Trigeminal neuritis/neuralgia treatment: What works for you?

Posted by jenkob @jenkob, Aug 19, 2012

I wanted to share my experience with this condition…
Severe but treatable pain in the face and head.

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@aderaw97

Where did you do the gamma knife? I am also suffering with no medications working these days. I am considering the surgical treatments.
Thanks.
Andre.

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I dont know about the Gamma knife but I have had three treatments by Canadian surgeons using Percutaneous Rhizotomy on my Trigeminal. I had attacks daily and was poorly controlled by drugs including Gabapentin. Results were, first treatment 1.5 years of complete remission. No 2 failed but third has resuled in almost 3 years ofremission and going strong. Yes the facial numbness is there but a lot more livable with than the origional pain.
I am surprised that Rhizotomy is not mentioned more often in this forum.

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@oldwal

I dont know about the Gamma knife but I have had three treatments by Canadian surgeons using Percutaneous Rhizotomy on my Trigeminal. I had attacks daily and was poorly controlled by drugs including Gabapentin. Results were, first treatment 1.5 years of complete remission. No 2 failed but third has resuled in almost 3 years ofremission and going strong. Yes the facial numbness is there but a lot more livable with than the origional pain.
I am surprised that Rhizotomy is not mentioned more often in this forum.

Jump to this post

Thank you so much for replying. If you don't mind how much you paid for those procedures? Here in the US, most insurances don't cover TN procedures since they call them "experimental procedures or treatments ".
Also, was your procedure PGR or PCR?

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@aderaw97

Thank you so much for replying. If you don't mind how much you paid for those procedures? Here in the US, most insurances don't cover TN procedures since they call them "experimental procedures or treatments ".
Also, was your procedure PGR or PCR?

Jump to this post

I did not have to pay anything as provincial health plan and my insurance covered it all. I did have travelling expenses which I was able to claim partially on my income tax . Of course I had to wait a while before getting treatment at first. Third time I was transferred to the ooperating hospital from our local hospital emergancy dept where I had gone to with intractable pain.

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