Living with Neuropathy - Welcome to the group

My name is Victoria & I was diagnosed approx. 8 moths. Ago with CRPS . After having a lumbar back fusion. I had two nerve blocks by a pain management Dr. 5 wks. After my surgery but had no relief of my pain. At first my legs and feet were mottled , red and purple with pain, burning and swelling. Now at 9 moths. Post surgery I am still dealing with pain & burning. I am on gabapenton & I occasionally have to take Vicodin (lowest dose) I believe that at this point the gabapenton is making it worse. My blood vessels in my feet and legs bulge out & I’m getting areas of vericose veins. I’m just wondering if other people feel gabapenton is making things worse. In the beginning my pain and burning was mostly in my feet and ankles. Now I have pain and swelling in my calves and legs. I’m retaining a lot of water in my legs. I would appreciate any input.

Hello @bellabray, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share their experiences, find support and exchange information with others. Sorry to hear you have pain and swelling in your calves and legs along with the pain and CRPS. You might find reading through the following discussion helpful to meet others with CRPS.

CRPS - anyone suffering with complex regional pain syndrome: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/

I had swelling and was retaining fluid in both of my legs and was diagnosed with lymphedema and now wear compression socks which help keep the swelling down. They first did an ultrasound of the legs and then I had a lymphoscintigram which is when I was diagnosed with lymphedema. Have you discussed the swelling in your calves and legs with your doctor?

@pondoak @terryzrust @bethwiseman @windsorchris @efgh1020 @artscaping and others, The Foundation for Peripheral Neuropathy is having a Chair QiGong for PN Webinar if anyone is interested in giving it a try.

QiGong combines gentle flowing movement with breathing and meditation techniques that provide low-impact exercise, improved balance, and overall health benefits. Ms. Cynthia Maltenfort, who is a yoga, tai chi and QiGong instructor, will lead us in this ancient form of Chinese exercise. Learn how QiGong, modified for beginners, can help you.

Wednesday, June 16
2:30 - 3:30 p.m. Eastern Time
1:30 - 2:30 p.m. Central Time
12:30 - 1:30 p.m. Mountain Time
11:30 a.m. - 12:30 p.m. Pacific Time

Register for the Webinar: https://register.gotowebinar.com/register/678958740669516812

So, will this help my PN?

Gabapentin is definitely not helping me withPN

It’s something to try if nothing else is giving you relief. It sounds like it has helped some people.

Hello:
Please, would you tell me in Miami where are local pharmacies for buy Gabapentin?
Best regards,
Cynthia

Hello @silverapple I believe you need a prescription for Gabapentin. @johnbishop can you confirm?

Hello @silverapple, I think @amandajro is correct. You can't buy Gabapentin without a prescription although I'm not sure about some unscrupulous online pharmacies. I think it's a controlled substance in quite a few states and controlled state by state.

State-Imposed Restrictions on Gabapentin: https://www.medval.com/2020/01/08/state-imposed-restrictions-on-gabapentin/

My husband has been dealing with severe muscle loss and fasticulations for about a year and it has gottten increasingly worse.They thought he had multi-focal motor neuropathy but he did not have the antibodies, or any conduction block on his Emg's. So they seem stumped and now think its a type of als though he doesnt have foot drop, or exaggerated reflex. and other indicators. He is extremely upset and I can'thelp but feel that because they don't have a definitive diagnosis they are pointing to that. Anyone have similar experience or can suggest any other tests or avenues to follow. I really appreciate your help.