Trigeminal neuritis/neuralgia treatment: What works for you?

Hi LaNita saw your post and curious.....i have been suffereing from face pain after dental freezing for 3 years now....at first it was dizzyness and some face pain but now 3 years later is still dizzyness and severe face pain and headaches...saw 3 neurologists they never even touched my face....!!!!! i had to ask the 3rd one to touch the sore area and he said it was "a bone" i wrote him a nasty 6 page letter....went to a dentist on Monday and he said trigemenal neuritis and my God...they should have been able to diagnose this!....anyways now going to see a maxifacial surgeon or pain management doc as he said they treat this now with Botyox...but what caught my eye is now as of february i have this severe pain in my trapezius muscle......serious pain...nothing on xray nothing on ct scan nothing on ultrasound...finally after 5 months my doc injected it with cortisone and it lasted about 3 months but now he doesnt want to do it anymore !!!!!! i dont get these Doctors...he told me to come back in 3 months so asking...how did your trapezius pain start and does botox work for the pain ?

Hi! I am new to this conversation as well as to TN. I am in NC so closest Mayo Clinic would be FL.
I had a horrendous cold in January this year which developed in to what was thought to be a sinus infection. However, I was not new to sinus infections and the facial pain I was having was unlike anything I experienced before. After taking various antibiotics for over two months with no results as far as this mysterious pain was concerned, I was sent to an ENT, who's diagnosis was that there was no sinus infection and suggested I be sent to a neurologist. I saw him last week. He instantly cam up with TN. I'm being sent for a brain MRI with and without contrast next week. In the meantime, he gave me Tegretol 200 mg 2x a day for the pain. Well, that's been an adventure, as the nausea was fierce. Think we have under control, but the pain relief isn't all that great. I just don't understand how this happened all of a sudden like it did. I am 66 and the only other health issue I have is mild COPD for which I use the new Trilegy inhaler. I am just so confused about all of this. Thank you for tolerating my lil rant. 😬

Hi, @zipmac - wondering how things went with your brain MRI? How is it going for you with the carbamazepine (Tegretol)?

Hi, I am new to this post..I am wondering where you had your gamma knife procedure and who did it? Are you still pain free

Depending on where you live, Dr. Pavan Jhavari at Baylor college of Medicine/St. Liurke’s hosputal in Houston TX is an oncologist radiologist that also performs gamma knife surgery
Amna

What branch of the trigeminal nerve was affected?

Hello @mariev and welcome to Mayo Clinic Connect. I can see that you that you are interested in hearing from @bren regarding where his/her gamma knife procedure was performed.

As @kenyalama mentioned, it may be helpful for members to know where you are located so that members can recommend options for you based on proximity.

Has gamma knife been recommended for you?

I live in Michigan. My neurologist told me today I do not have trigeminal neuralgia but post traumatic trigeminal neuropathy as a result of dental trauma. The neurologist said there is currently no treatment available for this, that further"procedures" would only make matters worse. I was wondering if anyone else has encountered this? I do have an appointment with a neurosurgeon in 2 weeks and was going to ask if gamma knife is an option.

I have experienced this and continue to experience it as a result of a severe abscessed tooth from last September. I am being treated with Gabapentin.

My tooth was severely abscessed as well.. are you getting relief from gabapentin? (I am not)