish I’d never had the surgery and right now I cannot face revision surgery and the long debilitating recovery. I am in much more pain than before the knee replacement.

Hi I am in same place …. I am year out august 12 six weeks after tkr had manipulation…..had pain this whole year constant therapy but not getting anywhere …. I sought second opinion after my original dr would not do anything …,i found from new dr with my original dr X-rays that my new knee is slightly to big…..I know how you feel I was angry and frustrated how dr could see me in pain and not able to retain any progress …. In retrospect he knows exactly why I could not get anywhere…. But I know you can’t have revision for 1 year that’s why I had to wait…. I am scheduled for revision July 28 I am so anxious more so than first surgery…..new dr is very confident he can help me but did say revision are more difficult…..but if I can get like 90-95 flexion than I will happy …. So good luck keep me posted how you are doing …..