At a loss, multiple consultations still no answer...any idea?

Hang in there @lacy2 ...I just joined this group and only read a little about your situation. I am hoping for the best for you. Sending good thoughts your way.

@change25, I'm sorry to hear the blood tests didn't reveal anything to help uncover what is going on and causing your symptoms. If it were me I would do a little preparation for your call and discussion with your doctor or care team. There are some really good tips here - https://patientrevolution.org/visit-tools

Thanks John, I've managed to condense my symptoms to the three key issues bothering me. I've put a short script together so that I don't forget anything. I'll try to push him in the direction of referring me to a rhumatologist.

Well, now you have additional information to help in your investigation. That's a good thing.
Isn't John wonderful???? I love his dedication and research and attitude...I just think he's great and has helped so many folks on these sites. What a good link...Sounds like you've done your work and are ready for the visit. If he hears you, you'll be referred to a rheumatologist. I hope so, my friend.
Let us know. Pulling for you for the answers!
Blessings, elizabeth

He's excellent, as are so many others on this platform. I had a feeling that the bloods wouldn't yield anything, I suppose the positive is that it'll have eliminated many conditions. Yes, I just need to be careful how I approach it - I need to push the Dr in the direction of what I believe should happen, while making him believe that he's making the call.

@change25 I have seen your confidence grow so much over these past weeks! You are really doing a great job.
Is anyone going with you to your next appointment? Someone you know and trust and who sees what is going on with you. Someone who can take good notes.
Are you keeping a journal on all that is happening and doctor visits, etc.?

@lacy2 I’m thinking about you today. How are you feeling? You say that you’re having a flare—what’s involved with a flare? Did you get bloodwork this morning or did you go to the ER? Becky

Thank you, it's all down to the support I've recieved on this platform. Unfortunately it isn't in person, but that's good as I can have all of my material in front of me. I'm keeping a record of everything that's happened since my initial call.

@lacy2 Have you ever thought about making a poster of your favorite photos? You could then take a photo and shoe us! Becky

You’re correct that at least the labs revealed what you don’t have. Definitely keep insisting that you see a rheumatologist and continue getting more lab work/tests until they find an answer. I’m finding now that apparently even if the lab work and symptoms indicate I have Sjogren’s, I have to go for more tests before I can see a rheumatologist and get treatment! Stay positive and persistent!