Knee Replacement Failure - Need total reconstruction

Posted by babette @babette, Jul 27, 2019

I'm pretty devastated, everyone. I had my R TKR a year ago and always knew something wasn't right. My initial surgeon said everything looked great and to give it time, PT, etc. Well I went to one of the top ortho hospitals in the country yesterday and saw a surgeon who comes very highly recommended. He told me my femur is out of alignment, there is a problem with a ligament, and my knee cap is off to one side. I wish I had written down more specifics, dh was with me but once we heard this would all have to be redone, I think we went into kind of shock and didn't process the details very well. **He understood completely why I've been in so much pain this past year. ** He referred me to a colleague who does more complex revisions than he does and I feel great about that but have to wait a month to see him and begin the process. All over again. I have no idea what this will be like, the actual surgery, recovery, etc.

I'd love to hear from others who have gone through this. Also, has anyone successfully sued the surgeon who screwed up? I'm furious to have lost a year of my life to this and now even more time to the repair and recovery.

Failed total knee revision

Hello, I am new to Mayo Connect and would love some input from people that may have a similar issue. My knee has had several decisions and my ligaments loosen over months leaving my knee unstable with no explanation from many docs.
I have had LTT metal testing and allergic to several metas in my implant as well as causing autoimmune problems.
I can’t find a orthopedist that truly believes in this disabling problem.
Anyone have suggestions or help?

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@mg402

Failed total knee revision

Hello, I am new to Mayo Connect and would love some input from people that may have a similar issue. My knee has had several decisions and my ligaments loosen over months leaving my knee unstable with no explanation from many docs.
I have had LTT metal testing and allergic to several metas in my implant as well as causing autoimmune problems.
I can’t find a orthopedist that truly believes in this disabling problem.
Anyone have suggestions or help?

Jump to this post

Oops, I meant revisions not decisions.

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@mg402

Failed total knee revision

Hello, I am new to Mayo Connect and would love some input from people that may have a similar issue. My knee has had several decisions and my ligaments loosen over months leaving my knee unstable with no explanation from many docs.
I have had LTT metal testing and allergic to several metas in my implant as well as causing autoimmune problems.
I can’t find a orthopedist that truly believes in this disabling problem.
Anyone have suggestions or help?

Jump to this post

@mg402 Welcome to Mayo Clinic Connect, a place to give and get support.

It sounds like you have serious unexplained issues regarding your TKR and you are looking for support.

You'll notice that I moved your question to a previous discussion related to this topic where members @wildebjef @contentandwell @eeppeerr88 @carlin @babette @ardis3 @carlin have discussed this topic in the past.

May I ask how large the hospital system is you are receiving care at?

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@erikas

@mg402 Welcome to Mayo Clinic Connect, a place to give and get support.

It sounds like you have serious unexplained issues regarding your TKR and you are looking for support.

You'll notice that I moved your question to a previous discussion related to this topic where members @wildebjef @contentandwell @eeppeerr88 @carlin @babette @ardis3 @carlin have discussed this topic in the past.

May I ask how large the hospital system is you are receiving care at?

Jump to this post

Hi Erika, I have been to several large systems. Duke, Rush, Ortho Carolina and Denver Ortho.
The problem seems to be that most of the docs agree that this is most likely a metal/concrete allergy but my posts both lower and upper are complicated to remove. Honestly, I think no one wants to be responsible for taking my implant out.
I’m open to ANY suggestions.
Thank you

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@mwatts91757

I just read your story very heartbreaking . I had a total knee replacement one year ago at New England Baptist Hospital .
I am still 20° away from the goal they have set for me which is 105° flexion . I have had a second opinion,x-rays, and they cannot find an anatomical reason why I cannot flex my right leg . They blame it all on scar tissue . I have had 60 sessions of physical therapy been riding my recumbent bike at my house every day, and do my exercises . I am in pain when I walk from my car to the entrance of the store . Also when climbing stairs I cannot do it step over step . I was never given a CPM machine upon discharge from the hospital which I think would’ve made a grave difference . In addition to the 60 sessions of PT I had a Dynasplint, and two manipulations . We happen to live in Massachusetts but we are 70 miles south heading towards Cape Cod . If anybody has any similar experiences but they please share it with me and what treatments have been done thank you very much !!

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There is a Facebook group called arthrofibrosis support. You will find a lot of people who have similar experiences there, and may be some answers for you.

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Good to know all this information for my future preparation of hip surgery. Hopefully I pray I won’t ever need it but checked out a few Ortothos here in the for ever great UPMC doctors who are selective of there patients. I’m in Pittsburgh, Pa. There are a couple hospitals affiliated with Cleveland Clinic here. Thanks for all your posts and wish all well.

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